Assembly Health Approves RDAC
The NJ General Assembly Health Committee has approved A-4016, legislation sponsored by Assemblymen Ronald Dancer, Dan Benson and Anthony Verrelli to create a Rare Disease Advisory Council in New Jersey. The pandemic has illustrated and, in some cases, exacerbated difficulties many Patients have in accessing the right treatment at the right time. For the 95 percent of rare disease Patients without a dedicated treatment, A-4016 would ensure these rare disease Patients have a voice in our State. A New Jersey Rare Disease Advisory Council will help New Jersey improve strategies for care and delivery of services to New Jerseyans with a diagnosed rare disease. BioNJ thanks Committee Chair Assemblyman Herb Conaway and the sponsors for their work on this important issue, and we look forward to making the New Jersey Rare Disease Advisory Council a reality.
