Martine Elias, Executive Director |
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"Supporting myeloma research initiatives that are focused on improving quality of life, and helping to find a cure, remain our top research priorities.
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Updates on ASCO and EHA 2021 Conference
Dr Joe Mikhael of the IMF identifies interesting research themes that emerged from the 2021 virtual EHA (European Hematology Association) and ASCO (American Society of Clinical Oncology) conferences:
- Induction therapy
- Autologous stem cell transplant
- The role of maintenance therapy
- High risk multiple myeloma
- Relapsed refractory myeloma
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Click on the links below for more information:
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Calling all patients with light chain (AL) amyloidosis: Last day to participate in our survey! |
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You have until midnight tonight to participate in our survey evaluating daratumumab (Darzalex) combined with bortezomib (Velcade), cyclophosphamide and dexamethasone for the treatment of adult patients with light chain (AL) amyloidosis.
To complete this survey, you must be newly diagnosed with light chain (AL) amyloidosis displaying measurable hematologic damage (abnormal light chain protein with one or more affected organs) and:
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- be eligible to receive a combined treatment consisting of bortezomib (Velcade), cyclophosphamide and dexamethasone
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- are currently receiving a combined treatment consisting of bortezomib (Velcade), cyclophosphamide and dexamethasone
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Please submit by midnight tonight: Tuesday, July 22, 2021. |
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Since the start of 2021, Myeloma Canada has been more involved than ever before in a series of public consultations on access to healthcare and services in Canada, and on the assessments of new myeloma treatments soon to be available in Canada.
The work we do to keep our seat at the negotiating table is crucial; it ensures that the voices of our myeloma community are heard and that the healthcare system responds to your needs.
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What's new at Myeloma Canada |
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Multiple Myeloma March: Walk the walk for myeloma research |
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We started off in Beaver Creek, Yukon, the furthest western point of Canada, and have already crossed Kamloops and Osoyoos, British Columbia.
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Here are the cities we’ve visited since we’ve started : |
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Travel with us (virtually of course) across our beautiful country. Don’t forget to keep recording the kilometres you travel in your Personal Distance Tracker calculator so we can add them to our virtual journey across Canada. For more information, click here.
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Register now for the Multiple Myeloma March near you! |
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To make registering even easier, just click on the city where you'd like to participate: |
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No planned March in your community this fall?
You can still participate by registering for the Virtual March option and plan your own personal challenge in your community!
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For all cash and cheque donations:
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Download and print the "Offline Donation" form here.
- Bring your completed forms and donations with you to your local March event, or mail-in your form and donations to: Myeloma Canada, 1255 TransCanada Hwy, Suite 160, Dorval, QC H9P 2V4
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Health eMatters Conference: only 1 week left to submit your application! |
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The first of its kind in Canada, Health eMatters is a ground-breaking program and conference for online Canadian cancer advocates to share, learn, be inspired, and sharpen their skill sets to become better at raising awareness on the issues that matter most to them.
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Brought to you by Myeloma Canada, the Health eMatters Conference is designed specifically to help myeloma and other online cancer advocates hone their skills, master new tools, network, and increase their impact in Canada.
Join us October 28-30, 2021 at the InterContinental Toronto Centre for 3 days of unprecedented learning and sharing.
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Click here to find out more about the conference.
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Apply before July 30 to be considered to participate in this free and exciting conference for online cancer advocates. |
Places are limited and filling fast! |
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Spotlight on Kerrie Gagne:
My AL amyloidosis story
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"By October 2020, everything seemed to be going great and I was almost ready to go back to work until suddenly something happened. I couldn’t breathe properly, as if I was being crushed. My chest felt like it was going to explode, and all my veins rose to the surface making me look like "The Hulk". Off I went to the hospital where they kept telling me there was nothing, that I have chronic pain, and to just go home.
In their eyes, I was a simply a 47-year-old female that had low blood pressure and appeared to look fine. There was nothing alarming showing in my blood tests other than an abnormal blood protein (which had come up in a previous lab test; my doctor was unaware of the potential looming problem)."
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Join us online from the comfort of your own home! All you need is a computer, tablet or smart phone and an internet connection.
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Don't forget - full information on upcoming webinars is also available in our 'News & Events' section, or by clicking here.
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Past webinars:
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About MGUS and Smouldering Multiple Myeloma - View recording
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Myeloma 101: Diagnosis & Treatment - View recording
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Myeloma Canada presents: A sit down interview with Dr Hira Mian - View recording
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Medical Cannabis in Clinical Oncology: Present & Future - View recording
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Latest Myeloma Research Updates from the ASH 2020 Meeting - View recording
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Update on COVID-19 and Myeloma in Canada - View recording
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Drugs Commonly Used for Multiple Myeloma Patients and Side Effects - View recording
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Myeloma Monitor: Learn How to Organize, Track & Manage Your Myeloma - View recording
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Oncology Rehabilitation Program Kinatex Sports Physio - View recording
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Jim's Story of Self Advocacy, Living With Myeloma for 28 Years - View recording
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Our website includes a section dedicated to COVID-19 and its impact on our community. Please visit it often for regular updates and resources you can trust.
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COVID-19 related webinars*
*See the "Upcoming Events" section below for non-COVID-19 related webinars
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All webinars are free, recorded and are available for viewing on our Myeloma Canada YouTube channel.
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For more information on all upcoming webinars, click here.
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Past webinars:
Click on the title to view the recording:
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Myeloma Canada is here to support you along every phase
of your myeloma journey.
Please consult our website at myeloma.ca for up-to-date news and information,
as well as the following helpful links:
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In these difficult times, you, our community, remain our number one priority.
Now more than ever, we appreciate your support. Your donation enables us to continue
providing you with the best information, resources, programs and services - across as many
technology platforms as possible - to stay empowered, informed and connected, while funding
research to help find a cure for this disease.
Thank you for your generosity and for helping us help you.
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Follow us on social media for the most up-to-date information and resources: |
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Si vous préférez recevoir cette Infolettre en français, écrivez-nous à contact@myelome.ca.
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