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Hope in Action

FAST and ASF are excited to announce that on January 29, 2025, the Angelman syndrome community will have a unique opportunity to share our experiences on living with the condition, including our perspectives on treatments for our loved ones, with drug developers, clinicians, and FDA staff at a virtual externally-led patient-focused drug development (EL-PFDD) meeting. 


We need your direct involvement in this initiative. Please join our webinar on Tuesday, August 20 at 8:00pm ET. We plan to share more information on patient-focused drug development, the Hope in Action meeting format and goals, meeting logistics, and the opportunity to participate in a key community survey in October. 


Register here:

Register now
Announcing Michele Golombuski

We are thrilled to announce that Michele Golombuski has joined FAST as Chief Development Officer to expand our development team. Most recently, Michele served as the Chief Development Officer of the Michael J. Fox Foundation for Parkinson's Research, the largest nonprofit funder of Parkinson's research in the world. 


She will provide strategic leadership for all aspects of FAST’s philanthropic efforts as the organization enters a pivotal time with scientific advancements in Angelman syndrome research. 


Learn more about Michele:

Meet Michele
Register now for the 2024 Global Science Summit & Gala

Join us for the biggest science and drug development event devoted to Angelman syndrome. At the Global Science Summit, you’ll hear about the latest promising translational research development and exciting therapeutics in the drug development pipeline for AS. 


The Gala is FAST’s largest fundraiser of the year and where we come together as a community to celebrate and honor those living with AS.  


Registration is free for the Global Science Summit, and tickets to the Gala, a 21+, formal celebration, are $250/person. 


💵 Additionally, be sure to book your hotel for the events using our discounted rate.


Register for the 2024 Global Science Summit & Gala now:

Register now
Submit your photo!

Once again, we are excited to curate a video to honor our loved ones living with Angelman syndrome and unveil it at this year’s FAST Gala on November 9th in Orlando, FL. To submit a photo of your loved one for the video, please register in-person or virtually, to the 2024 FAST Global Science Summit (free to attend)! Once registered, you will receive a confirmation email with the link to submit your photo.  


The deadline to submit a photo is August 30th!

Register now
Exciting news from UPenn

The incredible academic work from UPenn is moving to biotech, where patients can be directly impacted. No one better to lead this effort than Dr. Jim Wilson. This is exciting for the field, with our Angelman syndrome program on track. More updates about investigational GTP-220 at the FAST Science Summit! 


Read more:

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CAN Spotlight: Links for Louie

For the last 6 years, the Hopeful Halos community has grouped into foursomes to take on a gorgeous Minnesota golf course, to raise money in honor of Louie, who lives with Angelman syndrome. This year was once again a success raising over $55,000 to benefit FAST. Thank you to the Werner Family and the Links for Louie (L4L) participants for your continued dedication to our mission. 


Read more and check out photos:

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CAN Spotlight: Always Having Fun

Once again, the Always Having Fun Foundation hosted their annual Hendu's Golf Classic outside of Seattle, WA last month. They had 140 golfers and several sponsors to help the Henderson family raise over $55,000 in honor of their brother, Chase, who lives with AS! We appreciate their dedicated support to FAST. 


Learn more about their foundation:

Learn more

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Six children with Angelman syndrome are pictured
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