Martine Elias, Executive Director |
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"November is an important month for all Canadians. Not only is it marked by Remembrance Day, a day when we honour the courageous men and women who have, and continue, to give of themselves to protect our freedom, but it is also the month we celebrate and recognize the wonderful caregivers who give of themselves so tirelessly and selflessly each and every day.
It’s essential that we not only honour the vital role caregivers play in the lives for whom they care, but in society as a whole. We must understand, recognize and support those that support others."
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NEW SURVEY COMING...STAY TUNED! Keep watch for a new survey in your inbox on the Ide-Cel (bb2121) molecule, a CAR T therapy, for the upcoming CADTH review. This is an important survey and we look forward to your invaluable input.
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Reminder: Take part in the Myeloma PSP Prioritization survey today! |
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The Myeloma Priority Setting Partnership (PSP) is an exciting first-time initiative in myeloma. It will help set the direction for research and call to funders to recognize prioritized, unanswered questions in myeloma.
Led by a Pan-Canadian Steering Group of myeloma patients, caregivers, and clinicians, the PSP provides all those impacted by myeloma - patients, caregivers and healthcare professionals - with the opportunity to identify future myeloma research priorities.
The Myeloma PSP Prioritization Survey closes December 30th, 2020. Don't wait. Have your voice heard today.
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Share your insights for the direction of future myeloma research. |
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What's new at Myeloma Canada |
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Share the spirit of the holidays! Give the gift of hope. |
Spread the warmth this year by honouring the special people in your life with one of Myeloma Canada’s beautiful greeting cards. This year, we’re thrilled to unveil a new addition to our annual holiday card, a lovely emblematic red gerbera daisy design, created specifically for Myeloma Canada by David Senior, an extremely talented illustrator/designer.
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Give the gift of hope and help us improve the lives of Canadians impacted by myeloma and support clinical research so that a cure may be found. |
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How do I send my Myeloma Canada greeting card?
With a minimum donation of $25 to Myeloma Canada, we’ll send the beautiful greeting card you’ve selected, on your behalf, to your loved one.
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Now available! Myeloma Canada's Managing Pain and Fatigue InfoGuide
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This new InfoGuide is intended to help you understand, manage and cope with your myeloma-related pain and fatigue.
This InfoGuide features information on:
- causes of pain and fatigue in people living with myeloma;
- different types of pain;
- how to identify and describe pain and fatigue;
- ways to manage, treat and improve pain and fatigue symptoms;
- and so much more.
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For all of Myeloma Canada's educational resources, visit 'Resources" on our website.
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"Wow! The new info guide is fantastic! ...When you’re in it you think it will never get better again. This info book is not only incredibly informative it’s hopeful as well. It doesn’t just tell all the horrible things it has so many solutions and ways to connect and find support... I can’t wait to share this with patients. I want my family and friends to read it too....Please send along my thanks and gratitude to the team for their work and involvement on this project."
Cyndi Logan - Co-leader, Northern BC Multiple Myeloma Support Group
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Have you downloaded the Myeloma Monitor V2? |
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Myeloma Canada's Myeloma Monitor is an award-winning, easy-to-use application (app) designed specifically for multiple myeloma patients and their caregivers.
Developed entirely by Myeloma Canada, this intuitive app helps you organize, track and manage your daily activities so you can better understand the many changes that occur, and decisions that need to be made, throughout the various stages of your myeloma journey.
There are many exciting new features in this second version of the application. Click on the button to the left to find out more.
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New InfoVideo is now online! |
Click on the thumbnail below to view this month’s InfoVideo |
InfoVideo Series #23
What is light-chain (AL) amyloidosis and how can it affect someone with myeloma?
What organs can amyloidosis impact, and can light chains in the kidneys be flushed out?
Find out the answer from Canadian myeloma expert, Dr Christopher Venner, Hematologist & Malignant Hematology Tumour Group Lead at the Cross Cancer Institute, Edmonton, AB.
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Follow us on Facebook and Twitter to be amongst the first to see our videos!
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Giving Tuesday is coming! |
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Join us on Giving Tuesday by donating. Help us find a cure. |
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What Is Giving Tuesday?
Giving Tuesday is a day that promotes and celebrates generosity. Giving Tuesday,, an international movement, first started in the USA in 2012 in between Black Friday and Cyber Monday. The reason? Since we have two days devoted to consumer-oriented ‘indulgence’, it’s a call to remember and honour charities and non-profit organizations, the communities they serve and the work that they do.
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Giving Tuesday is December 1, 2020.
Join this global movement by giving hope and helping us advance awareness, education, community empowerment, advocacy, science & research in myeloma so that a cure may be found.
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How do I participate?
Simply click on any of the links below, or on the button to the right.There are so many ways you can give. Use Giving Tuesday as a springboard to:
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Join in and be part of
a world-wide movement
celebrating generosity, community
and the beauty of giving.
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As we head toward the holiday season and the end of the year, why not take advantage of giving generously and saving on your taxes at the same time? Donations of $20 or more are eligible for a full tax receipt. All gifts are appreciated and help us get that much closer to a cure.
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Spotlight on...
Dr Richard LeBlanc & Dr Jean Roy
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Long-time supporters of, and advocates for, Myeloma Canada and members of the Myeloma Canada Scientific Roundtable |
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This month’s spotlight features Dr Richard Leblanc and Dr Jean Roy. Dr LeBlanc is Chair of the Myeloma Canada Chair on Multiple Myeloma of Université de Montréal at the Hôpital Maisonneuve-Rosemont, as well as Clinical Assistant Professor of Medicine at the Université de Montréal in Montreal, QC. Dr Roy is Co-investigator with Dr Leblanc at the Myeloma Canada Chair, Department Head & Hematologist of the Department of Hematology & Oncology at Hôpital Maisonneuve-Rosemont as well as Associate Professor of Medicine at Université de Montréal. Both are long-time supporters of, and advocates for, Myeloma Canada and are members of the Myeloma Canada Scientific Roundtable.
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Join us online from the comfort of your own home! All you need is a computer, tablet or smart phone and an internet connection.
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Don't forget - full information on upcoming webinars is available in our website's 'News & Events' section, or by clicking here.
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December 8, 2020
3:00pm EST
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Past webinars:
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Jim's Story of Self Advocacy, Living With Myeloma for 28 Years - View recording
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Impact of Dietary, Metabolic, and Microbiome-Related Factors on Plasma Cell Disorders - View recording
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Light Chain (AL) Amyloidosis: Diagnosis and Treatment - View recording
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Drug Interactions in Myeloma and How to Avoid Them - View recording
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About Relapsed/Refractory Myeloma & What to Expect - View recording
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Living Well With Myeloma for 25 Years: The Benefits of Getting Involved - View recording
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Following & Understanding Your Serum-Free Light Chain Test Results - View recording
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Relaxation & Stretching Therapies - View recording
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Get to know your Myeloma Canada Patient Advisory Council (PAC) - View recording
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About Newly Diagnosed Myeloma & What to Expect - View recording
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Healing@Home Empowerment Series - View series
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The 13th Annual Support Group Leaders' Summit was a success!
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On November 19th we held our 13th Annual Support Groups Leaders' Summit, remote! We were blown away by the participation (66!), active discussions and networking that took place. Just goes to show how incredibly adaptable our support group leaders are as a community. There were great presentations on succession planning, a new marketing toolkit, and a super motivational talk on coping with challenges.
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We hope that you're pumped to finish off this year and feel re-energized to tackle the year ahead. Thank you to everyone who participated to make this year's Summit an amazing virtual day!
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Want to know if there is a support group in your area?
Check out our interactive map!
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The many faces of advocacy |
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Nancy Shamanna was diagnosed with multiple myeloma in 2009 at the age of 58. Living in Calgary she works with the Alberta Advocacy committee and is an active member of the SAMPS support group. Being involved with other myeloma patients and caregivers in her area, and a fierce advocate, Nancy always wanted to do more, so she joined the Myeloma Beacon as a columnist.
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Being diagnosed with myeloma inspired actress Lisa Ray to rewrite
her life
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In her memoir, Close To The Bone, Lisa describes growing up as a biracial child of an Indian man and a Polish woman and her rise to Bollywood stardom. She explains how her myeloma diagnosis actually inspired her, and invites readers to discover her life on movie sets, her battle with eating disorders and her experience of becoming a mother of twins through surrogacy.
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"I never anticipated that being diagnosed with multiple myeloma, which is essentially considered a fatal disease, would give me a new lease on life. That's the irony." Lisa Ray
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Our website includes a section dedicated to COVID-19 and its impact on our community. Please visit it often for regular updates and resources you can trust.
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COVID-19 related webinars*
*See the "Upcoming Events" section below for non-COVID-19 related webinars
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Past webinars:
Click on the title to view the recording:
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All webinars are free, recorded and are available for viewing on our Myeloma Canada YouTube channel.
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For more information on all upcoming webinars, click here.
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Myeloma Canada is here to support you in your myeloma journey.
Please consult our website at myeloma.ca for up-to-date news and information,
as well as the following helpful links:
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In these difficult times, you, our community, remain our number one priority.
Now more than ever, we appreciate your support. Your donation enables us to continue
providing you with the best information, resources, programs and services - across as many
technology platforms as possible - to stay empowered, informed and connected, while funding
research to help find a cure for this disease.
Thank you for your generosity and for helping us help you.
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Follow us on social media for the most up-to-date information and resources: |
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Si vous préférez recevoir cette Infolettre en français, écrivez-nous à contact@myelome.ca.
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