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August 2, 2023

The Ally: Never About Us Without Us

 

This week we share updated guidance about how states should monitor local special education services. I was excited to see that the guidance encourages true inclusion of families, not the token kind, on multiple fronts.

We also share two articles from Mississippi Today about Mississippi's unusual (compared to other states) and alarming practice of jailing people who need mental health care when beds are not immediately available (or are too costly). The articles are gut-wrenching to read and very alarming. It's unacceptable for anyone to lose their freedom, dignity and civil rights simply because they need care. Medical professionals treat people in crisis with other illnesses in emergency rooms—we don't throw them in jail.

In some ways, these two issues, monitoring education systems and stopping jailing people with mental illness when they need help, seem unrelated. Still, in a few essential ways, they are related. They are both about how we should set up systems correctly and what good policies can help them keep going in that direction.

Whether it's making sure already existing policies are followed or creating policies and infrastructure where none exist, the people involved and their families must be at the table as partners. Never about us without us. Families as Allies is always willing to help. 

Please join us this week for two back-to-school support activities: Drop In Family Support Time (virtual) on August 3rd at noon CDT and the Hinds County Youth Court Back to School Family Resource Academy (in person) on August 3rd from 3:00 to 5:00 p.m.

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NEWS

 
U.S. Department of Education released updated policy guidance to strengthen the rights and protections guaranteed to children under IDEA.
 
Mississippi frequently jails people awaiting mental health treatment simply because there are no beds according to Mississippi Today.
 
We at Families as Allies offer a huge shout-out to Hinds County Youth Court and Judge Carlyn Hicks for hosting a back-to-school Family Resource Academy this Thursday, August 3rd, from [...]

EVENTS

 
Family members may drop in to share any concerns or get feedback from others about handling different situations.
 
Join other parents for a monthly meeting and online gathering to coach and support other parents in any system.
 
The Mississippi Planning and Advisory Council will meet on Aug. 10th in person at Mississippi State Hospital.
 
The National Birth Defects Prevention Network (NBDPN) will hold its National Conference from August 14-16, 2023 in Atlanta, GA with a pre-conference training to be held on August 13.
 
The Mississippi Board of Mental Health Meeting will be on Aug. 17th in person at the Department of Mental Health in Jackson, MS.
 
This hour is open for any family member to drop in for all or some of the time to ask questions or get feedback about IEP issues.
 
Gain an understanding of current policy issues and opportunities for leadership training graduates to serve on decision-making committees.

RESOURCES

 
Thank you to our friends at the Mississippi Down Syndrome Advocacy Coalition for sharing “When You See Me for Me” by Ellie Sanchez.
 
Click below for the August readiness calendar in English:
 
Haga clic a continuación para ver el calendario de agosto en español:
NIEER Early Intervention - Looking at Equity