THE DUCT
A Monthly Newsletter for the PSC Community
April 2022
PSC Patients, Caregivers, Researchers, Clinicians, and Industry Reps. are encouraged to attend the upcoming Annual PSC Partners Conference, now in a virtual format. Included are pre and post-conference webinars.
More information is below.
REGISTRATION OPENS MAY 1, 2022
2022 ANNUAL PSC PARTNERS CONFERENCE OFFERS SOMETHING FOR EVERYONE!
In the videos above, PSC Partners Co-Founders Ricky and Don Safer and PSC Partners 2020 Conference Co-Hosts Josh Korzenik, MD, Brigham and Women's Hospital, and Dan Pratt, MD Massachusetts General Hospital, give brief overviews of what to expect at the upcoming virtual Conference, June 2-5, 2022. They encourage attendance by PSC patients, caregivers, researchers, clinicians, industry representatives, and more. Take a listen to find out why this conference has something for everyone.

We are excited to see you in attendance as we bring our community together for important conversations, exciting research updates, and renewed connection via our interactive, virtual platform.

Registration opens May 1, 2022. Visit the 2022 Conference page of our website for information, a link to the agenda, answers to questions, and more.
REGISTRATION OPENS
MAY 1ST
Raquel Valerio, PSC Partners Program Administrator, shares information about Conference registration in the video at left.

"The suggested registration fee (for patients and caregivers) is $25," she says. "We want to ensure everyone who wants to attend the conference is able to. So, for those who can't cover the cost, there is no fee."
JOIN US FOR OUR THREE PRE-CONFERENCE EDUCATIONAL SERIES WEBINARS
Even if you haven't registered for the June Conference before this webinar, or don't know if you plan to attend, we hope you'll still join us at this webinar. You will learn more about PSC Partners and get details about our Conference. Afterwards, you may even decide to join all or part of the weekend's educational and social offerings.
Post-conference webinars will also be offered.
These will be listed soon on the WEBINAR PAGE of our website.
RESEARCHERS AND CLINICIANS ARE INVITED TO SUBMIT ABSTRACTS FOR VIRTUAL POSTER PRESENTATION AT ANNUAL CONFERENCE
We are excited to offer scientific poster presentations on our virtual 2022 Annual PSC Partners Conference platform. Visit our website to view the Call for Abstracts

Please note the following key dates and deadlines:
  • Poster abstract submission period opened: March 25, 2022
  • Abstracts must be submitted before: April 22, 2022, 8pm ET
  • Notification of Acceptance issued: May 2, 2022
  • Digital poster materials uploaded and submitted: May 16, 2022


A quick note: Encore presentations are permitted and encouraged. Because the PSC Partners Annual Conference is not an officially recognized national meeting, abstracts and posters presented will be eligible for presentation at future scientific conferences.

Questions? Contact PSC Partners Director of Research Strategy Dr. Ruth-Anne Pai,
WHAT TO EXPECT AT THE UPCOMING CONFERENCE:
An Interview with PSC Partners Staff AND
2022 Conference Co-Hosts
In episodes 30 and 31, Host Niall McKay talks with a PSC Partners' staff member and the Co-Hosts of the upcoming PSC Partners 2022 Annual Conference about what makes this conference different, how collaboration and networking will still take place, and why it's vital for patients, caregivers, researchers, clinicians, and industry reps to attend this virtual event, June 2-5, 2022.

In the first of this two part series (EPISODE 30), PSC Partners Medical Science Liaison Joanne Hatchett says, "Dr. Josh Korzenik of Brigham and Women's and Dr. Dan Pratt of Mass General Hospital have been working with our PSC Partners team to plan an amazing conference this year. Sessions will focus on featuring the patient's voice, because that's at the heart of the conference, (and we're also planning) many ways to meet, (learn), and socialize before during and after the (virtual event).

In the second of this two part podcast series (EPISODE 31), Niall McKay speaks with the Conference co-hosts.

"It's going to be a slightly different and very exciting conference," says Josh Korzenik, MD, Brigham and Women's Hospital. "It's envisioning a very different kind of future for PSC where there's a broader engagement of everybody, and it's really becoming much more of an international community, which is very exciting."

Dan Pratt, MD, Mass General Hospital, agrees, adding, "An exciting research initiative that will be rolled out at the conference is the WIND Initiative (Worldwide Integration of Natural History Databases), which will, hopefully, accelerate our identification of new therapies for PSC."
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Independent Media Producer, Director, and PSC Patient Niall McKay. Each month, this podcast explores the latest research and knowledge about PSC. Topics include patient stories, latest research updates from PSC experts, collaborations that are necessary to find better treatments and a cure, and more. This podcast has it all!

Living with PSC can also be found wherever you download your podcasts.
LOTS OF LEARNING AND NETWORKING OPPORTUNITIES FOR RESEARCHERS AND CLINICIANS AT
2022 ANNUAL PSC PARTNERS CONFERENCE
"There are many new, exciting aspects for researchers and clinicians at our
2022 Annual Conference, June 3rd and 4th,"
says PSC Partners Medical Science Liaison Joanne Hatchett in the video, above left.

In the video above right, PSC Partners Director of Research Strategy Dr. Ruth-Anne Pai describes the ICRNetwork (International Collaborative Research Network), which will be launched at the Conference.

"(Through the ICRNetwork,) we can accelerate the pace of PSC research and drug development through conversation and collaboration," she says.
On June 3rd and 4th of the 2022 Annual PSC Partners Conference, which is free for all academic researchers and clinicians, attendees can expect:


"We want to hear your thoughts," says Hatchett.

Registration opens May 1st.
Visit the 2022 Annual PSC Partners Conference page on our website for more information.
Support the 2022 Annual PSC Partners Conference by
BECOMING A CORPORATE OR COMMUNITY SPONSOR
We rely on the support of corporate and community sponsors for our Conferences, including the upcoming 2022 Annual PSC Partners virtual Conference. Won't you help?

For more information, check out PSC Partners Executive Director Meegan Carey's video at right, or contact us via email or phone, contactus@pscpartners.org, 303-771-5227.

Carey says, "We have several new and unique opportunities for both corporate and community sponsors. Your sponsorship is critical to support our PSC community!"
INTERNATIONAL PATIENTS, CAREGIVERS, RESEARCHERS, AND CLINICIANS ENCOURAGED TO ATTEND CONFERENCE
Since our 2022 Annual PSC Partners Conference is virtual this year, and it won't require plane tickets or passports, it is very accessible to international folks. We're excited to welcome you, and we are planning lots of ways for you to connect, learn, collaborate, and interact with others.

PSC Partners Canada President Mary Vyas extends a special welcome to those who will be attending from Canada. In the video at left, she lets Canadians know what they can expect at this year's virtual event.
ALL IT TAKES IS THE PUSH OF A BUTTON TO HELP SPREAD THE WORD ABOUT THE 2022 ANNUAL PSC PARTNERS CONFERENCE
Check out the video from PSC Partners Communications Director Jen Chavez
Niall and Marissa, Why are You Coming to the Conference?
Each month, we highlight videos we think will be of interest to our community. Check out this message all the way from Ireland from PSC Patient Niall and PSC Caregiver Marissa.
Unfortunately, we can't swing karaoke for the virtual conference, but keep practicing, Marissa.
We'll plan to include it next year!
PICK UP AN EXCLUSIVE 2022 CONFERENCE MUG, & REMIND FOLKS, "YOU'RE ON MUTE!"
Visit our online shop to grab a limited edition coffee mug just in time for the 2022 Annual PSC Partners Conference. Not only will you look super cool while you're enjoying a beverage during this virtual event, it also doubles as a reminder to folks, "YOU'RE ON MUTE!" The mug comes in several colors, and two sizes. The Conference logo is also on a water bottle.
Delivery times can be slow, so order soon if you want the mug to arrive in time for the Conference.
This is an awareness-raiser, not a fundraiser.
Our Mission: The mission of PSC Partners Seeking a Cure is to drive research to identify treatments and a cure for primary sclerosing cholangitis (PSC), while providing education and support for those impacted by this rare disease.
(303) 771-5227
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Greenwood Village, CO 80111