FHA E-Connect - Summer 2021 |
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The e-newsletter for Lifeline, the official newsletter for the
Florida Hemophilia Association.
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Join us for the 11th Annual Unite for Bleeding Disorders Walk on Sunday, November 14th at Okeeheelee Park in West Palm Beach. The walk is more than just a fundraising event, it brings together individuals affected by bleeding disorders, their families, friends, supporters, and a diverse range of others who want to enjoy an amazing day together while supporting a worthy cause. It attracts people of every age and background, from parents with infants in tow to grandparents and everything in between. We are so excited that our furry friends get to participate this year. Make sure to register your pet on your team and if they come to the walk wearing your Team T-shirt they will be entered into the best doggie t-shirt contest!
Participate TODAY by creating a team, joining a team, or walking virtually to make a difference in the life of someone affected by a bleeding disorder. Our annual walk supports community programs for education, emotional support, and financial assistance!
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Check Out Our Website's New Look |
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Upcoming Programs & Events |
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Florida Bleeding Disorders Virtual Conference
July 22 - 25, 2021
Join us for our Annual Florida Bleeding Disorders Virtual Conference! "Disco Bingo", "Music therapy for Stress Management", "Let's Talk Mental Health", "Ask the Gynecologist", "Growing Old is NOT for Sissies" and much more!
- Each Household will receive a box of goodies including a very cool FBDC insulated bottle, snacks and more!
- $75 gift card to each household attending!
For questions regarding the conference, please feel free to contact us at
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¡SEPARE LA FECHA!
Conferencia Latina
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Del 1-3 de octubre de 2021
The Westin Cape Coral Resort at Marina Village
La Florida Hemophilia Association se complace en presentar nuestra Conferencia Latina. Esta conferencia de tres días se centrará en la creciente comunidad latina en Florida.
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Congratulations goes to Samantha Nazario, Bleeding Disorders Coalition of FL (BDCF) Ambassador for being named 2021 National Hemophilia Foundation's Advocate of the Year! We appreciate all of the hard work and dedication that Samantha has brought to the bleeding disorders community!
Thank you, Samantha!!
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Personal Story Submission |
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I am the daughter of an individual who suffered from severe hemophilia A. My entire life has been surrounded by the effects of hemophilia both mentally and emotionally. As child, I remember “living” in the hospital or Ronald McDonald for weeks and sometime months on end due to my father and sister’s medical issues. As you know, medicine then wasn’t what it is today. My father ended up needing a blood transfusion. From that transfusion he contracted hepatitis. I saw my father venture in and out of the hospital from the time that I was a little girl in pre-school, till the day he passed away at the age of 52. I had to bereave my father 21 days after my 22nd birthday. I wished that things could have been different for him, for the entire hemophilia community.
In 2019, I gave birth to a beautiful baby boy who too has hemophilia A. When I spoke to his teachers at daycare they had no knowledge on the bleeding disorder, or what to do should he have a bleed. That’s when I turned to the National Hemophilia Foundation, who led me to the Florida Hemophilia Association. FHA has given me resources to be an advocate for son, facilitated programming to help the community’s awareness, advocated for individuals like my son on a state level to ensure his safety at school with HB 63, and so much more. When I decided to compete for Mrs. Florida (United States Continental) I knew that I wanted to use my platform to educate, engage, and inspire others within the bleeding disorders community and beyond. Pageantry first and foremost, is about service through leadership. I am proud to be the captain of Team Princeton at this year’s Unite for Bleeding Disorders Walk. I hope to spread the message of unity and support of those who suffer from bleeding disorders. I love being Mrs. Florida, but my favorite title is mom (of a son with a superpower called hemophilia A).
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The Florida Hemophilia Association, Inc (FHA) is a Not-for-Profit organization that is dedicated to enhancing the quality of life in the bleeding disorders community by creating programs and services that provide education, emotional support and advocacy. We are contributing toward research to ultimately find a cure. |
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Staff and FHA Board of Directors |
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Debbi Adamkin
Executive Director
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Kim Madeiros
Development
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Florida Hemophilia Association
915 Middle River Drive, Suite 501
Ft Lauderdale, FL 33304
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If you would like to advertise in future editions of FHA Connect or FHA's paper newsletter, Lifeline, please e-mail us at admin@floridahemophilia.org
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