pALS Monthly Newsletter- November 2021

Arizona Chapter

November 2021 - pALS Newsletter

PLEASE NOTE:

In observance of Thanksgiving, the ALS Association Arizona Chapter office will be closed on Thursday, November 25th and Friday, November 26th.

Support Groups

Support groups provide opportunities for group members to share their personal experiences and to learn more about living with ALS. They are designed to share information as well as strategies for preserving the independence and quality of life of both people with ALS and their caregivers, and address the social, emotional, and mental challenges of living with this disease.

Join the meeting from your computer, tablet or smartphone. https://global.gotomeeting.com/join/951959885

You can also dial in using your phone.

United States: +1 (408) 650-3123

Access Code: 951-959-885

PLEASE NOTE-

To help ensure the health and safety of you and your family, we will only be offering support groups virtually in November. Please join us for any of the following:

Virtual Support Group -

All are welcome!

Tuesday, November 9 from 1-3pm

TOPIC: Benefits of Power Mobility for people with ALS

Caregivers Virtual Support Group -

Caregivers only, please!

Tuesday, November 16 from

5:30- 7:30pm

Page 2: Survivors Support Group -

Survivors only, please!

Wednesday, November 17 from

5:30- 7:30pm

Genetic Testing for ALS

Biogen and Invitae have teamed up to offer a no-charge testing program for ALS. Genetic testing may be helpful for those currently living with ALS, with or without a family history of ALS, as well as people who do not currently have ALS, but have a family member or family history of ALS.

This program covers the cost of genetic testing for ALS by Invitae- there is no charge to you or your family. The test must be ordered by a doctor. To learn more or to pursue genetic testing, please read the information provided through the link below.

Click here for information on genetic testing

Arizona ALS Tribute Wall

In order to honor and remember those who have been impacted by ALS, we have created the Arizona ALS Tribute Wall. This opportunity is available to all of the ALS community to add their loved ones with ALS, past or present.

There is no cost associated with posting on the wall and it is a public forum. Posting about the individual with ALS is a wonderful way to pay tribute to your loved one. We are looking forward to reading about each person and seeing their photo!

Post on the Arizona ALS Tribute Wall here

ALS Focus Survey - Mobility

ALS Focus is a patient- and caregiver-led survey program that asks people with ALS and current and past caregivers about their needs and challenges. The goal is to learn as much as possible about individual experiences throughout the disease journey so that the entire ALS community can benefit. All data is de-identified and shared free of charge with the ALS community.

The ALS Focus Mobility Survey is now open to new and returning participants! Tell us how ALS impacts you and your family. Click below to register and take ALS Focus surveys.

Take the ALS Focus Survey here

Education Corner

There are always chances to learn more about advances in ALS research, ways to increase quality of life, and to hear from experts in the field! Below are some opportunities for you to explore:

Equipment and Assistive Technology that Helps Caregivers, November 15th at 11am
Use of appropriate equipment and assistive technology can support quality of life for caregivers. Learn more during this webinar presentation. REGISTER HERE

Genetic Counseling and Testing
Jeremy is joined by co-host Dr. Jill Yersak and Ellie Harrington to discuss the benefits of genetic counseling and learn more about some of the common questions that are answered in a genetic counseling session. LISTEN HERE

In Remembrance

We extend our deepest sympathy and continued support to families and friends of

Mercedes Bonorand Elias, Dean Carlson, Dorothy Chute Smith, Russell Clanton,

Steve Hansen, Sally Hatfield, Nathaniel Jones, Barry Kerrigan, Audrey Mares,

Maria Villa, Leslie Kay Wilson, and Patricia "Janie" Yorgason.

The ALS Association Arizona Chapter

360 E. Coronado Road, Suite 140 Phoenix, AZ 85004

602-297-3800

www.alsaz.org

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