Hope For Hypothalamic Hamartomas - August 2021
Order your Choose HOPE shirts today
Make sure not to miss out on ordering your Choose HOPE shirts! Only 2 days left to order.

Hypothalamic Hamartoma Awareness month kicks off in September and you can help us spread awareness throughout the month by wearing your Hope For HH gear and educating others about this rare syndrome.

Our goal is to sell over 100 shirts and raise donations to fund our current programs for providing support, information, and driving research initiatives.

Order today to support your HH Warrior!
Join Our Facebook Group
Join the Hope For HH Community Facebook private group and get the emotional support you need from others in similar circumstances, gain practical advice and insights on managing treatment or therapies for the various comorbidities (symptoms) associated with hypothalamic hamartomas.

Our group provides individuals and families to truly connect, make real friendships, and share daily ups and downs in a judgment-free place.
This group is intended for those impacted by HH including individuals with HH as well as HH caregivers. In order to provide a safe environment when you request to join, you will be required to answer questions about your connection to HH.
Join the group and get the emotional support you need from others in similar circumstances, gain practical advice and insights on managing treatment or therapies for the various comorbidities (symptoms) associated with hypothalamic hamartomas.

When you request to join, you will be required to answer questions about your connection to HH.

Steps to Join:

  1. Before you request to join the Hope For HH Community Facebook group, please make sure you've completed the Contact Registry here: https://www.hopeforhh.org/join-us/
  2. Please note your request to join may take 2-3 days to process as we approve each member to ensure this private community group is a safe and positive environment.
  3. Link to group: https://www.facebook.com/groups/hopeforhhcommunity
Hope For Hypothalamic Hamartomas | www.hopeforhh.org | info@hopeforhh.org