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February 2024

Newsletter

Cure CMD x The Caregiver Compass

Release Special Edition Caregiver Guidebook

Cure CMD & The Caregiver Compass are psyched to have teamed up for this all-in-one notebook designed to help track all aspects of medically complex caregiving. Made by rare disease mother & caregiver, Emily Lemke, founder of The Caregiver Compass, the Cure CMD special edition contains a forward dedicated to members of the CMD Community.


The book provides a streamlined approach to scheduling medical appointments, connecting to healthcare professionals, tracking medications/therapies, & more — capturing all care aspects to stay on top of. Learn more & access our unique promo code for a 15% discount to celebrate our launch.

Catch Up on Our Community Webinar Series

Our goal is to bring you content relatable for your CMD journey. We invite you to explore our library of webinars on various CMD topics of interest. Watch at your leisure on subjects including employment, education, mental health, adaptive driving, & more.

Watch

Register Now:

Support for Caregivers Webinar

Join us Saturday, February 17 to learn supportive methods to offer quality care for a loved one affected by CMD — tips and strategies for overcoming the day-to-day challenges of caring for someone with a complex rare condition.

Register

Cure CMD Awarded 2nd MDA Advocacy Grant

2023 MDA Advocacy Collaboration Grant Recipient: Cure CMD

Cure CMD is excited to be one of the seven recipient organizations of the Muscular Dystrophy Association's 2023 Advocacy Collaboration Grant. This grant will enable Cure CMD to continue its legislative advocacy work and provide skills training, resources, and advocacy opportunities for the CMD Community.

Learn More

Show Your Stripes on Rare Disease Day

On February 29, join us as we join the rare disease community in celebrating Rare Disease Day! Around the world, the rare disease community is coming together to show their stripes, raise awareness, & demand equity for people living with rare disease. As a global community, we have a powerful voice!

Support Cure CMD

10 Energy Conservation Tips: My Workout Journey With CMD

Stephanie Chicas

"It wasn't until I was diagnosed and knew how CMD affects me that I strived to move my bodt in ways that work for me. I put my body through trial and error figuring out what works best. I'm glad to have figured out what movements help, how to adapt, and what to avoid."

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Adaptive Sailing on the Chesapeake Bay

Celine Rifai

"I woke up eagerly because I was going sailing with my family, and not just any kind of sailing, adaptive sailing. The event was through Chesapeake Region Accessible Boating (CRAB) in Annapolis and organized by Kids in Action, which is an adaptive sports and social activities program for children and young adults with disabilities and their siblings."

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