Community Cancer Action Board Newsletter |
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By Tabina Rashed and Rita Musanti, PhD, APN-BC
What is cancer-related fatigue?
Cancer-related fatigue (CRF) is a common side effect resulting from various cancer treatments. Cancer-related fatigue is seen in 80-100% of individuals with cancer. It is different from regular fatigue in which individuals have a lack of energy which can typically be solved by good rest. Cancer-related fatigue is often not easily relieved by rest. Individuals describe this fatigue as feeling physically tired as well as emotionally and mentally tired.
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The American Lung Association has released the
State of Lung Cancer. See how New Jersey is doing
in all things lung cancer related.
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December 9 || 4pm
Accelerated Brain Aging in Chemobrain
Led by: Mi-Hyeon Jang, PhD
December 10 || 4pm
South Asian Breast Cancer Survivorship Cohort Study
Led by: Jaya Satagopan, PhD
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Don't forget to get your flu shot this year!
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Alka Agrawal
Owner/Chief Operating Officer
EBC Radio
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Alka Agrawal, Owner of EBC Radio, has been an integral part in growing EBC Radio, 1170 AM, the first all Indian commercial radio station in the tri-state, since 1999. Serving as a team leader in business development, marketing and public relations she helped build the listenership to an estimated 500,000.
Alka is an elected Board of Directors in the Asian Indian Chambers of Commerce. She loves talking to people and her focus is to educate the listeners with everything that matters to them. Additionally, Alka serves as an Advisory Board member at SKN Foundation, NJSBDC of Rutgers NJ and CCAB. Her vision is to make sure to pass on the South Asian culture and heritage to the next generation through EBC Radio. She has lost her mother and sister to cancer. Since then she really is focused on creating awareness in the South Asian community to early detection of cancer.
As a Board Member of CCAB she hopes to learn more and to their research projects. Listen to EBC Radio Live on 1170 AM, the EBC Radio app on all iOS and Android Devices, Alexa Devices, and ebcmusic.com.
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Don't Miss the Next CCAB Meeting!
December 14 at 4pm
We will be joined by Dr. Steven Libutti,
Director of Rutgers Cancer Institute of New Jersey
Please RSVP by Wednesday, December 8th
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Have a Happy
& Safe Holiday
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“There is no better way to thank God for your sight than by giving a helping hand
to someone in the dark.”
-Helen Keller
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Arts & Media
Impact Council
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Citizen Scientist Clinical Trials Impact Council |
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The Arts & Media group has been added to the community engagement website. Impact council members have been establishing the platform's vision and collaborating on site layout and content areas, as well as starting conversations with arts organizations around NJ. Central among the current discussions include which community groups to create on the platform. The platform aims to serve as a space for all residents of New Jersey, so special attention is being given to identifying cultural, regional, and language, and disease-specific groups, especially where health- and cancer-related disparities are present. Community leaders for each group are to be considered for invitation to the platform, so they may assist the group in guiding content and development.
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The Citizen Scientist group launched the next cohort of training for the program on November 17th. The Citizen Scientist program is designed to connect community members with researchers to foster bi-directional communication. It is geared to ensure that research reflects community needs. |
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Black Cancer Disparities
Impact Council
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Black Cancer Disparities Impact Council launched this fall with Martisha Dwyer volunteering to be Co-chair. The BCDAC is planning to host paid focus groups with members of the Black community from Plainfield, Newark, and Camden, by February 2022. The purpose of the focus groups includes being able to identify determinants of health, understand cancer stigma and determine the ideal community-based program to address health disparities.
If you are interested in joining this group please contact Domonique Noel. |
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COE Community Events Calendar
November/December Calendar
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RWJ PROUD Gender Center of New Jersey: Beyond the Binary: Community Stories, Nov 8 at 6pm. This event will include a transgender health panel discussion and Q&A. Register in advance for this meeting:
The Elixir Fund: Monthly Meditation Session, Nov 9 at 12pm. Join us for free meditation. The sessions will run during lunch time to help you recharge, reconnect and re-energize. Register today at: https://go.rutgers.edu/rjriz9mo
Homefirst: Breathing Easier, Nov 9 at 6pm. Learn about tobacco, health effects and how you can protect yourself and your family from the dangers of tobacco smoke. To join use this link: https://bit.ly/RutgersBreatheEasy
Southern NJ Perinatal Cooperative: Cumberland Mall Great American Smoke Out Health Fair, Nov 13 from 10am - 3pm. For over 40 years, the Great American Smokeout (GASO), founded by the American Cancer Society, has taken place on the third Thursday of November and celebrated nationwide. The GASO encourages smokers use this day to start their journey of becoming a nonsmoker. This event is an opportunity for community groups, businesses, health care providers, and individuals to support those who are making the change and beginning their quit. The Tobacco Free for a Healthy New Jersey team is having a pre-GASO event on Saturday, November 13 at the Cumberland Mall. Join us for free resources and a celebratory mall walk. Cumberland Mall 3849 S. Delsea Drive, Vineland, NJ 08360
Leukemia & Lymphoma Society: What I Wish I Had Known My First Year as a Cancer Survivor: Survivorship Care Plans & Clinics - Your Role in Ensuring Care Continues Beyond Active Treatment, Nov 16 at 5:30pm. We invite all young adult blood cancer survivors to join us for a three-part virtual series dedicated to topics of interest among young adults who have completed active treatment. This first session focuses on the importance of survivorship care plans and your role in developing that plan. REGISTRATION REQUIRED. This is a FREE virtual program for all patients and caregivers. ONLINE REGISTRATION: https://na.eventscloud.com/yasurvivorcare
Burlington Camden County Regional Chronic Disease Coalition: Addressing HPV and Cancer Disparities in the Black Community, Nov 17 at 12pm. Virtual program giving an overview of the human papillomavirus virus (HPV) and cancer disparities in the Black community in South Jersey. This includes a discussion on guidelines and barriers to cancer screening and prevention, as well as ways to address disparities. Sign up at: https://bit.ly/3DZvVbm
Leukemia & Lymphoma Society: Living Well with CLL, Diagnosis, Treatment & Support, Nov 17 at 4:30pm. This program is designed to provide attendees with essential information that will help you participate more actively and confidently in decisions about your CLL treatment and survivorship. This is a FREE virtual program for all patients and caregivers. PRE-REGISTRATION IS REQUIRED. ONLINE REGISTRATION: https://na.eventscloud.com/NJLVLivingwithCLL/
Institute for Prevention & Recovery: Nicotine & Tobacco Treatment Workshop, Nov 18 at 6pm. Join us to learn about: The harmful effects of nicotine and tobacco products · Lung health and screening guidelines · Resources to seek out treatment and help for quitting. Registration Required for this Zoom Event: https://bit.ly/3BUfGvX
New Community Corporation: Breast Health, Nov 30 at 11am. This private bi-lingual session will review breast health with the senior community.
Irvington Family Success Center: HIV, HPV and Cancer Program, Dec 1 at 4pm. Come and learn about the human immunodeficiency virus (HIV) , human papillomavirus (HPV) and cancer prevention. We will also discuss co-infection of HIV and HPV, HPV vaccination and cancer screening. Register here: https://bit.ly/3Fw56Mr
GLSEN: Gay Straight Alliance Forum HPV, HIV and Cancer Program, Dec 4 from 10am - 3:30pm Presentation at 2pm. Now in its 18th year, the GLSEN NJ GSA Forum brings together hundreds of LGBTQ+ youth, their advisors, and allies from across the state for an affirming day of learning, networking, and celebration. Register here: https://www.njgsaforum.org/
Focus Hispanic Center: Cánceres relacionados con el VPH, dec 7 a las 11am. Aprenda a protegerse a usted y a su familia contra las infecciones por VPH y los cánceres relacionados con el VPH. ¡Regístrese hoy!
NJ Department of Health: Essex County Residents - LBTQ+ HPV Focus Group, Dec 7 at 1pm. How can we improve and increase awareness among LGBTQ youth? Join us in this virtual focus group to share your experience, thoughts, views and concerns about HPV education and awareness. As a thank you for your participation, we will be providing those who attend $25 gift cards. Sign up at: https://bit.ly/30gmN3w
Rutgers Cancer Institute: Smoking and Tobacco Use in the LGBTQ+ Community, Dec 9 at 1pm. Come and learn about smoking and tobacco use in the LGBTQ+ community, including the history of the tobacco industry’s marketing to the LGBTQ community, smoking cessation and lung cancer screening for the LGBTQ+ community, and strategies for community engagement. Register here: https://bit.ly/3C5i0PE
Elixir Fund: Mindful Meditation, Dec 14 at 12pm. Join us for free meditation. The sessions will run during lunch time to help you recharge, reconnect and re-energize. Register today at: https://go.rutgers.edu/rjriz9mo
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Let us know what you think!
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