Join us for an unforgettable weekend of learning and connecting.

Early Bird Registration (through 7/5/23): $295

Regular Registration (7/6/23 - 8/4/23): $325

Late Registration (8/5/23 - 8/13/23): $375

Industry/Corporate & Medical Provider Registration (through 8/13/23): $500 per person

Corporate and Community Sponsors: $0 (number of registrations depends on sponsor level)

Cancellation and Refund Policy: If you have paid for a registration for our Conference and cannot attend, PSC Partners Seeking a Cure will gladly refund your registration fee, if you notify us by email at contactus@pscpartners.org of your cancellation on or before August 14, 2023. Attendance that is cancelled after August 14, 2023, cannot be refunded. Industry/Corporate registrations will receive a 50% refund if cancelled on or before August 14, 2023.

Your total Conference fee (100%) goes towards the cost of the Conference. We try to keep our registration fees as low as possible. Please note that PSC Partners Seeking a Cure and our generous Conference sponsors subsidize a significant portion of your Conference costs. Your personal transportation and hotel costs are not covered in the fee, but we have negotiated discounted rates for lodging.

Do I have to stay at one of the hotels listed above? You may stay wherever you choose. However, most PSC patients and caregivers prefer to stay at a recommended hotel in order to remain close to the activities and to further communicate and socialize with other attendees.

Why have hotel prices gone up since we last met in 2019? We always try to get the most reasonable group rates possible for rooms. We have not met in person since 2019, so it is understandable that lodging prices have increased. This is also due to post-COVID travel price increases. Knowing that post-COVID travel expenses have increased significantly, PSC Partners searched throughout the country for a location that has affordable travel and lodging costs while also accommodating outside dining for immunocompromised people in our community.

Click HERE to download the Corporate Sponsorship Packet.

Links to these packets are also available on our Conference webpage.

For more information, contact our Development Director Elizabeth Szewczyk via email: fundraising@pscpartners.org.

While we will strongly recommend the wearing of masks at our Conference, masks will not be required. The Conference hotel does not require masks, and we cannot guarantee that masks will be worn by everyone. To further protect immunocompromised people, all group meals will be held outside. Additionally, PSC Partners will provide sanitizing stations and free masks throughout the Conference venue. Depending on updates from the CDC, World Health Organization, or the state guidelines, PSC Partners protocol is subject to change.

Before attending, each person should evaluate the risks associated with traveling to and from the Conference and attending an in-person event. If you’re not feeling well, please consider not attending. We’ll miss you, but we want to keep everyone comfortable.

coded stickers will be available to all on-site attendees to display on their name badges. Each attendee will have the option to place a sticker on their nametag indicating to others how they would like to interact. We borrowed this great idea from Global Genes. :-)

Whether this is your first Conference or you're looking forward to coming back, we know folks have lots of questions. Check out our Conference FAQ Page for answers.

If you have additional questions or ideas for us, we'd love to hear from you. Visit the 2023 Annual Conference page on our website, and fill out the form at the bottom of the page. You can also reach out via email, contactus@pscpartners.org, or call 303-771-5227.

The FDA has the ability to approve a drug if there is robust clinical evidence showing that the drug improves how a patient feels or functions. Currently, there are no PSC-specific, FDA-approved tools that measure PSC symptoms. PSC Partners is sponsoring research towards developing such a tool and is seeking to interview people with PSC who experience symptoms.

Email: UNC_Symptoms_Interview@unc.edu

We are almost halfway through this FUN fundraiser for PSC research, and our beaker is bubbling! If you haven't had a chance, yet, to join and/or donate, there's still plenty of time.

Our suggested donation is $83.01, because K83.01 is the disease-specific PSC ICD-10 code, but donations of any amount will go a LONG way to helping us reach our goal, and 100% of all donations go to PSC research!

Here are just a few of those smiling faces. Send us your WALK83.01 photos with a sentence giving us permission to share! contactus@pscpartners.org

Join a Peer-to-Peer ZoomRoom to Chat with

Person Scared Constantly

In her book Sandi's Journey, which is available on Amazon, Sandi encourages folks to find support, knowledge, and comfort at PSC Partners Conferences.

"The internet is full of scary "facts" as are, sadly, some physicians woefully unfamiliar with PSC. First and foremost, PSC is not a death sentence completely devoid of hope. (At the PSC Partners Conference), not only will you hear from experts in different fields about the latest PSC research, education and awareness, you'll actually be in a room with PSCers who are living happy, normal (or at least relatively normal) lives. You'll see firsthand that PSC doesn't mean Person Scared Constantly, and that alone is worth the price of admission."

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