Welcome to the September 2020 edition of our nbmtLINK
E-nnouncement.
Grab your calendar and get ready to be educated and inspired.
It's learning time for all of us.
Happy Almost Fall.

FREE Lunch & Learn
Wednesday,
Sept. 16

NOON EST
(Please adjust your time zone.)


Pediatric Blood Cancer Initiatives & Advances Regarding
Bone Marrow/Stem Cell Transplant and
CAR T-cell Therapy

Wednesday, Sept. 16, 2020
Noon to 1 pm EST

This special free one hour telephone program will address the many unique needs and breakthrough advances designated to save and heal youngsters. Dr. Kevin J. Curran, Pediatric Director, Cellular Therapeutic Center of Memorial Sloan Kettering Cancer Center will share innovative treatment and progress, including information regarding CAR T- cell Therapy. Gwen Nichols, M.D., chief medical officer of The Leukemia & Lymphoma Society will further discuss relevant initiatives and emerging therapies. Michelle Marks, mom to a pediatric transplant patient will share her best tips, experiences and coping skills. Jennifer Gillette, our LINK licensed staff social worker will facilitate this special program. There will also be plenty of time for questions. 

To register for this Lunch & Learn, please click below on the link. If you have any technical issues related to registering, please contact peggyburkhard@nbmtlink.org or call (248) 770-5172.The call in information is contained in the form you use to register. Note: YOU call in to participate.
Special FREE Webex


We are so thrilled to partner on this exciting upcoming
September 23rd event
Beginning at Noon EST

Please Join Us for a NEW
Free Webinar
Sept. 29 at NOON EST


How Microbiome and Diet Affect Your GVHD
These innovative and emerging studies and findings discussed during this FREE webinar will offer new opportunities to improve allo-HCT outcomes through diet, nutritional know how and the
judicious use of antibiotics.  

The intestinal microbiota plays an important role in the pathophysiology of a variety of diseases. Studies in mouse and man from the 1970s have indicated that changes in the gut flora are associated with overall outcome after allogeneic hematopoietic cell transplantation (allo-HCT), including overall survival, graft-versus-host disease, engraftment and infection. These changes are due to decreased or altered diet, conditioning regimens, antibiotics and other drugs. Dr. van den Brink will give practical advice and a serving of hope to so many suffering with GVHD. Peter Adintori, the Clinical Research Dietitian in Dr. van den Brink’s lab, will offer additional practical nutrition tips to support patients during their journey with GVHD. As well, our licensed staff social worker, Jennifer Gillette will offer comfort and guidance to all regarding the emotional havoc GVHD can sometimes bring. 

Tuesday, Sept. 29, 2020
 12:00 Noon until 1:30 pm EDT

Presenters: Dr. Marcel van den Brink, MD, PhD & Peter Adintori, MS, RD, CDN, CNSC, Memorial Sloan Kettering Cancer Center
Facilitator: Jennifer Gillette, LMSW, nbmtLINK 

To register, please click on the following link:

Visit us at www.nbmtlink.org
Questions, contact Peggy Burkhard at peggyburkhard@nbmtlink.org 
or call 800-546-5268.

This program was made possible by the generous support of:
Incyte Corporation
Pharmacyclics & Janssen
We also acknowledge and thank our Link Partners for their ongoing important support.
(Listed below.)

Do you Have an Upcoming
Birthday or
Transplant Anniversary/
Second Birthday?
(If you would like to receive a fun Second Birthday card, please email cindyburke@nbmtlink.org. We will be happy to add you to our list.)

Want to support our efforts to help other patients and caregivers navigate this journey?


Special thanks to all the birthday girls and boys who celebrated in our honor. It is greatly appreciated.

Our mission to provide you with free online resources remains strong.
As we comply and integrate social distancing, we invite you to check out the following resources.

We are a phone call away for patients and their loved ones. From one on one peer support to scheduled call series and webinars, we are ready to ease your burden.
Patients, caregivers and health care professionals are amongst those we aim to help through our valued resource books, programs and one on one calls.
We simply cannot do it without the support of corporations, foundations and individuals willing to make a difference in the lives of others.
How We Help Others!
We Invite You to Become an nbmtLINK Partner!
Link Partners include cancer centers and allied partners who annually support our mission of providing psychosocial support to patients, caregivers, their families and health care professionals dedicated to helping people navigate a bone marrow transplant. If you would like to learn more about the many benefits (books, programs, hyperlink on our website, bookmark inclusion) to being a Link Partner, please do not hesitate to contact us at (248) 358-1886. Want a free bookmark which lists our many Link Partners? Let us know and we will send you one!

We acknowledge and thank the following Link Partners for their ongoing support

American Society for Transplantation and Cellular Therapy (ASTCT)
Barbara Ann Karmanos Cancer Institute
Blood and Marrow Transplant Program at Northside Hospital
Blood & Marrow Transplant Program, The Sidney Kimmel Cancer Center at Thomas Jefferson University Hospitals
Center for International Blood and Marrow Transplant Research (CIBMTR)
City of Hope
Dana-Farber/Brigham and Women’s Cancer Center
DKMS 
Duke Adult Blood and Marrow Transplant Program
Froedtert & the Medical College of Wisconsin Cancer Network
Henry Ford Stem Cell Transplant & Cellular Therapy Program
Incyte Corporation
Memorial Sloan Kettering Cancer Center
Meredith A. Cowden Foundation
Nebraska Medicine
Oregon Health & Science University Knight Cancer Center
Roswell Park Comprehensive Cancer Center
Seattle Cancer Care Alliance
Siteman Cancer Center at Barnes-Jewish Hospital/Washington University
School of Medicine
Spectrum Health Cancer Center
Stem Cell Transplantation and Cellular Therapy Program, John Theurer Cancer Center at Hackensack University Medical Center
The Leukemia & Lymphoma Society
University Hospitals Seidman Cancer Center
Vanderbilt Ingram Cancer Center
Thank your for being a friend of the nbmtLINK. We simply could not do this without you. If you can support our efforts at this time, we thank you in advance. Every dollar helps..

Sincerely,
Peggy Burkhard
Peggy Burkhard
Executive Director
(248) 358-1886
National Bone Marrow Transplant Link