Martine Elias, Executive Director |
|
"The strength of Myeloma Canada is a direct reflection of your strength, of the immeasurable good you bring to our community. In 1985, the United Nations declared December 5th International Volunteer Day as a global day of celebration, honouring the impact of volunteers around the world. Volunteers are who drive Myeloma Canada. You are our heart and soul. You are the reason for why we’ve been able to grow and pursue our mission of improving the lives of all Canadians impacted by myeloma.
You are the super heroes who are changing the lives of thousands. There simply aren’t enough words to say thank you."
|
|
Only 10 days left to take part in the Myeloma PSP Prioritization survey! |
|
The Myeloma Priority Setting Partnership (PSP) is an exciting first-time initiative in myeloma. It will help set the direction for research and call to funders to recognize prioritized, unanswered questions in myeloma.
Led by a Pan-Canadian Steering Group of myeloma patients, caregivers, and clinicians, the PSP provides all those impacted by myeloma - patients, caregivers and healthcare professionals - with the opportunity to identify future myeloma research priorities.
|
|
The Myeloma PSP Prioritization Survey closes December 30th, 2020.
Don't wait. Have your voice heard today.
|
|
|
Share your insights for the direction of future myeloma research. |
|
Myeloma Canada is conducting a patient survey on a new CAR T therapy coming to Canada |
|
Over the next few months, idecabtagene vicleucel (ide-cel, bb2121), a CAR T cell immunotherapy for the treatment of multiple myeloma in adult patients will be the subject of an evaluation by the pan-Canadian Oncology Drug Review (pCODR*) for funding consideration as a new treatment for myeloma.
|
|
To qualify, patients must have received the idecabtagene vicleucel (ide-cel, bb2121) or at least three (3) prior therapies, including:
- an immunomodulatory agent,
- a proteasome inhibitor, and
- an anti-CD38 antibody
|
|
|
Myeloma Canada will share patients’ input with the review committee to ensure our community’s voice is being heard and our needs considered. This survey should only take about 10 minutes of your time. |
|
Please complete the survey by
Monday, January 4, 2021, 5:00 pm EST.
|
|
|
As always, patient input is particularly important, and while we cannot make promises, it could contribute to increasing availability and access to new myeloma drugs for Canadian patients affected by this disease. |
|
Thank you in advance for your participation in these surveys
and for helping Canadians impacted by myeloma.
|
|
|
|
The ASH (American Society of Hematology) is the foremost hematology conference in the world, held every year in December. For a summary of important presentations at ASH, many dealing with clinical trial results for new and emerging treatments, click on the link above. |
|
|
|
What's new at Myeloma Canada |
|
Myeloma Canada welcomes Dr Arleigh McCurdy and Dr Hira Mian to our Board of Directors |
|
We’re thrilled to have Drs McCurdy and Mian as our newest Myeloma Canada Board members. Their professional expertise and insights as clinicians will not only enrich and enlighten our Board, but will have a positive impact on Myeloma Canada’s direction and programming. |
|
|
|
|
Get creative and save on your 2020 taxes! |
It's time to talk tax (receipts that is!)
There are just a few weeks left to make your donations count for your 2020 tax return. We have some ideas that can help you save on your taxes while supporting Myeloma Canada! Click on the button to find out more.
Please be sure to consult with your financial advisor to find the right solution for your financial and giving objectives.
|
|
Our “Case for Support”: Making myeloma matter. |
As our 15th anniversary comes to a close, we wanted to highlight what Myeloma Canada has been able to accomplish through the incredible generosity and support of our donors. We’re very excited about our newest brochure, A Case for Support, and believe it will be a great piece to stimulate fundraising and procure corporate donations.
|
A Case for Support looks to the future and underlines why supporting our organization has a critical impact on every Canadian affected by myeloma. Please feel free to share it widely.
|
|
Thank you for your unwavering dedication and passion…we wouldn’t be where we are today without you!
Myeloma Canada’s Case for Support is available in English and French as a free download on myeloma.ca, as well as in print (limited quantities). To order your copy, email contact@myeloma.ca or call us toll-free, 1-888-798-5771.
|
|
Learn more about Myeloma Canada and the services we provide.
|
|
New InfoVideo is now online! |
Click on the thumbnail below to view this month’s InfoVideo. |
InfoVideo Series #24
What do genetic abnormalities tell us about the risk of myeloma progression and survival? Do people with high-risk factors receive the same treatments?
Find out the answer from Canadian myeloma expert,
Dr Rodger Tiedemann, Hematologist, Senior Scientist at Princess Margaret Cancer Centre, Toronto, ON
|
|
Follow us on Facebook and Twitter to be amongst the first to see our videos!
|
|
|
|
Spotlight on...
Dr Arleigh McCurdy and Dr Hira Mian
|
|
Long-time supporters of, and advocates for, Myeloma Canada,
members of the Myeloma Canada Scientific Roundtable, and more!
|
|
This month’s Spotlight features Dr Arleigh McCurdy and Dr Hira Mian, both of whom have recently joined the Myeloma Canada Board of Directors. (See "Myeloma Canada welcomes Dr Arleigh McCurdy and Dr Hira Mian to our Board of Directors" above.)
|
|
|
|
|
In addition to their thriving practices in Ontario as hematologists, assistant professors, researchers, and more, Drs McCurdy and Mian are dedicated supporters of Myeloma Canada and key contributors to our many educational publications, webinars and events. Moreover, both doctors are enthusiastic participants at our annual Multiple Myeloma March. |
|
Join us online from the comfort of your own home! All you need is a computer, tablet or smart phone and an internet connection.
|
|
|
Don't forget - full information on upcoming webinars is available in our website's 'News & Events' section, or by clicking here.
|
|
Tuesday, February 2, 2021
1:00 pm EST
|
|
Tuesday, February 16, 2021
4:00 pm EST
|
|
|
|
Past webinars:
-
Myeloma Monitor: Learn How to Organize, Track & Manage Your Myeloma - View recording
-
Oncology Rehabilitation Program Kinatex Sports Physio - View recording
-
Jim's Story of Self Advocacy, Living With Myeloma for 28 Years - View recording
-
Impact of Dietary, Metabolic, and Microbiome-Related Factors on Plasma Cell Disorders - View recording
-
Light Chain (AL) Amyloidosis: Diagnosis and Treatment - View recording
-
Drug Interactions in Myeloma and How to Avoid Them - View recording
-
About Relapsed/Refractory Myeloma & What to Expect - View recording
-
Living Well With Myeloma for 25 Years: The Benefits of Getting Involved - View recording
-
Following & Understanding Your Serum-Free Light Chain Test Results - View recording
-
Relaxation & Stretching Therapies - View recording
-
Get to know your Myeloma Canada Patient Advisory Council (PAC) - View recording
-
About Newly Diagnosed Myeloma & What to Expect - View recording
-
Healing@Home Empowerment Series - View series
|
|
|
|
Our website includes a section dedicated to COVID-19 and its impact on our community. Please visit it often for regular updates and resources you can trust.
|
|
COVID-19 related webinars*
*See the "Upcoming Events" section below for non-COVID-19 related webinars
|
|
 |
Tuesday, January 26, 2021
7:00 pm EST
|
All webinars are free, recorded and are available for viewing on our Myeloma Canada YouTube channel.
|
For more information on all upcoming webinars, click here.
|
|
|
|
Past webinars:
Click on the title to view the recording:
|
|
|
|
Myeloma Canada is here to support you in your myeloma journey.
Please consult our website at myeloma.ca for up-to-date news and information,
as well as the following helpful links:
|
|
Please note that during the holidays, our response may be slower than usual.
For emergencies, please contact Martine Elias, Executive Director
Wishing you a very healthy, happy and safe holiday season!
|
|
In these difficult times, you, our community, remain our number one priority.
Now more than ever, we appreciate your support. Your donation enables us to continue
providing you with the best information, resources, programs and services - across as many
technology platforms as possible - to stay empowered, informed and connected, while funding
research to help find a cure for this disease.
Thank you for your generosity and for helping us help you.
|
|
Follow us on social media for the most up-to-date information and resources: |
|
Si vous préférez recevoir cette Infolettre en français, écrivez-nous à contact@myelome.ca.
|
|
|
|
|
|
|
