Martine Elias, Myeloma Canada
Executive Director
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Ah summer! You’d think that this long-awaited, way-too-short season of sunshine, warm weather and an easy, laid-back feeling would also mean a more relaxed pace, right?
Not for us at Myeloma Canada! As much as we’d love to be sipping piña coladas poolside, we’ve been busier than ever. Over the past few months, we've kicked off and completed so many amazing programs.
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Sign up today for Myeloma Canada's
14th annual Multiple Myeloma March...
It's your March, your way!
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Join one of the 33+ communities participating in Myeloma Canada’s annual flagship fundraiser, the Multiple Myeloma March!
Funds raised through the 5km walk event will go toward:
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Cobourg Multiple Myeloma March 2021 |
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This year, we’ve set our fundraising goal at $750,000.
With your help, we have no doubt we’ll get there!
Lean more below in "What's new at Myeloma Canada"
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Biopharmaceutical Ecosystem Index: Where does Canada rank on its attractiveness for new medicine launch? |
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Myeloma Canada is proud to have collaborated on the PDCI Market Access, launched June 20th, 2022. As a member of the independent Editorial Advisory Board composed of biopharmaceutical experts and experts on pharmaceutical policy and patient access issues, we contributed to identify, prioritize, and weigh a set of indicators that global decision-makers view as important influencers on where and when new medicines should come to market. PDCI’s Biopharmaceutical Ecosystem Index fills an important gap in the literature, uncovering why the submission lag may exist for Canada relative to the US and Europe.
Following a comprehensive literature review, each country was scored on each indicator. These scores were then weighted to produce a composite attractiveness score for each country. Overall, Canada ranked 10th place out of 14 countries on its attractiveness for new medicine launches.
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I - Health eMatters Conference
1 month left to submit your application!
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This exciting conference is designed for online Canadian cancer advocates to share, learn, be inspired, and sharpen their skill sets to become better at raising awareness on the issues that matter most to them. Click here to find out more.
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Highlights from HealtheMatters Spring 2022 |
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Join us October 27-29, 2022 at the Radisson Blu Toronto Downtown for 3 days of unprecedented learning and sharing.
Apply before August 15th to be considered to participate in this free and exciting
conference for online cancer advocates.
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II - Coalition Priorité Cancer au Québec reviews Quebec cancer priorities
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On May 2nd, the Coalition Priorité Cancer au Québec (Quebec Cancer Coalition) held its first General Assembly in Montreal to review cancer priorities that were established 15 years ago. The inaugural event led to 68 formulated suggestions which were consolidated into 12 priorities and then shared with policymakers, the Coalition’s management team, cancer patient advocates, and advocacy organizations.
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Myeloma Canada is proud to not only have been a part of the organizing committee, but to have participated in this important Quebec oncology event, and to have contributed to the preparation of the final report.
The report documents the objectives and priorities for action resulting from consultations held with Coalition Priorité Cancer au Québec members and partners at their General Assembly. It was submitted to members of the Government of Quebec, as well as to the health critics of the opposition parties who were all present at the event.
To view the report (published in French only), please contact Jessy Ranger, Myeloma Canada's Director of Patient Programs, Health Policy & Advocacy at jranger@myeloma.ca.
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*The Quebec Cancer Coalition (Coalition Priorité Cancer) is a group of more than 60 non-profit organizations representing all cancer types and all regions of Quebec which aims to improve the health care system in Quebec for the good of those affected by cancer, and to defend the rights and interests of patients, survivors and caregivers. |
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III - Myeloma Peer Support volunteers know what you’re going through
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Speaking directly and privately with a Myeloma Peer Support v olunteer may offer you a different level of comfort, knowing that they too, ‘have been there’.
Myeloma Peer Support volunteers are your true peers. Their shared experience may help you better understand, manage or cope with your situation, provide you with a different perspective, or valuable ideas and insights.
For people living with myeloma and caregivers.
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What's new at Myeloma Canada |
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It's your March, your way!
Back for its 3rd year... the Personalized Distance Challenge!
Set your own personal goal (to run, walk, cycle) starting on the day you register until the day of your community or virtual Multiple Myeloma March. It’s a great way to stay healthy, active and energized throughout the months leading up to your event. Find out more here.
Whether we physically walk together this fall or not, by doing your March your way, you’ll be playing a crucial role in making myeloma matter, and keeping us moving forward so that all those affected can enjoy better, longer lives until a cure is found.
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Kingston Multiple Myeloma March 2021 |
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Help us reach our fundraising goal of $750,000.
Simply click on the city you'd like to participate in to get started.
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No March? No problem!
Learn more about the March here
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For all cash and cheque donations:
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Download and print the "Offline Donation" form here.
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Bring your completed forms and donations with you to your local March event, or
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Mail-in your form and donations to: Myeloma Canada, 1255 TransCanada Hwy, Suite 160, Dorval, QC H9P 2V4
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II - New Facebook Support Group: Myeloma and AL Amyloidosis
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We heard, listened, and acted. Over the past little while there’s been an increasing request within our community for an online Facebook support group specifically for those either living with myeloma and AL amyloidosis or AL amyloidosis alone.
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The group is a safe environment where you can connect and share your thoughts and experiences with others living with myeloma and AL amyloidosis or AL amyloidosis. Because the group is online, you can virtually meet others who have much in common with you, regardless of where they live, what time it is, or even the language they speak (Facebook has an auto translate feature!).
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Learn more about:
Request membership in any of Myeloma Canada’s other virtual support groups:
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III - Meet Karine Gravel, Myeloma Canada's newest staff member!
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We're pleased to introduce you to Karine Gravel, the newest member to join the Myeloma Canada team! Karine will be acting as Project Manager, Education and Patient Services where she will play a key role in service development, access, sustainability, and support for our Canadian myeloma community. With more than 20 years of experience in the pharmaceutical industry, Karine has worked in many areas including within Pfizer's Clinical Research and Development team. It’s here where she gained her passion for patient wellness and the search for new innovative treatments.
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Karine holds a Bachelor’s degree in Translation from the Université de Montréal as well as a certificate in computer graphics. We'll certainly be taking full advantage of Karine's linguistic skills and creativity to enhance our educational materials! Naturally empathetic and devoted, Karine is delighted to be joining our team and work directly with our community. Welcome Karine!
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IV - New recipe available in our “Wellness” section on myeloma.ca
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A new recipe card has arrived!
This colourful dish is bursting with flavour and packed with protein, fibre, and phytonutrients.
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Spotlight on Paule Désir:
A story of hope and faith
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A few years ago, I was diagnosed with cutaneous lupus as well as sickle cell trait disorder which leads to extremely low hemoglobin levels. At the time, I noticed my body needed rest after exerting a lot of energy or after a long trip. However, since 2019, the fatigue seemed more constant. I suffered from pain all through my body: my neck, back, hips, stomach, and head; I was also starting to worry about my concentration. In short, it was not going well.
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Meet Frantzie, Paule's sister and caregiver
When Paule told me about her multiple myeloma diagnosis, I was in shock and dumbfounded. From day one, I promised myself I would remain strong and positive for her.
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InfoSessions
Each year Myeloma Canada hosts InfoSessions for people living with myeloma, their families, and healthcare professionals, featuring guest speakers from the medical community in cities across Canada. InfoSessions are generally half-day events covering many aspects of living with, and managing myeloma.
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Thunder Bay (ON)
Friday, August 19, 2022
1:00 - 5:00 pm EST
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Vaudreuil-Dorion (QC)
Tuesday, August 30, 2022
10:00 am - 2:00 pm EST
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Meet & Greets
Our Meet & Greet events are the perfect opportunity to meet and exchange with others in your local community who are living with, or caring for someone with myeloma. You'll also learn the latest developments in myeloma research and symptom management from local experts.
Living in an area that doesn’t yet have a local support group? Meet & Greets are a great starting point! Very often, they're the springboard from which a support group will be formed, and friendships created.
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Red Deer / Spruce View (AB)
Tuesday, August 9, 2022
5:30 - 7:30 pm EST
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For myeloma and AL amyloidosis patients
and caregivers
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Join us online from the comfort of your own home!
All you need is a computer, tablet or smart phone and an internet connection.
Full information on upcoming webinars is available in our 'News & Events' section, or by clicking here.
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All webinars are available for free viewing on
Click on the YouTube logo to access our YouTube channel.
Past webinars:
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The Défi Everest Challenge is moving mountains for myeloma! |
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The Défi Everest Challenge will be taking place September 24, 2022 in Dieppe, NB to raise funds for clinical research and advocacy for accelerated access to game-changing therapies.
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Myeloma Canada is here to support you along every phase
of your myeloma journey.
Please consult our website at myeloma.ca for up-to-date news and information,
as well as the following helpful links:
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In these difficult times, you, our community, remain our number one priority.
Now more than ever, we appreciate your support. Your donation enables us to continue
providing you with the best information, resources, programs and services - across as many
technology platforms as possible - to stay empowered, informed and connected, while funding
research to help find a cure for this disease.
Thank you for your generosity and for helping us help you.
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Follow us on social media for the most up-to-date information and resources: |
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Si vous préférez recevoir cette Infolettre en français, écrivez-nous à contact@myelome.ca.
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Myeloma Canada's mission: To improve the lives of Canadians impacted by myeloma through awareness-building, educational efforts, advocacy, fostering an empowered myeloma community and support of clinical research so that a cure may be found.
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