Greetings!
Did you know there's a mobile app that can help youth prepare for the transition to adult healthcare? Check out this April 22nd issue of CanChild Today to learn more about our latest projects, presentations, and publications by some of our members.
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Our past issues are archived on the CanChild website and can be accessed here.
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New version of MyTransition App!
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Are you preparing to transition from the child to adult healthcare system? Then MyTransition App is for you! The app includes tools to help you describe your health condition, raise important health needs in new situations, and measure skills related to managing your health.
Key Features:
- TRANSITION-Q: a quiz that figures out ways to make the transition to adult care as smooth as possible.
- MyHealth 3-Sentence Summary: a way to summarize health information to help you speak with doctors, nurses, or therapists.
- MyHealth Care Team: a place to enter contact information for your health care providers.
- Goals: a section that allows you to select items from the TRANSITION-Q to set as goals. It also provides links with tips on how to improve in these areas.
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Calendar: assists in keeping track of appointments and prescriptions
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Tips: provides ideas to improve transition readiness linked to each of the 14 TRANSITION-Q items
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TRANSITION-Q history: shows whether you have improved overall on the TRANSITION-Q
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MyTransition app is available to download for free on iPhone and Android devices.
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FER Course: registration is now open!
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The Family Engagement in Research Course is now accepting applications from family members and researchers interested in neurodevelopmental research for the Fall 2021 and Winter 2022 cohorts!
After completing the course you will earn a certificate of completion from Kids Brain Health Network, CanChild, and McMaster Continuing Education and will have the knowledge, practical skills, and connections to partner in research! For more information, email fer@mcmaster.ca.
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Roles of siblings in research!
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CanChild and Kids Brain Health Network are excited to host another Luke’s Legacy Family Research Rounds, a series of virtual research presentations for families, patients, and researchers. Presentations are designed in a family-friendly format with an interactive discussion component.
On Wednesday, April 28 at 7:00 PM ET, join Linda Nguyen, Hanae Davis, Jessica Havens and Samantha Bellefeuille to talk about The Art of Sibling Science: the multifaceted roles of siblings and how they are captured in childhood disability research.
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Wednesday, April 28 | 7:00 PM ET | Join via Zoom or Facebook Live
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Congratulations to Beatriz Helena Brugnaro for winning second place in Oral Poster Presentation at the Brazilian Physiotherapy Congress. Her paper, entitled Impact of the Environmental Factors on Functioning of Children and Adolescents with Down Syndrome during the COVID-19 Pandemic: a preliminary study, was based on the ideas developed in collaboration with CanChild Scientist Dr. Olaf Kraus De Camargo.
Beatriz was a visiting student at CanChild in 2018 and worked with Dr. Peter Rosenbaum as her supervisor. During her stay, she analyzed data about home participation, gross motor function and sensory profile of children and adolescents with Down syndrome.
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Recent Publications by CanChild Members!
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Engaging clinicians and graduate students in the design and evaluation of educational resources about universal design for learning
Universal Design for Learning is a framework to support inclusive education. This publication describes how an instructional design model, the Analysis, Design, Development, Implementation and Evaluation (ADDIE) Model, and knowledge translation theory were used to develop educational resources about Universal Design for Learning for speech-language pathology graduate students. Students’ knowledge of Universal Design for Learning was evaluated pre-post along with the feasibility of the resources. Preliminary findings indicated improvement in students’ perceived knowledge. Resources were determined to be practical and accessible. Although further evaluation in a larger student cohort was recommended, the novel resource development methodology is useful to researchers, educators, and clinicians interested in the development of high-quality, theory-informed resources. Authors: Tomas V, Solomon P, Hamilton J, & Campbell W. Canadian Journal of Speech-Language Pathology and Audiology, 45(1), 59-75. 2021. https://www.cjslpa.ca/detail.php?ID=1273&lang=en
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Effects of Comorbid Developmental Coordination Disorder and Symptoms of Attention Deficit Hyperactivity Disorder on Physical Activity in Children Aged 4-5 Years
Children with Developmental Coordination Disorder (DCD) experience difficulties with the tasks of daily living, causing them to engage less in physical activities (PA). Moreover, up to 50% of children with DCD also have Attention Deficit Hyperactivity Disorder (ADHD). This study explored the relationship between DCD, ADHD and PA. The effects of ADHD on the DCD and PA relationship seem to be driven by the inattentive subtype of ADHD. This study revealed that symptoms of inattention at age three had significant negative effects on motor skills at age five and six years old. This study showed the importance of considering ADHD symptoms and subtypes when measuring physical activity in children with DCD. Authors: James ME, King-Dowling S, Graham JD, Missiuna C, Timmons BW, Cairney J. Child Psychiatry Hum Dev. 2021 Apr 9. doi: 10.1007/s10578-021-01155-0.
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Prognostic value of brain abnormalities for cognitive functioning in cerebral palsy: A prospective cohort study
The analysis showed that the amount of cerebral white matter damage and Gross Motor Function Classification System (GMFCS) level are factors that can help distinguish children at risk of impaired cognition. Both factors combined together can predict impaired cognition correctly in 89% of the cases. The data also showed that birth weight, gestational age, epilepsy and educational level of the parents were not related to impaired cognition. The findings provide valuable prognostic information for clinicians, which could create opportunities to adjust care, support and expectations in an early phase of life of children with cerebral palsy and their families. Authors: Moll I, Voorman JM, Ketelaar M, van Schie PE, Gorter JW, Lequin MH, de Vries LS, Vermeulen RJ. Eur J Paediatr Neurol. 2021 Mar 16;32:56-65. doi: 10.1016/j.ejpn.2021.03.010.
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