FAST and ASF are excited to announce that on January 29, 2025, the Angelman syndrome community will have a unique opportunity to share our experiences on living with the condition, including our perspectives on treatments for our loved ones, with drug developers, clinicians, and FDA staff at a virtual externally-led patient-focused drug development (EL-PFDD) meeting.
We need your direct involvement in this initiative. Please join our webinar on Tuesday, August 20 at 8:00pm ET. We plan to share more information on patient-focused drug development, the Hope in Action meeting format and goals, meeting logistics, and the opportunity to participate in a key community survey in October.
Register here:
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