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Now Accepting Applications for the Emerging Investigators Program

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Applications for the 2023/24 Emerging Investigators Guided Research Program are now open. Up to three projects focused on health systems research for children and youth with special health care needs will be funded up to $15,000 (1-year).


Applications are due to Charlene Shelton on June 5, 2023. For eligibility information, mentoring areas, FAQs, links to the informational webinar, and the application, visit our website.


Download an informational flyer to email to your contacts!

Emerging Investigators Program

Network News

Upcoming Conferences and Presentations

Pediatric Academic Societies Meeting 

April 27 – May 1, 2023

Washington, D.C.

In Person and On Demand

Register


  • Congratulations to CYSHCNet member Arda Hotz, MD on her abstract acceptance as presenting author of Families’ Experiences of Changes in Health Care Utilization for Children with Special Health Care Needs During the COVID-19 Pandemic.
  • Congratulations to CYSHCNet member Liliana Wagner, PhD, BCBA on her abstract acceptance for poster presentation on Development of a Patient-Facing Mobile Health App to Track Family Access and Engagement with Early Intervention Services in Underserved Communities.


CYSHCNet Annual Meeting

May 16 - 17, 2023

Aurora, Colorado

In Person and On Demand

Email for more information


Academy Health 2023 Annual Research Meeting

June 24 – 27, 2023

Seattle, Washington

Register


  • Congratulations to CYSHCNet member Kristina Malik, MD on her abstract acceptance for poster presentation on Mental and Behavioral Health Access and Needs Among Children with Medical Complexity. 

Partner and Family Spotlight

What Does True Family Partnership in Research Look Like?


“When you have a medically complex child...the information you often receive is complicated...I recognize the difficulties, the confusion that can cause angst when you are receiving materials essentially in a language you don’t understand. My goal is to provide clarity and simplicity for families." ~ Nikki Montgomery, MA, MEd, GPAC

Nikki Montgomery shares her experience as program and communications manager of Family Voices AND as a parent of a medically-complex child. An expert in plain language and health literacy, Nikki is passionate about helping families and researchers come together to engage in work that matters. Here she provides tips for researchers on how they might better engage with families in research and communicate research findings in ways that are clear and actionable.

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Partner News

Congratulations to Nora Wells on Her Retirement as Executive Director of Family Voices

CYSHCNet wants to thank Nora Wells for her unwavering commitment to families and children and for her dedication to family engagement. Her insights, experience, and friendship have enhanced our work and helped to create a culture of service to families and children. Thank you, Nora!


We also welcome Allysa Ware as the interim director. Some of us have worked with Allysa and we are excited to work with her in this expanded role.


Nora, we hope you will not be a stranger and wish you the very best in this next exciting chapter!

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Action Item

Do You Plan to Submit a Grant in the Next 12 Months?

The CYSHCNet Primary Data Center can help anyone who is:


  1. Planning to submit a grant in the next 12 months, or
  2. Planning on transitioning from a K or K-equivalent award.


Dr. Ryan Coller is happy to connect to explore how we might help.



Contact Ryan

Network News

Share this Link to Help Others Engage with the National Research Agenda

CYSHCNet developed an interactive learning platform based on our national research agenda on health systems. It describes and provides guidance on how to implement elements of the national health systems research agenda developed by CYSHCNet in 2019-21. It is easy to navigate and provides challenges you may face, tips on organizing the study, and examples of potential projects.

National Research Agenda Learning Platform

LANGUAGE: This project is supported by CYSHCNet, which is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under UA6MC31101 Children and Youth with Special Health Care Needs Research Network. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS, and the U.S. Government.

VIew Our Website

In the News

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CYSHCNet is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under UA6MC31101 Children and Youth with Special Health Care Needs Research Network. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS, and the U.S. Government. Website

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