April 2022 Resources of the Month |
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Dear UCCCN members,
Here are your April 2022 resources and meeting summary.
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Announcements
University of Utah Pediatric Project ECHO Spring sessions are coming to a close. The next presentation will be on Brachial Plexus Injuries on May 4, 2022. Please see the schedule and register for this or the last session on May 11, 2022. Recordings of past sessions can be watched, as well.
Our next Autism 101 ECHO session will be held next Wednesday, April 27th and continue through October. This third session will focus on Diagnostic Evaluation. The schedule and information is available on the Autism 101 page, where you can also register for the sessions you'd like to attend. Nurse contact hours and CME are available for those able to attend these sessions.
Transition University through Utah Parent Center
These two-day workshops are funded by the Utah State Board of Education, and will be coming to Richfield, Cedar City, and San Juan County (Blanding) in April and May. The Transition Team and Utah Family Voices will discuss self-advocacy, history of disability rights, transition to IEP, Employment, and more. Dinner is provided on the first day, and breakfast and lunch on the second day.
Workshops were put on hold due to COVID, but are now starting back up to give families a chance to interact and ask questions. Guardianship is one of the most popular topics, and a guidebook is available during the class to cover how to get guardianship of adults.
Part of the overall transition planning by Intermountain Healthcare, Utah Department of Health, Utah Family Voices, and the University of Utah, these workshops help complex patients get transitioned to adult care. More sessions may be added in other rural communities.
SPARK for Autism genetics study reminder – Parents and siblings of children with autism are encouraged to participate (from home, at no charge, gift cards possible). Registration is online at www.SPARKforAutism.org/utah.
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Medical Home Portal Section
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Content Updates
MHP Spotlight - Athena Parker
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Brainstorming
Resource #1: Walt Torres - Social Security offices have opened up for in-person visits. Applications can be done online, over the phone, and in person now.
Case #1: Rebecca Ciolino - Patient with Tri-care needs an ADHD diagnosis. Is this something that can be done by a pediatrician?
If the provider is comfortable, the ADHD diagnosis can be made using a Vanderbilt in conjunction with the parent and teacher. If the pediatrician is not comfortable making the diagnosis, the family would need a neuropsych evaluation. Once they have a diagnosis, then they can work with the school to have a 504 plan put into place.
Resource #2: Tina Persels - Utah Parent Center Summer Resource list is now available on their website. This list will help families find all-inclusive events in the state and finding the right program for children.
The Utah Parent Center is also hosting a virtual Lunch & Learn series Wednesdays in May from 12 - 12:30pm. In three, brief lunch hour meetings, parents can learn about summer education options and which might be a good fit for their child as well as how to have good vacation and break time well spent. Fifteen minutes of content will be followed by time for Q&A.
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May 4th: All about ESY (Extended School Year) and keeping up with goals & progress throughout the summer.
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May 11th: Successful Vacation and Staycation Travel Tips
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May 18th: Your plan (IEP and 504)- Looking toward next school year
Resource #3: New Resource on Medical Home Portal - Beds by George is a family-owned company that builds beautiful safety beds for those with special needs and the medically fragile who require extra fall and entrapment protection. Their beds are FDA approved and they work with multiple DME companies throughout the USA.
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Disclaimer: These resources come from our members as part of the meeting brainstorming session; please check with your providers to make sure they are appropriate for your patient/families.
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Enhancing Referrals and Tribal Resources
Abby Rose, Emma Baldry, Christian Curtis, and Nicole Craven from the 2021-22 URLEND Trainee Group working with the MHP did their leadership project on enhancing coordination and communication with specialists.
Many families state that the referral process feels very fragmented and that there is no standard referral form or ability to follow up and close the referral loop. Improving the process would reduce the odds of time burden by 32 percent for families, and would reduce duplicate services, wasted resources and time for providers.
They provided suggestions on coordinating communication with the provider sending patients with an after-visit summary that includes clear recommendations and steps, along with the phone number and name of providers. They encourage three-way communication between parents, primary care providers, and specialty clinicians whenever possible.
Identifying the roles of each professional involved, assessing any barriers for the patient and family, and providing education, resources, and tools to the family while waiting for appointments with specialists were all keys in helping improve the referral process. See their presentation slides.
An additional project by this group had to do with Tribal programs and resources. The referral process is key in these. The group looked at the health disparities, history, Indian Health Services, Tribal programs specific to each reservation, and the long-distances often traveled to receive care. They provided several care coordination tips and considerations to keep in mind for American Indian and Native Alaskan populations.
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Our next meeting date is May 18, 2022 and will be a hands-on exercise for the Medical Home Portal. Please register in advance for this meeting. After registering, you will receive a confirmation email containing information about joining the meeting and it will give you the option to add them to your calendars.
Please use our listserv (ucccn-meetings@lists.hsc.utah.edu) to send questions or issues needing help, connect with UCCCN members in between meetings - ask for help, share resources, etc.
All the best,
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Mindy Tueller, MS, MCHES
Director of Operations, Medical Home Portal
Facilitator, Utah Children’s Care Coordination Network
Department of Pediatrics
University of Utah
801-213-3920
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