Walk To Defeat ALS 2021
Help bring ALS Awareness to the forefront of your community by supporting the 2021 Walk to Defeat ALS!
Bring your friends, family, and colleagues to the ALS Walk to Defeat on Sunday, October 10 and help us raise awareness and funds to support our vision of a world without ALS. This year’s event is being held at Elk Grove Regional Park and includes a variety of Sunday Funday activities for the whole family. Lunch will be available, live music and children’s activities (volleyball courts and the baseball field will be available too!).
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Health disparities in underserved and rural communities present serious challenges for people living with ALS. The ALS Association Central and Southern Ohio Chapter and the team at the Ohio Health ALS Clinic are working together to change that by hosting a one-day comprehensive educational symposium for medical professionals.
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Following our We Can’t Wait Action meeting with the FDA, we sent a letter to the agency asking it to reaffirm its commitment to the 2019 ALS Guidance and provide us with a detailed report showing how it has implemented the guidance. Last week, the ALS Association received a response from Dr. Patrizia Cavazzoni, Director of the Center for Drug Evaluation and Research.
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June 2 marked a historical moment in the fight against ALS, with the official launch of Lou Gehrig Day, now an annual event across Major League Baseball to help spread awareness and raise funds for people living with ALS and their families.
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Nearly 500 participants, including more than 200 people living with ALS and their families, attended virtual conference sessions over three days to learn more about our goal to make ALS livable and discuss the urgent public policy needs of the ALS community.
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In the United States, disparities in health care are a well-known problem among ethnic minorities and underserved communities. In a recent study, researchers focused on how this issue affects the ALS community.
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We received news that AB Science has paused its masitinib studies worldwide, including its phase 3 ALS trial.
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Eddie Ilarraza was diagnosed with ALS in 2002, and while his body may have slowly succumbed to the disease over the years, his mind and his spirit have not. Eddie graciously shared his story about his personal journey living with ALS, and how his determination to do whatever it takes to achieve his hopes and dreams has prevailed.
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Amber Letters is a wife, a mom, a sister, and was a part-time caregiver for father who lost his battle with ALS this year. To honor her father’s legacy, she is sharing her family’s personal story, their journey with ALS and how they found hope along the way.
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News E-Newsletters For The ALS Community
The ALS community is always moving forward. Stay up to date with the latest research and care news by signing up for our NEW monthly e-newsletters, Research Matters and Care Matters.
ALS researchers around the world are working tirelessly in the search for treatments and a cure. Research Matters will include the latest updates.
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The ALS Association works to empower those impacted by ALS to live their lives to the fullest. Stay up to date with the latest news and stories about ALS care by subscribing to Care Matters |
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PODCAST EPISODES
Checking in on the Global Fight Against ALS
Recorded on June 24, 2021
Jessica and Jeremy are joined by Cathy Cummings, executive director of the International Alliance of ALS/MND Associations, to discuss Global ALS/MND Awareness Day and the work that is being done all over the world in the fight against ALS.
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Health Care Disparities and ALS
Recorded on June 17, 2021
Jeremy and Jessica are joined by Dr. Michael Cartwright, co-author of a study on racial differences in ALS interventions, to talk about some of the racial disparities research has uncovered in the ALS journey and the need for more research to understand why.
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Making ALS a Livable Disease By Finding New Treatments
Recorded on June 10, 2021
Jeremy and Jessica are joined by Dr. Kuldip Dave, vice president of research at The ALS Association, to dig into the path toward making ALS a livable disease with a focus on the search for new treatments and research breakthroughs that can help people live longer, improve quality of life and prevent loved one from getting ALS.
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Next Steps in Speeding Up the Drug Development Process
Recorded on June 3, 2021
Jeremy is joined by co-host Jessica Chapman to get an update on all the work being done to speed up the process of getting promising new treatments to people with ALS. They turn to Abram Bieliauskas, associate director of government affairs for The ALS Association, and Dave Zook, a consultant for the Association. Dave and Abram reflect on the recent We Can’t Wait Action Meeting with the FDA and lay out two promising bills recently reintroduced in Congress the Promising Pathways Act and ACT for ALS.
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Brain-Computer Interfaces for Communication Impairments
Wed, July 7, 2021
1:00 p.m. EST
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The Moving Research Forward Using Answer ALS Resources
Tues, July 13, 2021
1:00 p.m. EST
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