Please consider making a donation in any amount to
PSC Partners Seeking a Cure.
Over the past year, PSC Partners Seeking a Cure has:
Conducted the successful Making Our Voices Heard: Patient-Focused Drug Development Forum (PFDD). This once-in-a-lifetime, virtual event educated FDA, drug development leaders, researchers, and more about the vital need for effective treatments and a cure for PSC. Please share these recordings with family, friends, and medical providers in your life. This Forum had so much community support that it was completely financially supported by our dedicated community members. Huge thank you to those supporters, who are listed here.
Conducted seven informative webinars, in lieu of our 2020 Conference, to ensure that our community stays informed and educated about PSC research, treatments, and more. Thank you to our webinar hosts and sponsors,who are listed here.
Enhanced and upgraded thePSC Partners Registry. The enlarged capabilities of this new version further facilitate research and clinical trials towards a cure for PSC. We also experienced phenomenal growth in the number of Registry participants over the past several months, evidence of the eagerness of the PSC community to participate in PSC research. Make it a New Year's resolution to join the Registry and add your information! We need YOU to increase our understanding of PSC and to find treatments and a cure.
Announced the funding of seven new, promising, international research projects, plus three more in conjunction with PSC Partners Canada. This brings our funding total to more than $4 million.
Launched an improved website for more effective and impactful dissemination of information to our community.
Hosted online support gatherings for teen PSCers, parents of pediatric and teen patients, and adult PSCers. The next ZoomRoom is for PSCers aged 18 and older on 1/12/21. Register here.
Participated in numerous educational webinars and nonprofit gatherings offered by the Chan Zuckerberg Initiative's Rare As One Project. PSC Partners is one of 30 patient-led organizations chosen for this project designed to increase international research and drive progress towards the search for cures.
Continued collaboration with Komodo Health to finalize a dynamic specialist map making it easier for our community to locate PSC healthcare providers near them. This impactful tool was launched this month. This partnership also has helped us to identify and communicate directly with more PSC physicians, nurse practitioners, and physician assistants.
Understandably, donations have slowed during this difficult time while everyone deals with their own challenges. PSC Partners' efforts to find a cure have not slowed. We are asking for your support, so that we may continue serving the PSC community.
Our Mission: To provide education and support to PSC patients, families and caregivers and raise funds to research causes, treatments and cures for primary sclerosing cholangitis (PSC).
