Knowledge transfer; respite woes; and a disabled, tap-dancing diva

BLOOM ~ April ~ 2024

aroundtheworld

In Ethiopia, diagnosis of cerebral palsy in infancy improves care

In Canada, children with cerebral palsy are diagnosed before 18 months. In Ethiopia, the average age is 5 1/2 years. Dr. Selamenesh Tsige, a developmental pediatrics fellow, wanted to change that.

trailblazer

'The Ride Ahead' is about the power of community

In his Hot Docs film, Samuel Habib crosses the United States to ask disability activists about how they navigate an ableist world.

parenttalk

A woman and teen with a winter hat on stand in a cranberry bog

Respite workers are more difficult to find and afford

Agencies may charge more than double what parents paid when an Ontario service matched them with respite workers.

careideas

Two story white cottage surrounded by trees and a car in the driveway

Family builds onsite cottage for son's au pair

An advantage of an au pair over local support? 'They get to know your child much more deeply...'

bookshelf

In this graphic novel, being different is cool

The protagonist is 10-year-old Bay Ann, a Muslim girl with a disability who is passionate about tap dancing.

inthenews

N.S. parents struggle to find child care for kids with disabilities CBC

Disabled people overrepresented in study of evicted tenants CBC

Quadriplegic Quebec man chooses assisted dying after 4-day ER stay leaves horrific bedsore CBC

Autism doesn't discriminate. Autism research shouldn't either STAT News

Cropped out, banned, airbrushed: the school photos that show the ugly face of Britain today The Guardian

Minto mom quits job to drive son to autism program EloraFergusToday

A British man with sickle cell disease dies after hospital doesn't check his vital signs for 12 hours. He was non-speaking BBC

CHEO doctors to perform day surgeries at eastern Ontario hospitals CTV News

whatyousaid

Thank you for your work for the Black disabled community.

Nerissa Hutchinson

upcomingevents

Things to do

See Holland Bloorview's Events listing and click on the month for more details.

APRIL 17

SIBLING SUPPORT PANEL

For siblings aged 7+ and their parents. What's it like to have a brother or sister with a disability? 5:30-7:30 p.m. In person!

Holland Bloorview Conference Centre, 150 Kilgour Rd.

MAY 8

LIFE AFTER HIGH SCHOOL

Zoom workshop for youth aged 16 to 26 and their families. Learn about supported employment and continued learning.

7-8:15 p.m.

shoutouts

Laughing Boy takes to the London stage

In 2015, we interviewed Sara Ryan about her autistic son Connor's preventable death. He drowned in a bathtub alone, during a seizure, in a British NHS unit. He was known as Laughing Boy. Southern Health was later fined $1.8 million. Now the premiere of the play Laughing Boy comes to the Jermyn Street Theatre on April 25. You can read Sara's memoir Justice for Laughing Boy.

Young man with dark hair in collage that includes red double decker bus, bird, sun and cut-out heart

bookshelf

Front and back covers of a children's book

Out today! Joe, a boy with one leg, is confused by people's reactions to him. When doing nothing in particular, he's "SO amazing!" Other times, he's "poor Joe." This book, for kids aged 4 to 8, is a great conversation starter about disability.

'[A] witty, vulnerable, and insightful collection that highlights a diverse roster of disabled writers... This anthology is not only a joy to read but also a welcome introduction to innovative, intensely liberating approaches that are sure to change the way readers feel about traditional notions of intimacy.' Out April 30.

Contact BLOOM and share your story:

lkinross@hollandbloorview.ca

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Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Toronto Ontario Canada M4G 1R8