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As I look outside to a beautiful Alberta fall, I can’t help but think back on what was an exciting spring and summer. We were thrilled to transition our events back in person, working with our amazing volunteer committees and participating side by side with our families again. The virtual environment created by the pandemic was there to keep our families safe and well. But nothing compares to the strength, resilience and support we give each other when we come together.
This year, our community could gather for the first time since 2019. The Walk Together for ALS, Betty’s Run for ALS, Quonset Days, Strings for a Cause, Howard Smith Memorial Roping Event, Dueling Pianos, and so many other events in communities across Alberta brought us back together. We are so grateful for the countless volunteer hours put in to make these events happen once again after a difficult two years.
June was ALS Awareness month, during which our families shared heartfelt personal stories of the challenges they face, amazing optimism and hope for the future. One person quoted from a friend that, “adversity doesn’t build character, it brings it out”.
The Government is listening to the Albertans who have been vocal in their efforts to advocate for access to new therapies. Albrioza, a new drug treatment for ALS was approved by Health Canada in June. This was a significant milestone. We continue to advocate with the provincial Government on making new drugs accessible through our provincial drug plan. Our collective efforts will most certainly make a difference.
There aren’t enough words to thank our families, board of directors, supporters, volunteers, donors, sponsors, staff team and friends. You are the reason we can continue our mission of making each day the best possible day for those living with and affected by ALS, and you are the very core of the ALS Society of Alberta.
Karen Caughey
Executive Director, ALS Society of Alberta
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