Hi Cure,

There are more new videos on our social media platforms if you haven’t seen them! Check out the latest FAST Facts episodes with Easton Bryant and FAST Athletes videos on our Facebook, Instagram, or TikTok (and be sure to follow us so you don’t miss the next one!)

If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org.

To continue our effort in unpacking the scientific, sometimes daunting jargon that is used throughout the AS community, this week we will clarify terms often used in clinical trials.

It’s important to understand the difference between interventional vs observational clinical trials, phases, and groups – and then how endpoints, biomarkers, outcome measures are all important in order to understand if a therapeutic is effective.

Read more about the difference between these trial-related terms:

Earlier this month, the Skating Angels Hockey Tournament took place, where 8 teams competed in a fundraising event in Wellesley, Massachusetts. Danielle and Jeff, parents of Bruce, who lives with Angelman syndrome, took their love for hockey to help raise money for FAST.

The Skating Angels’ tally is over $34,500 in 2023 so far. Much of this was contributed in honor and remembrance of Bruce’s uncle and Danielle’s brother, Greg Williams, who was the biggest fan of the Skating Angels and a huge supporter of the AS community. 

Thank you for your commitment to FAST!

“Lots of angels on the ice in Wellesley”

- Report by WBZ News’ Susanne Sauceville! 

Listen to the WBZ News Radio clip covering the event:

This adorable 9-week-old purebred golden retriever is looking for a loving FAST family home!

The giveaway ends next week, so don’t miss out.

Submit an application with a photo of your family and child that lives with Angelman syndrome and share why this dog will impact your life. 

Applications are due Tuesday, May 23, 2023 at 11:59pm CT. Apply now:

Disclaimer: Selection of puppy placement will be made strictly by the breeder, not FAST. If selected, the owner must be able to travel to Pennsylvania to pick up the puppy. Puppy does not come as a trained service animal but is screened to be a therapy dog. Training would be the responsibility of the owner.

FAST is proud to be the only US-based Angelman syndrome organization that has the highest ranking on Charity Navigator, the 4-star rating!

Community fundraising through our Cure Angelman Now (CAN) campaign is critical to supporting FAST’s mission. We understand that asking for money is not always easy, and everyone’s experience with fundraising is different.

This 4-star rating designates FAST as an official “Give with Confidence” charity, indicating that our organization is using our donations effectively based on Charity Navigator’s criteria. Charity Navigator is America’s largest and most-utilized independent charity evaluator. Since 2001, the organization has been an unbiased and trusted source of information for more than 11 million donors annually.

Learn more about the different types of fundraising for FAST and how you can help:

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