This month, FAST was excited to participate, along with other rare disease organizations, in The National Organization for Rare Disorders (NORD) #ShowYourStripes contest, as we all gear up for Rare Disease Day on February 28th!
Congratulations to the top 3 organizations: iSACRA international Sacral Agenesis Caudal Regression Association, Stxpb1 Disorders and Cacna1a Foundation.
FAST will be joining NORD and other rare disease organizations in Washington, DC Feb 28th – March 2nd for Rare Disease Week, which is aligned with our advocacy work being done through the FAST Advisory Council.
NORD is the leading independent patient advocacy organization representing all individuals and families affected by rare diseases in the United States. Alongside a growing network of disease-specific member organizations, professional patient advocacy groups, and industry partners, NORD improves lives, empowers patients and caregivers, and provides the right information and resources at the right time.
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