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Take this FAST ACTION today: Share our ways to get involved for International Angelman Day (IAD) on February 15th with your network!

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Read more about IAD below.

First Patient Dosed in Phase 3 - Aspire Study Evaluating GTX-102 in Angelman Syndrome

“The initiation of the Phase 3 Aspire study by Ultragenyx is a significant achievement and something the community should celebrate,” stated Amanda Moore, chief executive officer at ASF and Ryan Fischer, chief operating officer at FAST. 

 

Learn more about this new study:

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An Update on Our Collective Advocacy Efforts - Hope in Action

As we start 2025, we want to provide updates on our advocacy strategy and collaboration. With headlines about what is happening in DC abounding, this update is meant to focus on health policy relevant to our community. ASF and FAST are committed to tracking developments and keep you informed as updates become available. In addition, we want to ensure the AS community understands the ways to actively participate in these efforts throughout 2025. Together, we can make a difference. 

 

Learn more and get involved:

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CAN 2.0 Network

Up until now, CAN has been an acronym for the Cure Angelman Now (CAN) – a fundraising initiative that the community used to inspire millions of dollars in support of FAST’s mission. That incredible effort paired with the amazing generosity from past and present FAST donors has helped us get where we are today. But there is more to do, and so we are working to expand our community outreach even further by launching the new and improved CAN—no longer just a fundraising campaign, it is now a network!  

 

The goal of the Cure Angelman Network is expansion-- to engage as many members of our community as possible in our mission. The network consists of a hub of opportunities (big and small) to support one another and our loved ones living with AS. We encourage you to participate in the network in a way that inspires you (advocacy, fundraising, influencing etc.) to help us drive impact forward in improbable ways. We are so excited to engage more of you in this incredible moment in AS history and to ignite a coalition to help FAST cross the finish line! 

 

Join the network today:

Get involved
February 15, 2025 - Countdown to International Angelman Day: 39 Days

International Angelman Day (IAD) is coming up next month on February 15th. February 15th is significant because February is Rare Disease Month and the 15th refers to the 15th chromosome, which is the chromosome impacted by Angelman syndrome. 

 

This day is a global opportunity to raise awareness, promote research and educational resources, fundraise, and remember those who lived with AS who are no longer with us. 

 

Communities around the world participate in their own unique ways. If you are interested in joining in 2025, check out the ideas below:

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CAN Opportunity: Join us in Washington DC in March

We need Angelman syndrome on the forefront of legislators' minds each and every year, to understand the needs of the AS community. Therefore, we are heading back to Washington DC on March 4-5th for our 2nd Annual Angelman Syndrome Congressional Advocacy Day. 

 

Please consider joining the Foundation for Angelman Syndrome Therapeutics (FAST), the Angelman Syndrome Foundation (ASF), and your fellow advocates from around the USA this year as we continue to advocate together to help bring a meaningful therapeutic to individuals living with Angelman syndrome. 

 

Register for our Advocacy Day today:    

Register today
FAST Germany Wachgeküsst Campaign

FAST Germany has relaunched its inspiring campaign titled "Wachgeküsst" ("Awakened with a Kiss") to raise awareness and funding for Angelman syndrome. This event brings together the German community and is gaining social media traction! Great job, FAST Germany, for launching such a fun initiative. 

 

Learn more about this campaign: 

Learn more
2025 Save the dates

Jan 29th: EL-PFDD Meeting (Virtual) - RSVP

Feb 15th: International Angelman Day (Worldwide)! - Participate

Mar 4-5th: 2nd AS Congressional Advocacy Day in Washington, DC -Register

Nov 7-8th: 18th FAST Global Science Summit & Gala in Orlando, FL - Registration opens this summer

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Six children with Angelman syndrome are pictured
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