November 2021 Resources of the Month
Dear UCCCN members,

Here are your November 2021 resources and meeting summary.
Announcements

The upcoming UPIQ Asthma Collaborative beginning in January still has room for a few clinics to join in this Quality Improvement project. MOC Part 4 available. Please contact Heidi at heidi.bates@hsc.utah.edu or 801-541-9714 for questions, or, you can register online.



University of Utah Pediatric Project ECHO is collaborating with USU's Project SCOPE on NOWS/Opioid Exposure through December. CME and Nurse Contact hours are available for attending live sessions. Please see the schedule and register for any sessions you wish to attend (recordings of past sessions can be watched, as well). Our Spring session will begin on January 12, 2022 with topics including Medical Neglect, Palliative Care Pain Management, Foster Care, and more.



SPARK for Autism genetics study reminder – Parents and siblings of children with autism are encouraged to participate (from home, at no charge, gift cards possible). Registration can be done online at www.SPARKforAutism.org/utah. Please contact Amalia Caamano at sparkforautism@hsc.utah.edu or 801-213-4049 for materials and more information.

Medical Home Portal Section
Content Updates

MHP Spotlight - Athena

Question for the group: "What features and resources on the Medical Home Portal do you like or use most?"

  • Walt Torres used the services section to help a family that had been evicted find legal help and a temporary fix for their housing situation.
  • Eric Christensen loves the directory feature and ability to locate services locally. He also finds the Care Notebook very helpful, and his group shares it with almost all of the families they serve.
Brainstorming

Case #1: Dawn- has a couple of families looking for wheelchair lifts for vehicles, both families live in Ogden.




Case #2: Yvette - Family needs access to an iPad or computer for a patient to do physical therapy sessions. Patient is located in Salt Lake. Eric Christensen – Integrated Services Program Technology Lending Library has Chromebooks and Hotspots available for loan to families of children with special health care needs for Telehealth, social services intake, educational conferences, or other visits. Available in Blanding, Price, Richfield, Vernal, Salt Lake (via Utah Parent Center), Ogden (via Integrated Services Program). Please call 801-273-2988 for more information.

Integrated Services Program : MHP 23910 Loan program for Chromebooks and hotspots
Case #3: Brooke- wanting to connect with the care managers at the Comprehensive Care Clinic. (Heidi provided some details directly to Brooke.)


Case #4: Alexa - additional training resources needed regarding refugees and undocumented individuals. It was suggested to contact Anna Gallegos at Redwood Health Center (anna.gallegos@hsc.utah.edu). Other good sources for information include the Asian Association of Utah and the International Rescue Committee. (Also a good future meeting topic.)


Case #5: Dr. Jennifer Goldman-Luthy - Looking for a program in UT or western states that can assist with family reunification - a child with disabilities and a parent, where there has been a split. 

        Unified Family Therapy : MHP 38013
Disclaimer: These resources come from our members as part of the meeting brainstorming session; please check with your providers to make sure they are appropriate for your patient/families.

You can find a custom list of these service providers that can be printed, emailed, and more, here: November 2021 UCCCN Resources of the Month
Got Care Coordination: Tips, Tricks, and Tools of the Trade - Discussion

Eric Christensen started the discussion with information about the Integrated Services Program and its four main focus areas:

  1. Care Coordination
  2. Supporting the Medical Home
  3. Promoting Transition to Adult Medicine
  4. Providing limited direct clinical care services

Thirty percent of their funds must go to help special-care-needs kids. Care coordination is the primary focus and involves several steps including intake and assessment, creating a care plan, connecting families to Medicaid/CHIP and SSI, and providing consistent, regular follow up - this is key.

They also help support the medical home by referring families to a primary care provider for regular care, guiding transition to adult healthcare by supporting families and providers in the community with training and planning services. They focus on the 16-17 year old age group since they have the most acute need for resources.

ISP also has limited direct clinical evaluation and diagnosis services via telehealth. They have providers such as a speech pathologist, psychologist and Peds APRN to help with developmental delays, autism, behavioral modification, and medication support.

ISP's multidisciplinary team can support your practice with care coordination. They partner with families and promote a patient and family-driven care plan that is closely aligned with the primary care provider or Medical Home.

Mindy and Tina also talked about the following resources you are also encouraged to use:

  • Utah Family Voices - a grant program under the Utah Parent Center and works on specific health-related issues, such as autism. Utah Family Voices works directly with families to solve problems related to those specific areas. Staff are all parents of children with special health care needs.
  • Utah Parent Center - a family-to-family model where parents of children with disabilities can help other parents with school/education-related issues and give a more personal experience. The UPC can provide support for IEPs and getting services.


Zoom polls asked these questions:
  1. How do you keep track of your kids with special needs?
  2. How do you know to follow up?
  3. What are the criteria for following up?
  4. What barriers or challenges, if any, do you face (working with children and youth with special health care needs)?  
  5. What success are you having?

Please please reach out to Eric if you have any questions at echristensen@utah.gov



          Utah Family Voices : MHP 10171

Other
Our next meeting date: December 15, 2021.

Archived meeting recordings are available on our YouTube UCCCN 2021 Playlist.

Please use our listserv (ucccn-meetings@lists.hsc.utah.edu) to send questions or issues needing help.connect with UCCCN members in between meetings - ask for help, share resources, etc.

Happy Thanksgiving!
Mindy
Mindy Tueller, MS, MCHES
Director of Operations, Medical Home Portal
Facilitator, Utah Children’s Care Coordination Network
Department of Pediatrics
University of Utah
801-213-3920
Medical Home Portal | UCCCN | 801-213-3920 | mindy.tueller@utah.edu | Medical Home Portal