October 2021 Resources of the Month |
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Dear UCCCN members,
Here are your October 2021 resources and meeting summary.
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Announcements
Pfizer COVID-19 booster shots are available for eligible YSHCN at the Utah Parent Center on 10/20. Other dates will be coming as well.
University of Utah Pediatric Project ECHO continues to offer insightful topics for this academic year. We are collaborating with USU's Project SCOPE for 10 sessions on NOWS/Opioid Exposure, and will have a separate session on November 3 focusing on breastfeeding for babies with special health care needs. CME is available, and they are very interested in having presenters, so please consider submitting a case if you have one to discuss. You can contact Mindy or reply to this email. Please see the schedule and register for any sessions you are able to attend.
SPARK for Autism study reminder – This is the largest autism study ever, and looks at genetic causes of autism. Parents and siblings of children with autism are encouraged to participate (from home, at no charge). If there are issues getting samples from participants, you can request a swab instead of the spit collection. Please contact Amalia Caamano at sparkforautism@hsc.utah.edu or 801-213-4049 for materials and more information.
Shriners Salt Lake City is now partnering with Primary Children's Hospital – Jill Conner. All outpatient services will remain onsite, and Primary Children's will be the facility for inpatient surgery and infusion services. This changes Shriners from a hospital to an outpatient center; their name is changing to Shriners Children's Salt Lake City to reflect this.
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Medical Home Portal Section
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MHP Spotlight - Athena
Transition Categories and Providers that Offer Transition Services. A Service Category search for Transition will result in options like Adolescent Health Transition Programs, Transition to Adulthood, and sub-categories such as Adult Day Programs.
Using a Term search for Transition may bring up other transition services, so it may not be as helpful when looking for this topic. A Map Search will also help identify service providers. Please use the Feedback button or Suggest a New Provider on the site if information is incorrect or needs updating.
Brainstorming
Resource #1: Eric Christensen – Reminder that Integrated Services Program Technology Lending Library has Chromebooks and Hotspots available for loan to families of children with special health care needs for Telehealth, social services intake, educational conferences, or other visits. Technology is located in Blanding, Price, Richfield, Vernal, Salt Lake (via Utah Parent Center), Ogden (via Integrated Services Program). Feel free to call or direct families to 801-273-2988 for more information.
Case #1: Toni Estrada asked about ABA services in the Vernal area. There is a new provider.
Case #2: Tina Persels asked about recommendations for ABA in Price. Kids on the Move is no longer in that area.
Case #3: Rebecca (Farmington Clinic) has a three-year-old patient waiting for an evaluation from UDAC but they have a strict mask policy. The patient has severe sensory issues and can't keep her mask on. Telehealth is also hard as she won't sit still. The suggestion was to see if UDAC can offer any other option.
Case #4: Rebecca (Farmington Clinic) a verbal tic in young patient - already a bit hyper, many medications will increase the stimulations. what other treatment options are there? Dr. Goldman-Luthy: There is some behavioral therapy that can be done. It is labor intensive and does not typically have strong outcomes (look for behavior therapist who is familiar with treatment of tics). The most common non-invasive treatment is to wait and see. Tourette.org website has some good information on treatment options.
Quality Improvement #1: Heidi Bates – the upcoming UPIQ Asthma Collaborative still has room for a few clinics to join. Please contact Heidi at heidi.bates@hsc.utah.edu or 801-541-9714 for questions, or you can register online.
Disclaimer: These resources come from our members as part of the meeting brainstorming session; please check with your providers to make sure they are appropriate for your patient/families.
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Summary & Discussion: 3rd Annual Teen to Adult Transition Summit - Mindy / Eric / Stephanie Sund
The event was held on October 13, 2021, and is a project between the University of Utah, Intermountain Healthcare, and Utah Department of Health Bureau of CYSCHN. The event provides resources and discusses the approach to help children and youth with special health care needs transition to adult care.
The first year of the conference was an introduction to the topic, the second year focused on ways to offer care and transition, and this year was more hands-on, with examples of lived experiences and ways to connect families with transition-age services. Many resources are based on the Got Transition Resource Center materials, made relevant for Utah, and can be found on the Medical Home Portal's Transition Tools & Checklists page.
Stephanie Sund -
- Readiness assessments - should be done yearly, and a goal should be set - Plan of Care
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7 PCH sub-specialty clinics and Wasatch Peds are currently piloting theUtah Provider Health Transition Toolkit
- Let Stephanie know if you feel there are things that should be revised that will help anyone using it. Toolkit will be updated every 4 - 6 months, and will be translated in Spanish soon.
Some of the resources and service providers discussed were:
Eric's Zoom poll asked these questions:
- Does your office/practice have a transition to adult medicine policy in place?
- Do you track youth of transition age within your practice to ensure they receive information about medical transition? If yes, how do you do it?
- If you don't have a transition policy or tracking mechanism, how do you transfer care for youth and young adults who age out of your program?
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Would your office like more information on implementing a transition to adult medicine policy and procedure? (If yes, send your contact information to: echristensen@utah.gov)
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Our next meeting date: November 17, 2021.
All the best,
Mindy
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Mindy Tueller, MS, MCHES
Director of Operations, Medical Home Portal
Facilitator, Utah Children’s Care Coordination Network
Department of Pediatrics
University of Utah
801-213-3920
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