CARE Registry: Giving AAPI a Voice Through Research

Currently, AAPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AAPIs to various types of research.

As of 08/15/2021, 6,489 people have signed up to increase AAPI representation in research!
Click to learn more about CARE Registry
Some examples of potential research studies that CARE registry participants may be contacted about include:

  • Prevention or treatments for Alzheimer’s disease and related dementias
  • Health issues across the lifespan
  • Caregiving issues and improving the health and wellness of caregivers

If you haven't already, please consider enrolling in CARE at: https://careregistry.ucsf.edu/enroll-care

*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
Samoan (Sāmoa)
CARE 30 Seconds Videos
The Many Faces of Dementia (Part 1):
Alzheimer’s Disease and Lewy Body Dementia 
百變的失智症(一):阿滋海默症及路易氏體失智症  

Presenters:  
  • Boon Lead Tee, MD, UC San Francisco Memory and Aging Center, CARE Cab Member 鄭文立  醫師(三藩市加州大學記憶與老化研究中心) 
  • Marian Tzuang, PhD, MSW, Research Analyst, UC San Francisco School of Nursing 莊子瑩 博士 (三藩市加州大學護理學院) 
 
Join us to learn: 
  • What is Alzheimer’s Disease? What is Lewy Body Dementia?  
  • Opportunities to participate in research through the CARE Registry 

Saturday, September 18, 2021 @ 10:00 AM – 11:00 AM PDT

This event is presented in Mandarin.

We will hold raffles for gift cards! 


For more information, click here.

Questions? Contact: careaapi@gmail.com 
2021 Vietnamese Caregivers Conference

The Aging Services Collaborative of Santa Clara County warmly invites you to the 2021 Vietnamese American Caregivers Conference - tailored specifically for family or informal caregivers who are caring for their loved ones. Attendees will have the opportunity to hear from informative speakers as well as to learn about supportive services in the County. This year’s topics will cover Medi-Cal spousal impoverishment, pandemic preparation and mental health, dementia caregiving, and the COVID-19 Delta variant.

Thursday, September 16, 2021 @ 6:00 - 8:00 PM PDT &
Saturday, September 18, 2021 @ 10:00 AM - 12:00 PM PDT
•••••
This event is presented in Vietnamese.


or call Lam Pham: (408) 609-9144

UCSF/CARE and ICAN (CARE Community Partner)
are partners for this event.
Women and Brain Health

The Alzheimer’s Association is hosting a virtual women and brain health event to share how certain lifestyle behaviors may be able to reduce the risk of cognitive decline. Find out how nutrition, regular exercise, cognitive activity, and social engagement are all factors that can impact brain health! There will also be a demonstration of how to make some simple and healthy cuisines. One of the speakers, Dr. Boon Lead Tee, is a CARE Community Advisory Board member.


Saturday, September 25, 2021 @ 10 AM – Noon PDT

This event is presented in Mandarin.


For more info, contact pchang@alz.org or (408) 372-9943

Alzheimer's Association is a CARE Community Partner.
Community Forum: How
to Keep Your Children Safe Online

ICAN's “Community Forum: How to Keep Your Children Safe” Join ICAN’s forum to learn more about digital safety, healthy social media practices, and intergenerational dialogue.

Thursday, September 30, 2021 @ 7:00 - 8:30 pm PDT

This event is presented in Vietnamese.

Register to have a chance to win a gift card!


If you have any questions or comments or need help registering,
email, ican.research@ican2.org or call (408) 609-9144.

ICAN is a CARE Community Partner.
CARE Ambassador Program
The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.

Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.  
To apply scan the QR code.

After completion, you will be contacted shortly by our Ambassador team. 
CARE at the Bharat Bazar 

Shweta Srivastava (Clinical Research Assistant, UCSF) and Avantika Rastogi (MASALA and CARE Intern) represented CARE’s South Asian Outreach Team and tabled a booth at the Bharat Bazar, a grocery store in Fremont, California last month. They shared about CARE and we are looking forward to conducting more in-person events while using COVID-19 safety measures! 

FDA Oncology Center of Excellence Conversations on Cancer Series. Advancing Equity in Asian American and Pacific Islander (AAPI) Communities: Racism and Injustice 
Dr. Van Ta Park (CARE Principal Investigator) was an invited panelist in a conversation that explored the impact of COVID-19 on racism and healthcare in the AAPI population and disparities in cancer care in AAPIs on July 29, 2021. Learn more about it here.
Anonymous Online Form Available in 29 Languages to Report Violence Against AAPI Elders 
On September 4, 2021, in remembrance of the Bellingham Riots, National Asian Pacific Center on Aging (NAPCA) will introduce an online reporting form to describe occurrences of violence against older Asian American Pacific Islander (AAPI) community members. The in-language online report form will be fully anonymous and available in 29 AAPI languages. 
 
With this anonymous in-language form, we are urging community members to come forward and report the violence they have been either victim or witness to, detailing their accounts in order to better grasp what has been unfolding. As we compile the data, the results will be shared on an ongoing basis with the public to help inform leadership and frame appropriate policies and resolutions. These anti-Asian assaults continue to occur across the country while public concern for elder safety is waning. The violence targeting our AAPI elder community has perpetuated the fear and isolation many have been experiencing over the course of the pandemic. It is taking a substantial physical and mental toll on our older adults and that suffering has been painful to witness. We must do more to protect the most vulnerable.” 

- Joon Bang, President & CEO of NAPCA 

The form will be accessible on the NAPCA website

NAPCA is a CARE Community Partner.
The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.

The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older. 

Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.

Visit ACAD study website for more information.

Animated videos in EnglishCantoneseMandarinKorean, and Vietnamese

If you are interested in participating in the study, fill out this form
or email acad@ucsf.edu.
Coming Soon!
The Vietnamese Insights into Aging Program (VIP)
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand how stressful life events can impact the occurrence of memory issues in older Vietnamese Americans. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP. It will be the first study of its kind in the U.S. to examine memory and aging in older Vietnamese. 

In October 2021, we will be recruiting volunteers who: 
  • identify as Vietnamese American 
  • are 65 years or older 
  • reside in Northern California 
  • can speak either English or Vietnamese 

Volunteers for this research study will get
free memory check-ups every year.

If you are interested in participating in the VIP study, 
Bay Area residents, email ucsfvip@ucsf.edu 
Sacramento residents, email vip@ucdavis.edu

Korean American Community Foundation
of San Francisco (KACF-SF)

"KACF-SF is honored to partner with CARE because we understand how a lack of data impacts funding for our AAPI communities. According to a recent study by AAPIP (Asian Americans/ Pacific Islanders in Philanthropy), only .02% of $88B corporate foundation grants went toward supporting the AAPI community. CARE's work is vital to increasing representation and funding for Asian American communities. Thank you, CARE!"

- Lina Park, Executive Director of KACF-SF 

The Korean American Community Foundation of San Francisco (KACF-SF) is a funder, convener, and incubator of solutions that address the greatest needs of the Korean American community in the Bay Area. We distribute grants that address mental health, domestic violence, senior care, youth empowerment, and civic engagement. KACF-SF was founded in response to data that showed high levels of need for culturally and linguistically competent services for the under-resourced Korean American population

  • 22% of Bay Area Korean Americans are low-income
  • 20% of Korean seniors in the US live in poverty
  • 33% of Korean American adults experience symptoms of depression

As a philanthropic organization, we lead and inspire change in our community through impactful giving. At this year's virtual gala on September 25th, we will honor David Lee, President of AppHarvest, for his work in global food sustainability, and Corey Lee, 3 Michelin-starred Chef of Benu, and give special recognition to U.S. Representatives Andy Kim and Marilyn Strickland! 


 
"I am choosing to be their caregiver, and have full support of my family. I don’t resent the position that I am in. I’m not saying it is easy either. There are many moments of frustration or moments where a good cry comes into play. I do know that I will never ever regret an ounce for being a big part of their lives."
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