Dear ,
For those who want to roll up their sleeves, there are many opportunities to get involved with the Foundation.
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Our Annual Conference is a great way to meet other patients and learn about CCA's scientific breakthroughs in patient-friendly language. You can access recordings of all the presentations from the 2020 and 2021 conferences here. Save the Date for the 2022 conference to be held both virtually and in-person in Salt Lake City, Utah - February 23-25, 2022.
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Team CCF is fundraising through fitness. We hold fun events such as the Turkey Trot, which encourages folks to get outside and move on Thanksgiving Day to raise money to fight CCA; and Moving for the Cure, an annual event that helps raise awareness for CCA. You can reach our Team CCF Coordinator, Meredith McGuffage, at meredith.mcguffage@cholangiocarcinoma.org
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Our Research Advocates multi-task, stepping in to make the science behind CCA understandable. They attend conferences, review articles, assess clinical trials, and often serve on Patient Advocacy Boards for pharmaceutical companies seeking patient input. We offer monthly training on breakthroughs in CCA science. Read more about the Research Advocacy Committee.
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We have CARE (Cholangiocarcinoma Awareness, Research, and Education) Teams located throughout the United States. Consider joining one or create your own with friends and family! Read more about CARE Team endeavors.
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The Wellness 4 Life Program (#CCFW4L), launched February of 2021 by the CARE Team, focuses on all aspects of self-care—physical, mental, emotional, and social—with the intent to nurture ourselves within a supportive community. We have Wellness Wednesday activities as well as Self-Care Sunday tips. Learn more about the #CCFW4L program and join our Facebook page to keep up with all of the wellness happenings!
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CholangioConnect is a program that pairs both patients and caregivers in need of support with experienced mentors. If you feel up to becoming a mentor, we welcome your involvement. Click here for additional information.
I hope that this email series has made a rough time feel just a bit less scary and lonely. We would appreciate it if you would take a few moments to complete this closing survey. It will help us better understand how we can help patients when first diagnosed and what additional resources you think would be helpful.
All my best,
Melinda Bachini
