New tool creates first ever playbook to possibly prevent chronic traumatic encephalopathy. | |
|
ROCS Director of Training Dan Daneshvar, MD, PhD and Spaulding President Ross Zafonte, DO were involved in a new study of 631 deceased football players, the largest CTE study to date. The team found that the number of diagnosed concussions alone was not associated with CTE risk. Instead, football players’ odds of developing CTE were related to both how many head impacts they received and how hard the head impacts were.
The study, conducted by researchers at Mass General Brigham, Harvard Medical School, and Boston University (BU), was published in June in Nature Communications. The new data could provide football with a playbook to prevent CTE in current and future players, according to researchers.
READ MORE
| |
Intensive Comprehensive Aphasia Program
S-IHP’s CAP (Spaulding Rehabilitation and the MGH Institute of Health Professions Intensive Comprehensive Aphasia Program) is a 5-week intensive treatment for persons with aphasia. S-IHP’s CAP follows the Life Participation Approach to Aphasia. It includes comprehensive programming of 1-on-1 Language Therapy Sessions, Group Therapy Sessions, Music Therapy, a Swim Group, a Wellness Program, and Adaptative Sports. Participants target personalized goals through interventions focused on meaningful daily activities. Though individual outcomes vary, past participants showed improvements in standardized language scores and increased confidence in communication situations.
| |  |
|
LOCATION
Charlestown Navy Yard
DATE
Begins September 2023
5-week program
Tuesdays - Fridays
9:00 a.m. - 4:00 p.m.
COST
$3,000
| |
WEBINAR SERIES: THE POWER OF COMMUNITY ORGANIZATIONS
A trend in reduced access to inpatient rehabilitation stays leaves a gap in care that is filled by community organizations. Survivors of traumatic injury often want and need a range of community-based services long after their initial injuries. This session will shed light on some of the organizations that provide those community-based services, including their history, key services and events, and concrete ways to get involved. Allied health professionals who participate in this introductory course are eligible for 1 hour (1 point) of SRN Approved Continuing Competency Credit.
| | |
|
LOCATION
Virtual
COST
FREE
| |
The SCI Survivor and the Power of Community Organizations | | |
|
DATE
August 11, 2023
12:00 p.m. - 1:30 p.m. EDT
| |
The Burn Survivor and the Power of Community Organizations | | |
|
DATE
August 25, 2023
4:00 p.m. - 5:00 p.m. EDT
| |
The TBI Survivor and the Power of Community Organizations | | |
|
DATE
September 18, 2023
12:00 p.m. - 1:30 p.m. EDT
| |
The Power of Adaptive Sports Webinar
Watch our June presentation on Adaptive Sports, with speaker Kathleen Salas, PT, MHA. Kathleen reviewed the importance and benefits of adaptive sports as a tool to advance each individual’s rehabilitation through therapeutic recreation. She gave an overview of best practices and common adaptations in a variety of sports offered each season and reviewed opportunities available to clients of all abilities.
| |
FINDING STRENGTH PODCAST - Celebrating Our First Six Episodes! | |
|
From Survival to Survivorship – Framing Traumatic Injury as a Chronic Condition, Part I
Jeffrey Schneider, MD | Researcher & Physiatrist
Diana Tenney | Burn Survivor
| | | |
|
From Survival to Survivorship – Framing Traumatic Injury as a Chronic Condition, Part II
David Estrada, JD | Person Living with SCI
Juan Herrera Escobar, MD, MPH | Researcher
| | | |
|
Recovery After Moderate to Severe Brain Injury
Chris Carter, Psy.D. | Psychologist
Joseph T. Giacino, PhD | Researcher & Neuropsychologist
Nicole Godaire | CEO, Brain Injury Association of Massachusetts
Tracey Macarty | Mother of a Brain Injury Survivor
| | | |
|
Measuring Function After Spinal Cord Injury: The SCI-FI
David Estrada, JD | Person Living with SCI
Alan Jette, PT, PhD, MPH, FAPTA | Researcher
Sarah Skeels, BS, MPH | Person Living with SCI & Research Consultant
| | | |
|
No Easy Game: An Intensive Comprehensive Aphasia Program’s First Five Years
Esther Ayuk, MS, CCC-SLP, CBIS | Speech-Language Pathologist
Randie Black Schaffer, MD, MA | Physiatrist
Lynne Brady Wagner, MA, CCC-SLP, MRMC, HEC-C | Chief Learning and DEI&A Officer
Mary Hildebrand, OTD, OTR/L | Occupational Therapist
Dana Lanzillo | Stroke Survivor
Jane Lanzillo | Wife of Stroke Survivor
Marjorie Nicholas, PhD, CCC-SLP, FASHA | Researcher
| | | |
|
More Than Just a Game: The Public Health Impact of Sport and Physical Activity for People with Disabilities
Cheri Blauwet, MD | Researcher, Physiatrist, & Person Living with SCI
Saul Fisher | Person Living with SCI
Kathleen Salas, PT, MHA | Physical Therapist
| | | |
ROCS & BWH Funded to Pursue Trauma Survivorship
Teams from the Brigham & Women's Center for Surgery & Public Health (led by Geoffrey Anderson, MD, MPH and Juan Herrera-Escobar, MD, MPH) and the Rehabilitation Outcomes Center at Spaulding (led by Shonali Gaudino, OT, BCG) have received funding awards from the Gillian Reny Stepping Strong Foundation and the MGH Springboard Studio SheSolves programs to begin development of a Trauma Quality of Life clinic.
The projects aim to formulate a clinic that provides trauma survivors with a range of longitudinal, connected services from medical and mental health care to nutrition, education, preventative care, social care, and peer support. The plans will be developed by a leadership team that includes persons-served and produces strategies for financial sustainability, program evaluation and quality improvement.
| |
'It's been an extraordinary journey': Experience of engagement from the perspective of people with post-stroke aphasia
New article from ROCS trainee and Spaulding Leadership Catalyst Fellow Carla Tierney-Hendricks, PhD, CCC-SLP and colleagues studied engagement as a factor in aphasia treatment response and outcomes. Through the client experience, engagement is seen as a dynamic, multifaceted, and person-centered process involving the client, provider and rehabilitation context. Six principles of practice were identified to foster engagement in aphasia rehabilitation and accomplished by the therapist being: a friend; invested; adaptable; a co-creator; encouraging; and dependable.
This work highlights the complexity and nuance of engagement within the rehabilitation context, which has implications for measuring engagement, training student clinicians to be skilled facilitators in engaging their clients and implementing person-centered practices that promote engagement within clinical settings.
READ MORE
| |
The Chronic Conditions Life Impact Management in Burns (CLIMB) Study Seeks Burn Leaders | |
World Congress of Brain Injury
The 14th World Congress of Brain Injury took place in Dublin, Ireland this spring. Several Spaulding faculty presented, including Yelena Bodien, PhD presenting a keynote lecture, Evidence-Based Paradigm Shifts in the Care of Patients with Disorders of Consciousness: Lessons from the Past and a Roadmap for the Future.
| |
|
ROCS Co-Director Jeffery Schneider, MD, Medical Director of Burn and Trauma Rehabilitation Program at Spaulding Rehabilitation Hospital and Associate Professor of Physical Medicine and Rehabilitation, received the Harvey Stuart Allen Distinguished Service Award at the 2023 American Burn Association Annual Meeting. This award recognizes an outstanding North American scientist for their contribution to the burn field. | |
ROCS Director of Training Dan Daneshvar, MD, PhD has assumed a new role of Chief of Brain Injury Division at Spaulding Rehabilitation. Dr. Daneshvar conducts research on the long-term effects of moderate-severe traumatic brain injury, concussion, and repetitive head impacts, including chronic traumatic encephalopathy (CTE). | |
|
Alexandra Beling, MD received the
Outstanding Resident Outcomes Research Award, presented by the Rehabilitation Outcomes Center at Spaulding for her publication Do Adolescent Idiopathic Scoliosis Patients With Vitamin D Deficiency Have Worse Spine Fusion Outcomes?
READ MORE
| | |
|
|
by Silverberg & Iverson, on behalf of the ACRM Brain Injury Special Interest Group, Mild TBI Task Force and the ACRM Mild TBI Definition Expert Consensus Group
| |
|
Walk for Advocacy & Awareness
BURN SURVIVORS OF NEW ENGLAND (BSONE)
BSONE’s Walk for Advocacy and Awareness is Back! Join us for a day filled with family friendly fun! The event will contain raffle baskets, face painting, entertainment, and tables representing local businesses and organizations, along with attendance by Boston Fire Department Honor Guard, coordinated by the Boston Fire Fighters Burn Foundation, and local hospital employees and community organizations all to benefit our burn survivor community. We looking forward to reuniting with you all. Please spread the word to fellow burn survivors, family and friends!
| | |
| |
|
LOCATION
300 1st Avenue
Charlestown, MA
DATES
September 9, 2023
10:00 a.m. EDT
COST
$30 (includes t-shirt & food)
| |
September is National Spinal Cord Injury Awareness Month | |
SCI Awareness Day at Fenway
SCI BOSTON
Please join us for the Boston Red Sox vs Baltimore Orioles game on Sunday, September 10, 2023 for Spinal Cord Injury Awareness Day at Fenway Park! The Red Sox have put aside discounted accessible and regular seating to accommodate all abilities. Your ticket purchase includes a special edition Red Sox SCI Awareness baseball hat (different color from last year, while supplies last). We have a limited number of tickets available, so get yours today!
| | |
|
LOCATION
Fenway Park, Boston, MA
DATES
September 10, 2023
1:35 p.m.
COST
$39 - $67
| |
|
RECAP: Roll on Capitol Hill
June 2023
Roll on Capitol Hill is United Spinal’s annual signature policy event that supports key advocacy priorities for its membership and the broader disability community, including veterans, to ensure that legislators include wheelchair users and all people with disabilities in policy debates on Capitol Hill.
At this year's Roll on Capitol Hill, we prioritized improving air travel and ground transportation for passengers with disabilities as well as advocated to expand the mobility device benefit so that disabled people have what they need to live as fully as possible in their communities.
READ MORE
| | |
Defining Moments in Brain Injury
BIAA-MAINE
The 14th annual conference centered on research, treatment, and services pertinent to brain injury recovery and rehabilitation in Maine. The conference will feature:
- a keynote address
- the Beverley Bryant Memorial Lecture
- sixteen breakout sessions for survivors/families and professionals
- exhibits from organizations that offer services to brain injury survivors, and
- continuing education credits.
The conference is open to brain injury survivors, family members, students, and professionals.
| | |
|
LOCATION
Portland, Maine
DATE
September 28, 2023
COST
$55 - $70 (Survivors, Family, Students)
$130 - $155 (Professionals)
| |
Phoenix World Burn Congress is Back!
PHOENIX SOCIETY
Phoenix WBC began in 1985, developed by burn survivors, for burn survivors, to identify and understand the issues that impact the daily lives of those associated with burn trauma, and is the world's largest gathering of burn survivors, their families, burn care professionals, and the fire service industry.
| | |
|
LOCATION
Greater DC Region
DATE
October 4 - 7th, 2023
COST
Tiered pricing
| |
Spaulding Adaptive Sports Centers: Summer Programming
Spaulding Adaptive Sports Centers (SASC) are open to all individuals in the community who are living with disabilities. Children and adults participate in a variety of sports and recreation events alongside adaptive sports professionals and Spaulding therapists. This provides the perfect environment to try new sports or get back to one you have always enjoyed! On our website, you will be able to create an account and register for a wide variety of sports or activities along the eastern coast of Massachusetts – from Salem to Brewster.
| |
Disability Resource Professionals Academy
DOCS WITH DISABILITIES
Academy participants will engage with a diverse group of Disability Resource Professionals (DRPs) through a hybrid learning experience that includes one year of mentorship, led by experienced instructors.
The Academy curriculum builds knowledge in critical areas such as legal issues, clinical accommodations, supporting requests for accommodations on licensure examinations, and assistive technology.
| | |
|
DATES
July 31: Academy Applications due
August 10: Notification of selection for Academy
September 7: Virtual orientation for pre-study
September 8-February 9: Pre-study period
February 15-19: In-person Academy (LA, CA)
March 2024-2025: Monthly mentorship meetings
| |
Special Needs Financial Planning: Smart Advice For Families Coping With Disabilities
FORBES
The patchwork of government programs for adults with disabilities, and their varying eligibility rules, create complications and traps. But more financial planners are aiming to help.
READ MORE
| |
|
New York Times highlights a selection of paths, overlooks and other sites in several U.S. parks that outdoor enthusiasts with disabilities can enjoy this summer.
READ MORE
| |
|
Luisa Alemany and
Freek Vermeulen
Many companies realize the value of diversity, equity, and inclusion. But most focus on gender and ethnicity, paying less attention to people with disabilities. Employing people with disabilities is usually seen as a social cause—one best suited to nonprofits or the public sector. That is a mistake—and more important, a missed opportunity.
| |
|
Francesca Street
A new airplane seat concept that allows wheelchair users to stay in their own chair throughout a flight was revealed this week by a subsidiary of US airline Delta, a move welcomed as a “huge step” by potential customers.
| |
|
The Centers for Medicare & Medicaid Services (CMS) finds that power seat elevation equipment on Medicare-covered power wheelchairs falls within the benefit category for durable medical equipment.
| |
Stay in Touch!
By subscribing to any one of our groups, you will always receive our combined newsletters as well as any messages specific to the center where you subscribe.
| | | | |
