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The Tenacity of Hope is a documentary film by Cure CMD, in partnership with Living in the Light, to showcase members of the congenital muscular dystrophy community and their diverse journeys and perspectives.
Originally created for our 2022 Patient-Focused Drug Development meeting with the FDA, we encourage you to share this film with friends, family, and colleagues, so that they may gain a better understanding of what it means to live with congenital muscular dystrophy.
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Our community mourns the loss of a beloved CMD community member and groundbreaking researcher, Professor Jeanette Erdmann. After a 45-year long journey, Jeanette diagnosed herself with CMD, adding this field of research to her portfolio. She brought a new perspective to the field and her dedication to this cause made her an important figure in the CMD community and a respected researcher in the field. Read More.
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Our goal is to bring you content relatable for your CMD journey. We invite you to explore our library of webinars on various CMD topics of interest, including education, careers, mental health, driving, and more.
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Continuing our Adaptive Series by talking with latest designers & innovators in the fashion world championing inclusivity. Join us Saturday, August 26 at 1PM Eastern (NY) to hear from community members about their favorite brands & products.
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CMD Community Members
Fan Out to Spread Awareness
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Earlier this summer, Cure CMD supported regional opportunities and experiences for our community members.
In honor of MLB’s recognition of Lou Gehrig Day, CMD community members came together for a Brewers game in Milwaukee, WI to raise awareness about neuromuscular conditions.
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Cure CMD was also invited to bring community members together in Virginia for a Washington Commanders private practice where they had the opportunity to watch, meet the team, and get memorabilia signed.
We are so grateful to all of the Brewers and Commanders for their support of our mission to advance research and improve the lives of our affected individuals and families.
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Video Game Livestream and Fundraiser
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CMD Community Member, Kierra Sunris (TheWheelchairHero), is using her passion for gaming to support Cure CMD & raise funds for research & programming. In honor of Disability Pride Month, Kierra is celebrating with a nightly Twitch stream and fundraiser throughout July. Check out Kierra's livestream and support her fundraiser!
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The most exciting and nerve-wracking part of going to college is preparing to stay on campus. This is common sense for anyone going to college, but for a person with CMD, it's a whole process.
Many steps must be taken to ensure the "full college experience" while staying on campus. I will share what I'm doing on my own "living on campus" journey, including some tips and tricks. Read More.
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Our Impact Begins With You
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