Your Monthly Update from NCDSA

Volume 2 Issue 5 | May 2021

There is still time to join the fun!

Buy, Bid, Vote - Info and Tickets

Free Transition to Pre-K Series

Is your toddler turning three in the next year?
Do you know what comes after early intervention services?
Are you concerned about where your child will go to pre-school?

Join NCDSA and AFIE for the answers to your questions and concerns. You will create a vision for your child's education and learn about their educational rights and the responsibilities of the public school system.

Presented Virtually - Registration Required

Advocacy in Action

The Down Syndrome Organ Transplant Nondiscrimination Act, HB 642, affectionately known as Bethany’s Law, was passed in the North Carolina House of Representatives and has been sent to the North Carolina Senate. HB 642 has passed its first reading in the NC Senate and has been sent to the Committee on Rules and Operations of the Senate. The bill requires a committee hearing and passage by the committee before being sent to the NC Senate for a floor vote. Please email Donna Beckmann, NCDSA Advocacy and Outreach Director, about how you can advocate for the passage of "Bethany's Law."

Upcoming Social Activities

Advance Registration Required for all Events

Registration

Calendar and Info

Registration

Virtual events require advanced registration to access Zoom links for attending.

Volunteer Spotlight

Abhi Panneerselvam is mom to 8 year old Aadhav. Originally from Tamil Nadu, India she moved to NC in 2012. Having experienced Aadhav's birth diagnosis, Abhi believes NCDSA is empowering individuals, families, and the community. She wanted to be associated with NCDSA and the pandemic helped her prioritize things and her schedule. She has been volunteering virtually from home all year, typically working a few hours a week at her convenience. In addition to keeping NCDSA records up to date, she has been instrumental in recruiting donations for the Mardi Gras Silent Auction items. She is happy to contribute her time giving back to this community. When not volunteering from home, she loves to travel and explore new places with family, take trips to all local ice cream shops no matter the season, as well as enjoying movie nights, reading, photography, and painting. Thank you Abhi!

Want to make a difference at NCDSA - find out more...

The 2021 Summer Camp Directory: A Free Resource Guide for Families with Children who have Special Needs

Day camps
Residential camps
Listed by condition
Listed by county
Out of state camps

Download the Summer Camp Directory

Advocate Medical Group Adult Down Syndrome Center has an extensive online Resource Library for people with Down syndrome, family members, caregivers, and healthcare professionals

Children's Hospital of Philadelphia offers an online Trisomy 21 Toolkit for Transitioning to Adult Medical Care

Mark your calendar now for the next T21 Social Club outing on Wednesday, August 4th. More details to follow.

Infant Brain Imaging Study for children 24 months and younger

Sexual Health Education Survey for parents of a child ages 14-25 with a disability

Accommodations at Work for individuals with intellectual disabilities ages 18-35

Improve Survey Forms Project for adults with IDD

Support NCDSA

NCDSA exists due the generosity of individuals and sponsors who share NCDSA's mission and vision for people with Down syndrome. Won't you join us as we work to improve the quality of life and healthcare outcomes for people with Down syndrome in North Carolina? Contributions of any amount are welcome.

Make a Donation

Volunteer