Hi Cure,

We’re so excited to see everyone registering for the 2023 FAST Global Science Summit & Gala! If you want to join us in Miami this November, make sure to sign up below.



If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org.

It’s that time of year! The deadline for abstract submission to ABOM/AS-TRS and the FAST Science Summit is fast approaching.

The Angelman Syndrome Biomarker and Outcome Measure (ABOM) Consortium and Angelman Syndrome Translational Research Symposium (AS-TRS) is made up of over 300 people with interest in advancing the regulatory science to understand, develop, test and validate different tools that can assess individuals living with Angelman syndrome in a way that can get at what is both meaningful and measurable in their lives. If a drug provides a transformative benefit, we want it to be easily measurable—because this, in turn, helps support drug approvals.

Each year, the day before FAST’s Science Summit, ABOM/AS-TRS members gather in a closed-door meeting to share scientific and clinical advancements related to the newest unpublished research in the field. The first half of the day is focused on clinical endpoints and biomarkers for clinical trials and the second half of the day is focused on pre-clinical breakthroughs in AS research. The event is for scientists, clinicians, industry and regulators only.

If you are a researcher or industry partner with relevant Angelman syndrome scientific updates that fit within one of the outlined days above, please be sure to submit your abstract by August 15th and join us for this year’s event taking place in Miami Florida from November 9-11, 2023! For more information, please click here.

For more about ABOM and why it matters, visit this page:

The Always Having Fun Foundation (AHFF) was founded in 2017 by the family of the late Dave “Hendu” Henderson, former Major League Baseball player. Dave’s eldest son, Chase, lives with Angelman syndrome. 

Dave signed his autographs “Always Having Fun” which is the motto carried on at the Hendu’s Golf Classic each year. 

This year, 160 guests participated in the 6th Annual Hendu’s Golf Classic at Washington National Golf Club, outside of Seattle, WA and raised over $50,000 to benefit FAST.

“Everyone expresses that this tournament is their favorite one to play in. I’m not sure specifically why, because I don’t think we do anything significantly different than other tourneys. But it just seems like everyone is always having fun and maybe that’s the difference.” — Trent Henderson, brother of Chase.

Thank you so much to the Henderson family for your continued support and for sharing your story with The Athletic to help bring awareness to Angelman syndrome. 

See photos and read the article:

Mark Twain once quoted, “It’s not the size of the dog in the fight, it’s the size of the fight in the dog.” This quote came to life last weekend in Fall River, WI.

This small town with a population of only 1,700 showed up big for Payslie, who lives with Angelman syndrome, and her family, at the 2nd Annual Payslie’s Pals cornhole tournament. 

“It is truly inspiring to witness my community coming together to support our event. Their support allows us to continue raising funds to find a cure for AS and help those living with it. They are the backbone of our event and we are grateful for their generosity.” - Jena, mother of Payslie.

Through a cornhole tournament, a variety of activities such as a bake sale, gift basket raffle, silent auction, 50/50 raffle, selling bracelets, etc, the event raised over $14,000! 

Thank you for fighting with us as we fight for Payslie and all of the other individuals who live with Angelman syndrome.  

See photos:

Reminder: the deadline for Summit scholarship applications and the Gala ticket giveaway is coming up on Tuesday, August 15th.

Apply now for the scholarship or enter the ticket giveaway:

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