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HEREDITARY CANCER RESOURCES
FAMILY GENE SHARE
Testimonials from individuals affected by hereditary cancers.
https://familygeneshare.org/
MY FAULTY GENE
My Faulty Gene is a nonprofit organization which provides information and assistance to underrepresented, uninsured, and underinsured individuals whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of germline genetic testing should have access, including family members of individuals with a known mutation.
https://myfaultygene.org/
BRCA STRONG
The mission of the non profit BRCA STRONG is to alleviate the emotional and financial burdens of women facing breast and/or ovarian cancer (regardless of genetic predisposition) through advocacy, direct assistance, empowerment and events. BRCA Strong has specific programs that provide individuals with mastectomy and gynecological care packages.
https://www.brcastrong.org/
GEORGIA HURST WRITES
Georgia Hurst is a fierce patient advocate for those with Lynch syndrome. Her advocacy work has afforded her opportunities to write for medical journals, various websites, books and genetic testing companies, and collaborate as a stakeholder for the National Academy of Sciences: Genomics and Population Health Collaborative.
https://www.curetoday.com/authors/georgia-hurst
SHARSHERET
Sharsheret, a national non-profit organization, improves the lives of Jewish women and families living with or at increased genetic risk for breast or ovarian cancer through personalized support and saves lives through educational outreach. While our expertise is in young women and Jewish families as related to breast cancer and ovarian cancer, Sharsheret programs serve all women and men.
https://sharsheret.org/breast-cancer/resources/
THE NATIONAL SOCIETY OF GENETIC COUNSELORS (NSGC)
Cancer genetic counselors have special expertise in speaking with people and families to help them understand their risk for cancer and how to be proactive with their health. They can help you decide if genetic testing is right for you, guide you through the process, interpret your test results, and give you recommendations on screening and prevention. Find a certified genetic counselor through NSGC.
https://findageneticcounselor.org
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