2023 NC Down Syndrome Conference

This statewide conference brings together nationally and regionally recognized experts in their fields. Conference sessions cover diverse topics relevant across the lifespan of individuals with Down syndrome.

Everyone who supports a person with Down syndrome and other intellectual disabilities is encouraged to attend. Sessions for people with Down syndrome age 16 and older.

Early bird registration ends March 10th.

Black History Month:

Beverly Johnson, the first African-American woman featured on the cover of Vogue magazine (in 1974) now proudly serves as an International Spokesperson with the Global Down Syndrome Foundation.

Using her voice, and personal connection, Beverly is committed to activism and increasing research and medical care funding for individuals with Down syndrome. "Beverly plans to highlight – and work to reconcile – the lifespan disparity between blacks and whites with Down syndrome. While the average life expectancy for a white person with Down syndrome is 60, the life expectancy for an African-America born with Down syndrome is just 36 years."

American Heart Month:

Approximately half of all infants

born with Down syndrome have a heart condition (Delany et al., 2021). This gives us all the more reason to celebrate Heart Month!

We love seeing how far our very own mighty heart warriors have come!

Check out our Facebook and Instagram for our heart warrior spotlights and visit NDSS to learn more about the heart and Down syndrome.

Down Syndrome: The Early Years - Mahala Turner, Family Support Specialist for NCDSA

March 15, 7:30 pm

Are you new to the journey of parenting a child with Down syndrome? It can often feel overwhelming and confusing to know where to begin or gain a clear understanding of certain needs. This session is ideal for expectant parents, new parents, and caregivers with children up to the age of 3 years old. We will cover some basic Down syndrome facts, but attendees will learn more about:

• Specific healthcare needs of children with Down syndrome
• What therapies to focus on as part of early intervention
• Benefits your child may qualify to receive
• How to become your child’s best advocate
• Family life and how to support yourself and your loved ones
• The process of transitioning from early intervention to Pre-k services

Save the Date:

• Spring Dance: March 24
• Eastern Buddy Walk: April 30

"She never quite leaves her children at home, even when she doesn't take them along."

Thank you to all the amazing moms who joined us at the T21 Moms Retreat!