Hi Everyone!
It certainly like this year is quickly approaching a close. We hope that you have seen some of your goals realized when it comes to family engagement in research! Do you have some goals for 2022 that you’d like to share? A big question about family engagement? Write a short 200–300-word paragraph about it and we would be happy to post it in the newsletter as an opportunity to crowd-source ideas! Email us at martensr@mcmaster.ca with your submission!
Our FER Course team last week had the privilege of sharing our Community of Practice model at this year’s SPOR Northwest conference. We felt it vital to express that collaboration and community play a role in ensuring you have an opportunity to continue to build your skill set.
Wishing you a beautiful October!
Rachel Martens
Research Engagement Strategist
Kids Brain Health Network and CanChild
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Luke's Legacy Family Research Rounds
October 27th, 2021 | 7:00 to 8:00 PM EST
Aggression in childhood and adolescence towards family members in the context of neurodisabilities
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FER Grads, Elizabeth (Liz) Boyer, Pamela Libralesso, and Sara Pot created this ‘Guidelines for Researchers’ to provide researchers with a brief introduction to family engagement in research. It’s a simple “How To” guide, ripe with resources, for researchers to start their first project with family/patient partners.
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Indigenous knowledge brought to light by FER Grad
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FER grad, Christina Gillman, shared this TikTok video about the importance of, and how to, cite Indigenous elders and knowledge keepers. |
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A CanChild Collaboration with FER Grads
Pure No One-Size-Fits-All: Back to school for kids with disabilities
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“It felt like children were forgotten; an afterthought; not important enough to have any plan even with four months and the following year to figure it out.”
FER affiliates, Kinga Pozniak, Genevieve Currie, Rachel Martens, Amanda Doherty-Kirby and Geil Astorga, Danijela Grahovac, Olaf Kraus de Camargo discuss the implications of going back to school in-person during COVID-19.
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Beyond pronouns and rainbow logos — The Methods Section
This Methods Section by FER Grad, Bev Pomeroy & Linnea Ritland, asks the question "How do you know you’re ready to engage with LGBTQ2S+ folks?" Before engaging with diverse groups and using tools created, we first need to ask, “are you really ready?”
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Upcoming Conferences and Webinars
CP-NET Science and Family Day
October 23rd | 10:00 - 3:00 pm ET
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The Cerebral Palsy Integrated Neuroscience Discovery Network (CP-NET) is excited to invite you to the 8th Annual Science and Family Day!
- Saturday, October 23, 2021
- 10:00 am to 3:00 pm ET
- Hosted virtually via Zoom
- Free, registration required
The online event will feature the latest research and discoveries on Cerebral Palsy (CP). Join the conversation around topics such as sleep and CP, neurotechnology, genomics, and more. You'll also get access to resources and learn from world-renowned experts and those with lived experience.
Connect, have fun, and celebrate all that we can do together to improve the lives of children and youth living with CP and their families! For more information, please visit the CP-NET website and/or contact dmccaul@mcmaster.ca.
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CHILD-BRIGHT Network Patient-Oriented Research Discussions
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CHILD-BRIGHT launched its inaugural Patient-Oriented research Discussions (PODs) series to enhance the exchange of ideas between all stakeholders within the CHILD-BRIGHT network. Four sessions will be hosted to explore content related to patient engagement in research. Each session will be hosted by a presenter who will pick the topic and resource(s) for discussion, and will consist of a 60-minute exploration of the resource/topic as well as an optional 30-minute networking opportunity. Click here for more information and click the topics below to register.
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Awards and Funding Opportunities
SPOR Evidence Alliance Annual Seed Grant Competition
Deadline: December 6th, 2021 | 11:59 ET
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The SPOR Evidence Alliance Seed Grant aims to encourage a culture of learning, innovation, and advancement of science in the areas of knowledge synthesis, guideline development, knowledge translation, and patient-oriented research by funding methods projects at the conceptual stage.
Funding is available for two awards valued at $10,000 each for one year (non-renewable).
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FER Employment and Engagement Opportunities |
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Job opportunity in patient engagement
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The CIHR Institute of Genetics is seeking a Team Lead in Patient Engagement:
Position Title: Team Lead, Patient Engagement
Department: Pharmacology
Research Project: Canadian Institutes of Health Research, Institute of Genetics
Required Documents
- Cover Letter
- Résumé / Curriculum Vitae (CV)
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Job Opportunity in Implementation Science
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Dr. Melanie Barwick is hiring a full-time Clinical Research Project Manager in the Implementation Lab at SickKids Research Institute. This is a great opportunity to apply and hone skills and competencies in implementation science and practice. |
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Training Opportunities and Resources
A Pathways for Change:
6 Theories about how policy change happens
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Study Recruitment
Have your voice heard in this study on sibling and caregiver support
Recruitment on behalf of FER Grad, Katherine Guzzo-Foliaro
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Recent Publications
Publication by FER Graduate
Critically Examining the Person–Environment Relationship and Implications of Intersectionality for Participation in Children's Rehabilitation Services
This article outlines the importance of considering the impact of systemic inequities in a child’s ability to participate in rehabilitation service. While the International Classification of Functioning, Disability and Health (ICF) includes personal and environmental factors of an individual, it does not provide a framework for critically examining the influence of intersectionality on rehabilitation service participation. Consequently, the authors call for clinicians to use intersectionality theory in conjunction with the ICF framework and a family-centred approach so that barriers to participation can be identified and addressed by appropriate solutions.
Authors: Meaghan Reitzel, Lori Letts, Briano Di Rezze & Michelle Phoenix
(Frontiers in Rehabilitation Sciences)
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Publication on Patient Engagement in Research
The impact of patient and public involvement in health research versus healthcare: A scoping review of reviews
Given the uncertainties that exist around the impacts of patient and public involvement (PPI), the authors conducted a review of reviews that discussed the impacts of PPI in health research compared to PPI in healthcare. In comparing the two, they observed differences in the types of impact reported. In health research, most impacts reported were around the research design and delivery aspects. In healthcare, impacts reported were primarily those relating to individual health or clinical outcomes. However, many reviews pointed out methodological and quality problems with the studies included, leading to uncertainty about the strength of the evidence presented for the different PPI impacts. The authors concluded that more robust evaluation of PPI impacts is needed.
Authors: Anton Modigh, Filipa Sampaio, Linda Moberg & Mio Fredriksson
(Health Policy)
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Follow us @FERCourse
Contact us at fer@mcmaster.ca
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