Turner Syndrome Awareness Month in February was a whirlwind!! Together, we raised a great deal of awareness about Turner syndrome (TS) and those that have the condition.

Each year, we ask you all to participate in whatever ways you're comfortable, and this year, you really came through in a BIG way. Thank you all for being so open and sharing your TS Stories and photos with us; I know that it isn't always easy.

This month, we've published almost 90 My TS Stories written by people with Turner syndrome and those close to them. I sincerely hope you've had a chance to read these heartfelt and inspiring stories written by members of the TSSUS community. I have to tell you that, as I was editing and reading your stories, I was inspired, moved, and I felt joy and sometimes sadness.

Most of all I was proud to be the steward of your stories, and to use them as a tool to help others gain a better understanding of Turner syndrome and the amazing community of people who share this condition and their families and friends.

As we embrace March (and hopefully Spring soon!), TS awareness doesn't have to stop. You can continue to share your stories and photos with us, and we will continue to post them on the TSSUS blog and across our social media platforms. Look for a new blog post every couple of weeks. You can also chose one or two stories a week to share on your social media from those that have been published.

If you submitted a story and it hasn't been published yet, it may be because the submission was incomplete - missing either an address, a photo, or a phone number. I will continue to work my way through those stories and reach out to you if information is missing.

We have some great things happening in the coming months, most notably, the TSSUS National Turner Syndrome VIRTUAL Conference. We're working hard on this as we speak and will share details as we finalize things.

We are excited to announce that we are resuming in-person TSSUS events across the country, including TSSUS Support Group meetings and official TSSUS Chasing Butterflies Walks. If you have an interest in joining or volunteering for a TSSUS group or hosting a Chasing Butterflies Walk in your area, please reach out to our office at 800-365-9944, or email deborah@turnersyndrome.org.

Thanks so much!

Becky Brown
National Director of Development & Communications