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THE DUCT
A Monthly Newsletter for the PSC Community
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The PSC Partners Scientific Medical Advisory Committee (SMAC) members share their time and expertise with PSC Partners to direct the path of our Research Grants Program in order to find treatments and a cure for primary sclerosing cholangitis (PSC). At the beginning of 2024, this amazing group of volunteers will convene to review applications and assist PSC Partners in the determination of grants to support for our 2024 cycle. |
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David Assis, MD
Dr. David Assis is an Assistant Professor of medicine, Section of Digestive Diseases, Medicine Department at the Yale University School of Medicine.
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Annika Bergquist, MD, PhD
Dr. Annika Bergquist is an Adjunct Professor and researcher at Karolinska Institutet Stockholm, Sweden.
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Dennis Black, MD
Dr. Dennis Black, a Pediatric Hepatologist, is the James Dustin Buckman Professor of Pediatrics and Professor of Physiology at the University of Tennessee Health Science Center.
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Christopher L. Bowlus, MD (Co-Chair)
Dr. Chris Bowlus is the Lena Valente Professor of Medicine and the chief of the Division of Gastroenterology and Hepatology at the University of California Davis School of Medicine.
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John Eaton, MD
Dr. John Eaton is an Associate Professor of Medicine and Transplant Hepatologist at Mayo Clinic in Rochester, Minnesota.
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Bertus Eksteen, PhD, MBChB, FRCP
Dr. Bertus Eksteen is Director of the Calgary PSC clinic at the Aspen Woods Clinic and a Transplant Hepatologist at the Southern Alberta Transplant Clinic in Canada.
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Heather Francis, PhD (Co-Chair)
Dr. Heather Francis is a Professor of Medicine and the Scientific Director of the Indiana Center for Liver Research at the Indiana University School of Medicine.
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Richard Green, MD
Dr. Richard Green is a Professor of Medicine in the Section of Hepatology at the Northwestern University Feinberg School of Medicine.
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Denise M. Harnois, D.O.
Dr. Denise Harnois works in Transplant Hepatology and Gastroenterology at Mayo Clinic, Florida, with an interest in cholestatic liver diseases.
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Gideon Hirschfield, MA(Oxon), MB, BChir (Cantab), FRCP, PhD
Dr. Gideon Hirschfield is the inaugural Lily and Terry Horner Chair in Autoimmune Liver Disease Research at the Toronto Centre for Liver Disease and professor at the U. of Toronto.
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Johannes R. Hov, MD
Dr. Johannes R. Hov is Professor of Gastroenterology & Senior Consultant at the Department of Transplantation Medicine, Oslo University Hospital (Rikshospitalet) and U. of Oslo.
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Josh Korzenik, MD
Dr. Joshua R. Korzenik is Director of the Resnek Family Center for PSC Research and BWH Crohn’s & Colitis Center and Associate Professor of Medicine at Harvard Medical School.
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Cynthia Levy, MD
Dr. Cynthia Levy is a Professor of Medicine and the Associate Director of the Schiff Center for Liver Diseases at the University of Miami.
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Cara Mack, MD
Dr. Cara Mack is a Professor of Pediatrics at the Medical College of Wisconsin and Division Chief of Pediatric Gastroenterology, Hepatology & Nutrition at Children’s Wisconsin.
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Stephen Miller, MD
Dr. Stephen Miller works in biotechnology and clinical med. in CA. He was a Physician at VA Hospital, Chicago, and Assoc. Prof. of Medicine & Pharmacology at Chicago Med. School.
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Cyriel Ponsioen, Prof., MD, PhD
Dr. Cyriel Ponsioen is Professor of Gastroenterology & Hepatology at Amsterdam University Medical Center, Netherlands.
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Research Grant Interest and Eligibility Forms Due:
December 31, 2023!
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Soon after you’ve completed the form, a member of the PSC Partners staff will be in touch with next steps and detailed application instructions.
If you have a research proposal idea, we hope to hear from you soon. Even if you're not applying this year, please help spread the word by forwarding this email to a researcher or colleague who may be interested.
Click links below for more information about our Research Grants Program:
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Meet our New Chief Scientific Officer
Steve Rossi
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After many years of supporting PSC Partners, we are pleased to welcome Dr. Stephen Rossi, Pharm D, as the Chief Scientific Officer (CSO). Dr. Rossi has worked with patients with chronic liver diseases for over 30 years as a clinician and a researcher. For the past 20 years, he has focused on the development of new drugs for patients with liver disease, including several potential new treatments for PSC. He brings a wealth of experience in clinical research to help lead PSC Partners research programs, including the WIND-PSC study, the International Collaborative Research Network, PSC Partners Research Grants program and other projects critical to our mission.
"After many years working in industry, it is rewarding to return to the patient side of things while still getting to work on important research initiatives, all in the hopes of finding a cure for PSC," says Dr. Rossi.
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Register NOW for Upcoming
ZoomRoom Peer-to-Peer Gatherings
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Whether you've been before, or this will be your first time,
we hope you'll join your peers for these supportive, virtual discussions.
It's a great opportunity to speak with others who truly understand.
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Watch the Trailer for
A Liver Love Story
Full Video Coming Soon
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Check out the trailer for the soon-to-be-released short film that follows Jessica Travis, a patient with PSC, as she searches for a liver donor. Niall McKay, Emmy winning writer and editor, host of our Living with PSC Podcast, and liver transplant recipient himself, is putting the final touches on this moving film, which will be released in early 2024.
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Welcome to Sandi's
Circle
Sandi Explains Reasons for Open Facebook Patient Group
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PSC Partners often gets asked why we have two Facebook Support Groups, one open and one closed. Sandi was instrumental in creating both. Below is an excerpt of an explanation from Sandi about why she felt it was important to make some of our PSC patient discussions visible outside of our group.
"Every time I post (in the Open Group), I raise awareness for PSC, not only by sharing my story here with those who have PSC, but also those who can read about it on my newsfeed, etc. (which I've allowed via my privacy settings). I'm also making a statement saying that this is me, and I will not let my illness control what I say and where, etc. I won't hide it no matter what or from whom. My choice isn't for everyone, but, for me, that makes a difference, knowing I'm doing my part to get the word out there and to say I have this. There's absolutely no judgement for anyone who doesn't want to share that way, because, certainly, many people might not, but, for me, that's part of it.
Another part of it is that more than a few PSC doctors and researchers have mentioned to me how much they learn from this group about what's going on with the PSC population, things they may not have realized were 'bigger' than one or two PSCers, etc. So, it's about that, too."
There are numerous ways to stay in touch on Facebook. In addition to the open and closed Facebook support groups, we have an HQ page where we post lots of important information, upcoming events, and more. Additionally, you can visit PSC Partners on other social media platforms, including Instagram, LinkedIn, YouTube, and Twitter (X). |
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Folks who have been in the PSC Partners community remember Sandi Pearlman as a bright, positive light. Her insight, humor, and supportive presence were a real gift to those who knew her. |
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Participate in Giving Tuesday
November 28, 2023
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Giving Tuesday is an international movement that unleashes the power of radical generosity around the world. On this special day of giving, please support PSC Partners Seeking a Cure. Thank you! |
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Watch Next Month's Newsletter for
2023 Liver Meeting Round Up
Earlier this month, PSC Partners participated in the American Association for the Study of Liver Diseases' (AASLD) Liver Meeting. Watch next month's newsletter for session summaries, staff takeaways, links to PSC Partners and PSC-related posters, and more.
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Our Mission: PSC Partners Seeking a Cure drives research to identify treatments and a cure for primary sclerosing cholangitis (PSC), while providing education and support for those impacted by this rare disease.
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6900 E. Belleview Ave., Ste 202,
Greenwood Village, CO 80111
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