Greetings!
Welcome to the January 27th edition of CanChild Today! In this issue, we will share updates on CanChild leadership, events, research opportunities, and recent publications by some of our members.
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Our past issues are archived on the CanChild website and can be accessed here.
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Congratulations to new CanChild co-directors! |
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Dr. Olaf Kraus de Camargo |
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We are excited to announce that Dr. Briano DiRezze and Dr. Olaf Kraus de Camargo have accepted the positions of CanChild co-directors. They will assume the roles on July 1, 2022. In the meantime, Drs. Kraus de Camargo and DiRezze will work with the acting director, Dr. Dina Brooks, to develop an action plan based on the CanChild Strategic Plan. |
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Learn how to evaluate your research and KT impact! |
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Over the past few months, a group of Knowledge Translation (KT) researchers from CanChild Centre for Childhood Disability Research interested in assessing the impact of their work have participated in an intensive training course to utilize a framework for understanding and tracking impact. They have been using an approach pioneered by Dr. Sarah Morton at Matter of Focus.
We are excited to invite you to a showcase event to hear more about what the research teams have achieved and how they will use these frameworks to demonstrate how their work makes a difference at personal, practice, and policy levels. Join us to discover different approaches to evaluating research impact and the opportunities and challenges of impact tracking.
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When? Wednesday, Feb 23, 2022, from 09:00-11:00 am EST
Where? Online, Zoom, Free, Registration Required
What? CanChild: Mobilizing Research Knowledge for Impact
- Hear about opportunities and challenges for assessing research impact
- Learn about a new method of understanding research impact
- See the new method in action across a range of CanChild research projects including: Back2Play Concussion Research Team, F-words for Child Development, CanChild KT & Social Media, and TIPS (Training Intervention and Program of Support)
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Welcoming the new year with our sibling partnership in research! |
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Clockwise from top left: James Koutrakos, Linda Nguyen, and Samantha Bellefeuille.
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In 2018, the Sibling Youth Advisory Council (SibYAC) was established by Linda Nguyen as part of her doctoral studies to understand the experiences of siblings who have a brother or sister with a disability during the transition to adulthood.
The SibYAC members have an annual holiday tradition to celebrate their partnership. To welcome the new year, they held a virtual social dinner and had customized mugs mailed to each member.
To learn more about SiBYAC, contact
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Better Together Conference: Speaker Highlights! |
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CanChild Associate Member Dr. Gillian King is one of the keynote speakers at the Combined 11th AACPDM and the 3rd IAACD Better Together Conference 2022. Dr. King will talk about the complexities and dynamics of engagement in rehabilitation therapy. Her research encompasses the delivery of health services, including models of service delivery and practice, and service providers' approaches and expertise. Additional details about the program and speakers are available on the conference website. |
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Dr. Jill Zwicker and her team are currently recruiting parents of children with Developmental Coordination Disorder (DCD) to participate in an online survey.
They are conducting research on the physical, social, emotional and financial impact of DCD on the child and family. The impACT for DCD questionnaire will be used to gather this information to inform the government about the service needs of children with DCD and their families. If you meet the criteria for participation, please click on the link for further details and to complete the questionnaire.
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The criteria to participate in this research is as follows:
- Primary residence of parent(s) and child(ren) is in Canada
- Child(ren) must be under the age of 18 years with motor coordination challenges
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These motor coordination challenges are not because of biological, genetic and/or developmental delays (e.g., cerebral palsy, Down’s syndrome, chromosomal abnormality, etc.)
- Child(ren) may have a diagnosis of DCD, but a formal diagnosis is not required to participate in the study. Parents of children suspected to have DCD may also participate.
- Child(ren) may have other co-occurring conditions that can include autism, ADHD, learning disabilities and/or speech-language deficits.
- Parents can be biological, adoptive or guardian/caregiver
- Parents need to be able to speak and read English or French
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We thank you in advance for your participation in this research study. Please feel free to forward this link to other participants that also meet the listed criteria. For more information,
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T-PIVOT – Time to pivot the delivery of pediatric rehabilitation services |
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Are you or do you know a physiotherapist (PT), occupational therapist (OT), or speech language pathologist (SLP) in Canada?
The GRAND-IR research team is launching a study that aims to assess the needs of therapists and co-construct a training program for the effective implementation of telerehabilitation services for children with disabilities and their families.
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Featured CanChild product! |
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The purpose of the Measure of Processes of Care or MPOC is to assess parents' perceptions of the care they and their children receive from children's rehabilitation treatment centres. MPOC is a means to assess family-centred behaviours of health care providers.
The MPOC-20 has 20 items – it has been shortened from the original 56-item version. MPOC-20 is a validated, reliable measure that has been used internationally in many evaluations of family-centred service.
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Recent Publications by CanChild Members!
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ENabling VISions and Growing Expectations (ENVISAGE): Parent reviewers' perspectives of a co-designed program to support parents raising a child with an early-onset neurodevelopmental disability
The goal of ENVISAGE is to offer parents of children with neurodevelopmental disabilities (NDD) a new world view of their children’s and families' lives. We recruited 15 parents raising children with NDD to independently review the ENVISAGE workshops. Parents told us the ENVISAGE workshops were empowering and provided us with feedback on how to improve the accessibility of the program for future families. The perspectives of these parents proved very valuable and enabled the developers to feel confident that the final ENVISAGE product was consistent with the views and values of parents like those for whom the program was designed. Authors: Miller L, Nickson G, Pozniak K, Khan D, Imms C, Ziviani J, Cross A, Martens R, Cavalieros V, Rosenbaum P. Res Dev Disabil. 2022 Feb;121:104150. doi: 10.1016/j.ridd.2021.104150. |
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The process of telepractice implementation during the COVID-19 pandemic: a narrative inquiry of preschool speech-language pathologists and assistants from one center in Canada
Many community programs moved from in-person to online due to the COVID-19 pandemic. This study asked how one such program made changes to its services. Clinicians, parents and clinic managers told us their collaborative approach to first trying, and then fully offering online visits. This program’s experience taught us the importance of building a flexible learning culture within an organization because it helps programs quickly react to new challenges. Their story can also inform our reaction to future public health crises by emphasizing a need to coordinate public health measures with community programs. Authors: Kwok EYL, Chiu J, Rosenbaum P, Cunningham BJ. BMC Health Serv Res. 2022 Jan 16;22(1):81. doi: 10.1186/s12913-021-07454-5. |
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Prevalence and Correlates of Physical-mental Multimorbidity in Outpatient Children From a Pediatric Hospital in Canada
Physical and mental health are strongly intertwined, creating challenges for children, families and health professionals. This study aims to estimate the six-month prevalence of mental illness in children with chronic physical illness (multimorbidity). Data from 263 children (aged 2-16) suggest that six-month multimorbidity is more common among older children, males, those with higher levels of disability, children who come from higher-income households, and those who have a primary caregiver with elevated symptoms of depression. Integrating physical and mental health services in early intervention may help reduce child multimorbidity and promote overall health in children.
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