Hope For Hypothalamic Hamartomas - February 2024

Join us on February 29th as we take the opportunity with the international rare community to Light up the world with awareness this Rare Disease Day! Our combined goal is to shine a spotlight on those living with Hypothalamic Hamartoma Syndrome and other rare diseases.

We cannot stress how critical YOU are in our mission and the huge IMPACT your efforts have on improving the lives of those living daily with this rare syndrome.

Don't forget to order your new Hope gear.

JOIN THE CHALLENGE

#HOPELIGHTSUPFORRARE

We are starting a challenge to bring awareness to this rare this rare brain tumor.

The goal is simple:

• download and print our #HopeLightsUpForRare challenge coloring page

• color or decorate it in any way that makes your heart happy



• take a picture of it and share it with your friends and family via social media and pass the challenge on to them! 

Email the photo to ewebster@hopeforhh.org and we will feature them on our pages!

MAKING A DIFFERENCE

There are many ways to have an impact and make a difference in the lives of those living with the devastating symptoms associated with HH Syndrome. This Rare Disease Day we ask that you consider donating. Every donation has an impact on the patient-focused programs and research initiatives we are able to fund. Please consider a donation of $5, $10, $25, or more if you're able.

Ways to donate:

• #HopeLightsUpForRare fundraiser
• Our website
• GreatNonprofits

Share YOUR Story in March