March 2022
If you haven’t visited the ALS Research Page on our website recently, you need to go there and see all the studies and trials currently recruiting/enrolling. Make sure to look at both the Clinical Research and Clinical Trials pages.

Remember we need the partnership of our patients and their families to study and better understand this disease!
ALS Research at Emory

COMING SOON: A Phase I Study of DNL343 sponsored by Denali Therapeutics: This first-in-human study is investigating the safety of DNLI343, an orally-administered capsule, for treatment of ALS. Study participants will be randomized 1:1:1 to receive one of 2 dose levels of active drug or a placebo. Length of participation is approximately 2 months, with an open-label extension of 18 months. If you have disease onset of fewer than 3 years, are 18 years or older, and are able to swallow capsules you may be eligible. Please contact Jane Bordeau to learn more.
16TH ANNUAL FIESTA 5K

Come #runLOCO4ALS (or walk or roll in your wheelchair) on Saturday, April 23, 2022. This is the 16th year of this race that raises money for the Emory ALS Center. Remember in 2020 when the event had to switch to a total virtual race? There is still that option so, if you are not able to come in person on race day you can still receive a t-shirt and support the cause by signing up as a Virtual Runner.

Many thanks to current sponsors: TITLE SPONSOR-Janice Overbeck Real Estate Team, PRESENTING SPONSOR-Riskonnect, Inc., Country Charm Eggs, North GA Running Co., Tofutti, Blue Diamond, PRI/Manuka Honey, and Tara Esbeck/Mary Kay Consultant. There is still plenty of time for your company to sponsor and you can download the form from the race website.

Want to help us raise even more money for the Emory ALS Center? You can now create a fundraising team of your own, tell your ALS story and collect donations for your team. 

Go to the race website and choose BECOME A FUNDRAISER from the "Donate" dropdown menu. On the next page you will be able to name your fundraising team, share your ALS story and why you are raising money, set a goal, create your individual link for donations, and upload a photo for your team. 
140.6 Miles
to Cure ALS - UPDATE

Thank you for your donations and support for Brian Duffy in his quest to compete in his first Ironman triathlon while raising money for the Emory ALS Center. It was a very cold and windy day in Panama City Beach, FL on November 6, 2021, but it didn’t stop Brian from making it to the finish line. Brian’s fundraising campaign was in honor of Jon Blais, the first person to complete an Ironman distance triathlon while living with ALS. Jon rolled across the finish line and since then, triathletes all over the world have done the same to honor his memory and continue the awareness for ALS. You can see in the photo that cold, wind, and 11 hours of racing could not stop Brian from rolling across his finish line. 

Your donations helped him raise $12,810 and we are grateful for your generosity and for the awareness that Brian brought to our center and to ALS.