May 2022
May is ALS Awareness Month, and it is recognized each year to bring about advocacy and support for everyone diagnosed with the neurodegenerative disease amyotrophic lateral sclerosis (ALS). We have information to share with you about a webinar next week, hosted by the ALS Association of Georgia, upcoming camps for kids whose families are affected by ALS, and a wrap-up of another successful Fiesta 5k. We hope you will take the time to read each article in this issue and continue to spread awareness and advocate for the support of everyone working tirelessly to put an end to ALS. 
Genetic Counseling & Testing for ALS

Presented by the ALS Association of Georgia

May 18, 2022 Webinar - 11:00am to 12:00pm EST

Lauren Lichten, MS CGC, is the Assistant Director of the Emory University Genetic Counseling Training Program & Assistant Professor in the Dept. of Human Genetics. Lauren provides genetic counseling servies at the Emory ALS Center.

Camps for Kids Whose Family Has Been Touched by ALS

Two wonderful organizations have camps on the calendar for children whose family has been touched by ALS.

Joe's Camp is hosted by the Joe Martin ALS Foundation and taking place June 10-12, 2022 for children ages 8-17. It is three days of friendship, fun , and outdoor adventure at Crowder's Ridge in Gastonia, NC.

Register for Free Today!
Out-of-State Campers: Travel sponsorships available.


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Camp HLC/Hope Loves Company is a three-day, overnight retreat for children and young adults, ages 6-21, who have or have had a loved one battling ALS, as well as their families. It is an opportunity to have fun, to be challenged through team building exercises and to meet peers who share in their experiences. 

The dates for the Georgia camp (open to all in the southeast, not just GA) are October 14-16, 2022

Camp is provided free for ALS families by Hope Loves Company and their sponsors. All meals and activities are included.

For more information and to register, CLICK HERE.
A Phase I Study of DNL343 sponsored by Denali Therapeutics: NOW ENROLLING

Please contact Wanda Sanchez via email to learn more. Information also on our website.
16th Annual Fiesta 5k Raises $45,000 for Emory ALS Center

Thank you for participating.

Whether you were a sponsor, donor, fundraiser, race day vendor, volunteer, virtual runner, or in-person participant we are grateful for all of you. Your contribution helped raise $45,000 (for the second year in a row!) for the Emory ALS Center. Over the past 16 years there have been incredible strides made in ALS research, treatments, and patient care. There is so much happening in ALS research right now and we are all anxiously anticipating the day when this race celebrates a CURE.

Many thanks to Title Sponsor – Janice Overbeck Real Estate Team and Presenting Sponsor – Riskonnect. Not only do these two companies give funding, but their employees support us with their running/walking and donations. Along with the JO Team and Riskconnect, Country Charm Eggs, Control Southern, RNDC, Woodruff Health Sciences, and MECO have personal connections to ALS and they also are always very generous. The timing company, OnTime Results is simply the best – results are posted on the race website.

Thank you to the race day vendors: Annette & John Kramer (who are there every single year), representing Tofutti, Blue Diamond, and PRI; 1st Choice Sports Rehab, Andean Chevrolet, and Tara Esbeck with Mary Kay.

Photos are posted HERE. They are FREE and we thank True Speed Photo for the great pictures and fun attitude they always bring.

See you next year and remember to Celebrate Life…Imagine a Cure.

#runLOCO4ALS