NDRS Newsletter │24 June 2022
NDRS News
Each month we share the latest news from the National Disease Registration Service (NDRS) including recent publications, data releases and upcoming events. 
 
The National Disease Registration Service is part of NHS Digital and collects data from the NHS about cancer, rare diseases and congenital anomalies in England.

NDRS is made up of the National Cancer Registration and Analysis Service (NCRAS) and the National Congenital Anomaly and Rare Diseases Registration Service (NCARDRS). NDRS uses data provided by patients and collected by the NHS as part of their care and support. NDRS uses this data to detect changes in the health of the population and to help the NHS improve the diagnosis and treatment of these diseases.

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Updates from NDRS
Cervical cancer screening awareness week
This week is Cervical Cancer screening awareness week. At NDRS we wanted to take this opportunity to tell you about a recent study was a collaboration between King’s College London, the HPV pilot steering group and made use of cancer registration data curated by NDRS.

A study on the effects of the national HPV vaccination programme for the cervical screening programme in England was published in the BMJ earlier this month.
The results mean that, for most patients, the frequency of smear tests can be reduced to once every five years (currently once every three years) without reducing the number of prevented cancers.
Data releases and publications
Accessing NDRS cancer data via NHS Digital 
Earlier this week we circulated an update to newsletter subscribers informing you of the changes to the routes to accessing NDRS cancer data. This service is now available via the NHS Digital Data Access Request Service (DARS). This means new expressions of interest, applications, and amendments for NDRS data will no longer be taken forward by the ODR and will need to be made to NHS Digital directly

DARS will be processing applications in date order and will therefore be working through the existing backlog before starting to process any new applications.
For the full guidance and details about what data is available at the current time please see the DARS service pages.

If you have any questions or wish to enquire about NCARDRS data please email NDRSenquiries@nhs.net

An icon showing data
New email address for NDRS analytical enquiries
The NDRS analytical team are now using a new email address for analytical enquiries - nhsdigital.ndrsanalysis@nhs.net (replacing the old email address ncrasenquiries@phe.gov.uk).

The analytical team deal with numerous enquiries each month for cancer statistics which are based on a wide range of NDRS data including disease incidence, survival, treatment, staging and patient pathways. The majority of requests are from researchers, NHS organisations, charities, pharmaceutical and health organisations. A lot of the requests are answered by existing analytical outputs on the NCRAS website, dashboards or CancerStats, but some require adhoc analysis.

Please direct all analytical enquiries to this new email and update any documentation/website that currently refer to the old email address
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Treatment flags updated on CancerData
Data on the frequency and counts of the main three treatment modalities has been updated to cover patients diagnosed in 2013 to 2019. This can be found in the CancerData dashboard tool. Breakdowns for each type of cancer are available by patient age, gender, stage at diagnosis, co-morbidity, socio-economic deprivation, broad ethnicity, Cancer Alliance and year of diagnosis. The data is presented both for each modality on its own, and in the various possible combinations
An icon showing a drug
Rapid Cancer Registration Data (RCRD) COVID-19 Incidence and Treatment dashboards
We continue to update the two Rapid Cancer Registration Data (RCRD) COVID-19 Incidence and Treatment dashboards. The latest monthly update included diagnoses up to February 2022, updated surgery data until December 2021 and an update to the Routes to Diagnosis breakdown. The dashboards are available at: CancerData (publicly available) and CancerStats2 (requires a secure HSCN connection to access).
A graph showing new cancer diagnoses in England from January 2019 to February from RCRD
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