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April 2023
Newsletter
You're Invited!

Join us for two upcoming events, one virtual and one live, to celebrate Cure CMD's 15th anniversary and premiere our documentary film, The Tenacity of Hope.

Created in partnership with Living in the Light, this film showcases members of the congenital muscular dystrophy community and their diverse journeys and perspectives. Check out the film trailer:
Join us May 20 for a Virtual Screening and Talk Back

Join us virtually on May 20 at 1:00pm Eastern, in celebration of Cure CMD's 15th anniversary and our incredible community, to view The Tenacity of Hope, followed by a talk back session with the film's creators and participants.

Share this event with family, friends, and colleagues, so that they may gain a better understanding of what it means to live with congenital muscular dystrophy.
RSVP for our New York City Live Event on June 4

In partnership with Living in the Light, Cure CMD is proud to present a live fundraiser and screening event in New York City.

When:
Sunday, June 4, 2023: 4:00pm-6:30pm

Where:
Positive Exposure Gallery
Between 5th and Madison
14 East 109th St
New York, NY 10029
Our goal is to bring you content relatable for your CMD journey. We invite you to explore our library of webinars on various CMD topics of interest, including education, careers, mental health, driving, and more.
Finding What Makes Me Feel Free: Community Member Releases Children's Book

CMD Community Member, Saif Aslam (under the pen name, Ud Din) recently released the children's book, What I Could've Been, and is donating proceeds to Cure CMD with every purchase! A simple, somewhat old-fashioned tale of regrets & dreaming of the many what ifs that litter our lives, the book holds a vital yet important lesson of taking advantage of the present & moving toward the future. Learn more & purchase a copy, and read more about what impact writing has had on Saif.
In February, members of the Cure CMD Legislative Advocacy Team joined 600 rare disease advocates from over 300 patient organizations in Washington D.C. for this year's 2023 Rare Disease Week on Capitol Hill, hosted by Rare Disease Legislative Advocates (RDLA)
Were you unable to meet with your Members of Congress in Washington D.C. during Rare Disease Week? You can still participate by taking les than a minute to complete an action alert(s) to have an automated email sent to our Members asking them to support the CMD and rare disease communities.
Cure CMD is so excited to be named one of the five recipients of the Muscular Dystrophy Association's 2023 Advocacy Collaboration Grant. Under the direction of Legislative Advocacy Team Lead, Lani Knutson, Cure CMD will use these funds to survey members of the CMD community about their needs and expand our grassroots programs & advocacy tactics. Stay tuned for opportunities to get involved with key public policy & advocacy initiatives to empower people living with neuromuscular conditions.
Cure CMD recently launched a NEW & EXPANDED Swag Shop! It offers a variety of Cure CMD-branded products from apparel to accessories, and much more — there is something for everyone. Make sure to shop now and show your support for the CMD Community!
For members of the CMD community who are charitably inclined, one giving option is donating shares of appreciated securities.

Donating shares of individual stocks, or mutual funds can be a good strategy to support Cure CMD while eliminating capital gains taxes that would be due if you sold the shares and donated the proceeds. If your shares have a low cost basis, those capital gains savings can be significant... Read More
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