|
|
THE DUCT
A Monthly Newsletter for the PSC Community
|
|
|
|
Sign up today for
Making Our Voices Heard: Patient-Focused Drug Development Forum
October 23, 10 a.m. - 4 p.m. ET
We hope our community will attend the entire Forum, but, even if you can only attend a portion or have to come in and out of the meeting, please sign up. Numbers matter, and YOUR voice matters.
|
|
|
|
|
|
This gathering is a unique, valuable opportunity for primary sclerosing cholangitis (PSC) patient voices to be heard by attendees who will include the FDA, pharmaceutical leaders, researchers, and clinicians.
|
|
|
|
We hope this meeting will result in meaningful advances in
drug development that will lead to finding an eventual cure for PSC.
Let's do this together!
|
|
|
|
Post and Tag Photos During Forum |
Even though we won't be together in person during the Making Our Voices Heard: PFDD Forum, we hope you'll still wear your PSC Partners gear, and post selfies on social media. Be sure to tag us, and use #PSCVoicesPFDD. Thanks! |
|
|
|
Thank you to all PSC Partners Patient Registry participants who responded to the call to action by contacting Brigham and Women and Harvard University researchers for their study on nutrition in PSC. Enrollment is still open. We encourage you to check out the criteria.
|
|
|
|
|
SAVE THE DATE for Final Webinar in Conference Series |
|
|
|
This webinar is free and open to all.
A link will be available on this page of our website prior to the webinar. |
|
|
|
All webinars in our conference series are also available on our website.
|
|
|
|
PSC isn't taking a break during this time of unrest and separation,
and neither are we!
We Need Your Support.
|
|
|
|
|
|
As we all continue to grapple with significant issues during this unprecedented time in our world, at PSC Partners Seeking a Cure, we have never stopped our fight against primary sclerosing cholangitis (PSC).
Please support our efforts. In addition to direct donations, there are other ways to support PSC Partners.
-
United Way: Write in “PSC Partners Seeking a Cure” and our address: 6900 E Belleview Ave Ste 202, Greenwood Village, CO 80111
-
Payroll Contribution: This is a great way to participate in your company’s workplace giving program! Ask your Human Resources representative how to enroll, or send them our way so we can answer any questions.
-
Matching Gifts: Many companies match employee gifts to charitable organizations and/or volunteer time. If your place of work matches charitable donations, don’t forget to tell them about your gift to PSC Partners. This is a terrific way to multiply the impact of your donation!
Thank you!
|
|
|
|
Visit PSC Partners Booth at
The Liver Meeting
Nov. 13-16, 2020
The American Association for the Study of Liver Diseases (AASLD) Annual Liver Meeting is going virtual this year. As in past years, PSC Partners will be hosting a booth, and we hope you will "visit" us! You can also use the portal to request an appointment. Simply search for PSC Partners during the meeting, and you will be transported to us virtually. We look forward to seeing you there! |
|
|
|
A Message from the
PSC Partners Seeking a Cure
Medical Science Liaison Joanne Hatchett
|
Welcome to Sandi's Circle. Folks who have been in the PSC Partners community remember Sandi Pearlman as a bright, positive light. Her insight, humor, and supportive presence were a real gift to those who knew her.
In this space, we are not only sharing messages from Sandi, but we are also including important messages from others in our community. Joanne Hatchett is encouraging all of us to attend the Making Our Voices Heard: Patient-Focused Drug Development Forum, October 23.
"We are hoping for participation by as many PSC patients, caregivers, and family members as possible," says PSC Partners Medical Science Liaison Joanne Hatchett. "If there is one time we need full participation, this is it, because we want the FDA to experience the commitment and unmet needs of our patient community in order to understand the urgent need for treatments and an eventual cure for PSC."
|
|
Visit Sandi's Circle on our website for more words of encouragement from Sandi and others.
If you have something to add to this page, send it to contactus@pscpartners.org.
Due to space limitations, not all submissions can be added, but we invite everyone to use this space to encourage folks in the PSC community.
|
|
|
|
Help Spread the Word
on
PSC AWARENESS DAY
October 29, 2020
Please help us make a big splash on PSC Awareness Day!
- Post a selfie wearing PSC Partners garb. Be sure to use #PSCAware, and tag PSC Partners.
- Watch PSC Partners social media pages for shareable posts. Post them on your own pages.
- Post a brief video of yourself letting people know something about primary sclerosing cholangitis (PSC) and/or PSC Partners.
- Updated info-graphics will be available on the Awareness Page of our website. Check back for slides you can share on social media.
Thanks for helping us spread the word!
#PSCAware
|
|
|
|
Our Mission: To provide education and support to PSC patients, families and caregivers and raise funds to research causes, treatments and cures for primary sclerosing cholangitis (PSC). |
|
6900 E. Belleview Ave., Ste 202,
Greenwood Village, CO 80111
|
|
|
|
|
