Martine Elias, Executive Director |
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"November is also a time when we at Myeloma Canada celebrate and recognize the enormous contributions of the caregivers among us, within our community and throughout our country. Their impact, not only on the lives for whom they care, but on society, is immeasurable. At a time when our healthcare system is being pushed to the limit, the impact and importance of the carers within our communities cannot be overstated or overappreciated.
With that said, the strain on caregivers also cannot be ignored. Self-care is beyond important…it’s critical to ensure that those who take care of others take the time to take care of themselves, physically and emotionally."
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BREAKING NEWS!
International Myeloma Foundation (IMF) names Yelak Biru as CEO
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We’re thrilled to share that on Nov 12th, the IMF announced the appointment of Yelak Biru as their new CEO, replacing Susie Durie. Diagnosed with myeloma in 1995 at the age of 25, Yelak is a strong patient and research advocate and served as Patient Advocate on the IMF Board of Directors.
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There is no doubt Yelak will be a great addition to the IMF’s leadership and for all those living with myeloma around the world!! Congratulations Yelak! |
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Management of Myeloma Manifestations and Complications: The Cornerstone of Supportive Care |
People living with myeloma often experience symptoms and complications that can impair their quality of life (QoL). As such, prevention, early detection, prompt management and treatment are paramount to help improve the QoL for those living with this disease. |
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With this in mind, Myeloma Canada provided the entire financial and logistic support as well as managed the complete development and publication (including reviews and submissions) of the Canadian Consensus Recommendations for the Management of Myeloma-Related Manifestations and Complications manuscript.
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The recommendations within this important manuscript, which has Canadian physicians as its focus, address improvement and maintenance of care, and clarify best-practice approaches. The goal of the document is to establish a guideline that will lead to earlier myeloma diagnoses and better outcomes. |
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Resilient Healthcare Coalition |
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As part of the Resilient Healthcare Coalition (RHC), we signed the "Joint Mandate Letter to the Ministers of Health and Innovation, Science and Industry" on October 28, 2021.This Mandate Letter outlines 5 bold recommendations to increase the fundamental resilience of Canadian healthcare systems, and was supported by over 50 health system leaders across public, private, and non-profit sectors.
We added the Myeloma Canada voice to these issues, which ask for:
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- Ensuring equitable access to a broad spectrum of essential vaccines and related treatments;
- Closing the widening health research gap;
- Expanding the pan-Canadian Health Data Strategy;
- Reducing the time to bring new innovations to patients; and
- Ensuring Canadians have world-leading access to the expanding array of revolutionary genomics tools that better prevent, diagnose and treat disease.
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What's new at Myeloma Canada |
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Announcing our new giving and awareness campaign...
DOUBLE your IMPACT. DOUBLE your POWER to help SAVE LIVES.
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Giving Tuesday is coming! What started out as a US initiative is now a strong global movement of philanthropy. Giving Tuesday, the Tuesday that falls after Black Friday and Cyber Monday, is an important day of giving, dedicated to honouring charities and non-profit organizations, the communities they serve and the work they do.
This year, giving on Giving Tuesday will have twice the impact and benefit for our myeloma community!
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Through the incredible generosity of Dale and Mike, 2 of our community members, our powerful giving program will match, dollar-for-dollar, every donation you make to Myeloma Canada, up to a total amount of $73,000!
Click on the button to learn more about Dale’s story, the inspiration behind this wonderful program, and how YOU can DOUBLE your IMPACT and DOUBLE your POWER to help improve the lives of thousands of Canadians living with myeloma, like Dale.
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Regardless of the way or amount you choose to give, your donation will be going twice as far and doing twice as much for our myeloma community.
In the spirit of Giving Tuesday, join us today in the fight to save lives. Every donation is doubly appreciated and doubly important!
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New InfoVideo is now online! |
Click on the thumbnail to view this month’s InfoVideo.
InfoVideo Series #28
Is it better to use the most effective myeloma therapies first or save them for later?
Find out the answer from Canadian myeloma expert, Dr Wendy Lam, Hematologist & Medical Oncologist, Burnaby Hospital Regional Cancer Centre; Director, BC Community Oncology Trialists, Burnaby, BC
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Simplify your virtual care appointments |
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In the last few years, ‘virtual care’ – also referred to as ‘telehealth’ – alternatives to in-person healthcare appointments have become very common. Virtual care allows you to connect to a healthcare provider without an in-office appointment through alternative means such as a video chat or phone call.
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Throughout the various stages of your myeloma journey, we offer virtual care tools that can help you better understand and manage your disease. In December, we'll be releasing our newest version of Myeloma Canada’s Advocacy Guide featuring tools developed by Myeloma Canada to help you advocate for your rights and the rights of your loved ones. You'll discover that advocating is easier than you think. Stay tuned!
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Myeloma Canada’s greeting cards: give the gift of hope |
Honour the special people in your life with one of Myeloma Canada’s beautiful greeting cards. Send a gift that has the power to change lives, says ‘I care’, and holds hope for the future.
How do I send my greeting card?
With a minimum donation of $25 to Myeloma Canada, we’ll send the beautiful greeting cards you’ve selected to your loved ones, on your behalf. Give the gift of hope. Send a Myeloma Canada card today!
Choose your card:
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Questions?
We're always here to answer any questions you may have. Contact us at contact@myeloma.ca or
toll-free at 1-888-798-5771.
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Spotlight on Jojie Misenas:
I am my husband’s caregiver
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"I found a quote that said it’s not just the patient that suffers, but caregivers too.
We caregivers are on an emotional roller-coaster ride. As our loved ones are riding theirs, we are riding our own, and we are straddling them both. As we are aiding our loved ones in their journey, we are navigating the ups and downs, twists and turns of our own.”
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Join us online from the comfort of your own home! All you need is a computer, tablet or smart phone and an internet connection.
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Don't forget - full information on upcoming webinars is also available in our 'News & Events' section, or by clicking here.
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Tuesday, November 30, 2021
1:00 - 2:00 pm EST
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Past webinars:
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Myeloma Physiotherapy Consensus Recommendations: What Patients and Caregivers Need to Know - View recording
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Empowering Yourself on the Myeloma Journey - View recording
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Key Research Updates from the 2021 International Myeloma Workshop (IMW) - View recording
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CAR T-cell Therapy in Multiple Myeloma - View recording
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Oncology Drug Access Navigators - View recording
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About MGUS and Smouldering Multiple Myeloma - View recording
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Myeloma 101: Diagnosis & Treatment - View recording
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Myeloma Canada presents: A sit down interview with Dr Hira Mian - View recording
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Medical Cannabis in Clinical Oncology: Present & Future - View recording
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Latest Myeloma Research Updates from the ASH 2020 Meeting - View recording
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Update on COVID-19 and Myeloma in Canada - View recording
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Drugs Commonly Used for Multiple Myeloma Patients and Side Effects - View recording
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Our website includes a section dedicated to COVID-19 and its impact on our community. Please visit it often for regular updates and resources you can trust.
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COVID-19 related webinars*
*See the "Upcoming Events" section below for non-COVID-19 related webinars
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All webinars are free, recorded and are available for viewing on our Myeloma Canada YouTube channel.
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For more information on all upcoming webinars, click here.
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Past webinars:
Click on the title to view the recording:
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Myeloma Canada is here to support you along every phase
of your myeloma journey.
Please consult our website at myeloma.ca for up-to-date news and information,
as well as the following helpful links:
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In these difficult times, you, our community, remain our number one priority.
Now more than ever, we appreciate your support. Your donation enables us to continue
providing you with the best information, resources, programs and services - across as many
technology platforms as possible - to stay empowered, informed and connected, while funding
research to help find a cure for this disease.
Thank you for your generosity and for helping us help you.
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Follow us on social media for the most up-to-date information and resources: |
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Si vous préférez recevoir cette Infolettre en français, écrivez-nous à contact@myelome.ca.
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