The International Congress of Porphyrins and Porphyrias (ICPP) 2022 in Sofia, Bulgaria is fast approaching! Organized by the European Porphyria Network (Epnet), this congress brings together patients, researchers, experts and scholars for three days of networking and learning from the best in the field.
UPA is excited to participate in both the Scientific Conference and Patient Day. Members of the UPA Scientific Advisory Board will Chair and/or Present during sessions of the Scientific Program. Dr. Karl Anderson (UTMB), Dr. Robert Desnick (MSSM), Dr. Amy Dickey (MGH), Dr. John Phillips (UofU), Dr. Bruce Wang (UCSF), and Dr. Makiko Yasuda (MSSM) will join global colleagues discussing current and emerging topics in the porphyrias.
Kristen Wheeden, UPA President, will Chair a Patient Day session titled Global Patient Advocacy Updates. During this session, presenters from the UK, US, and Switzerland will offer global updates on advocacy, and developments in the erythropoietic and acute hepatic porphyrias.
ICPP is sponsored by our pharmaceutical partners – Alnylam Pharmaceuticals, Clinuvel Pharmaceuticals, Disc Medicine, Mitsubishi Tanabe Pharma, and Recordati Rare Diseases.
If you can’t get to Bulgaria, we’ll bring Bulgaria to you! Make sure to follow UPA on our social media channels as we come to you live on September 4th!
Add United Porphyrias INSTA, FACEBOOK, TWITTER to your social media feeds.
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