As the President of the Lymphatic Malformation Institute, we are proud to share the same vision with LGDA and LGDA Europe – to advance our basic understanding of the lymphatic system and advance our understanding of CLAs, including Generalized lymphatic anomaly (GLA)/Lymphangiomatosis, Gorham-Stout disease (GSD), Kaposiform lymphangiomatosis (KLA), and Central Conducting lymphatic anomaly (CCLA).
Most recently, LMI, LDGA, and LGDA Europe are supporting the Alfie Milne Young Investigator award which is open to researchers around the world. This $25,000 grant supports early career researchers, such as postdoctoral and clinical fellows or instructors, who are pursuing promising research ideas related to CLA’s(complex lymphatic anomalies). The award is made possible by a charitable donation from LGDA UK, highlighting the collaboration within our community.
Together, we continue to overcome the challenge shared by many rare disease communities – identifying and funding relevant scientific and clinical researchers, which hopefully leads to discovering new treatment options, and ultimately, finding a cure.
Since 2010, LMI has provided over 50 grants funding such research as the development of mouse models of our diseases to identifying genetic factors and a patient registry.
The Million Dollar Bike Ride (MDBR) is the CLA community’s biggest fundraising event. UPenn turns each dollar into two by matching our contribution up to $30,000. All funds raised go directly to CLA research. Since 2015, we have raised over $900,000 in grants for researchers around the world.
YOU help create our success! Together, we continue to make a difference and move our entire community towards the day where no one will be afflicted by these life-threatening diseases.