At the 16th Annual FAST Gala, we announced the change in leadership within the board of directors for FAST. For the past 3 years, John Schlueter has served as the Board Chair for FAST. It is time to pass the torch to a new leader, Ryan Jacob, who will serve as the board chair of FAST. We are excited for him to steer our organization to even greater heights. Please join us in welcoming him into this role. 

“He has been an integral part of our organization for many years and has consistently demonstrated a deep commitment to our mission.” - John Schlueter

Read more about Ryan:

The CAN Class of 2023 has done a tremendous job fundraising throughout the year – from events, Facebook fundraisers, and peer-to-peer appeals! We know it is not easy for some to do this so we appreciate your willingness to go above and beyond to support the mission of FAST: to cure Angelman syndrome. 

A special congratulations to our 2023 top fundraisers and Grand Prize Winners! 

Read the 2023 CAN Campaign recap:

Last month, Derek and Chrysti Matheson, parents of Remi, who lives with Angelman syndrome, hosted their 2nd annual Remi Cup Golf Tournament at Cherokee Hills Golf Course located in Tulsa, Oklahoma. The event attracted 90 golfers who participated in a scramble tournament, bid at the silent auction, and enjoyed a beautiful day on the course to support the Remi’s Drive For A Cure Foundation. We are grateful to share that this event raised $30,000 for FAST! 

Thank you to the Mathesons and the Tulsa area residents for dreaming big with Remi and the Angelman syndrome community.

Read more about the Remi Cup here:

Recruitment is open for an NIH-funded observational study of infants with Angelman syndrome – the first longitudinal brain and behavior study of AS in infancy of its kind. This study is currently enrolling infants 0-24 months of age to participate in a non-invasive (no sedation or anesthesia involved) MRI brain scan during natural sleep as well as a series of behavioral assessments to analyze development. 

This study is led by Principal Investigator Mark Shen, PhD, Assistant Professor of Psychiatry & Neuroscience, UNC School of Medicine.

Learn more about the UNC study:

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