Registration Now Open
United Against Ataxia Hill Day
September 29, 2021
We invite you to join NAF and FARA in raising awareness about Ataxia and supporting legislation that directly impacts our communities. 
 
The third United Against Ataxia Hill Day will be held on Wednesday, September 29, 2021. It will be a virtual event so every US resident, regardless of where you are, can participate. There is no cost or need to travel. Instead, you can speak to your Congressional Members right from the comforts of your home! 
What Happens at Hill Day?
 
A group of advocates will meet with Congressional Members to discuss issues important to the Ataxia community. This year's topics will include:
 
1.A Senate Resolution to declare September 25th as National Ataxia Awareness Day (S.Res. 339)

2.The addition of "Hereditary Ataxia" into the Congressionally Directed Medical Research Program (CDMRP)

3.Accelerating Access to Critical Therapies (ACT) for ALS (H.R. 3537/S. 1813). 
 
Your voice is needed to pass these important initiatives! No experience needed! NAF and FARA will be running a Hill Day Advocacy training webinar prior to the event. Access information will be sent to registrants at a later date.
 
Registration for this event will close on September 20, 2021. Don't miss the chance to join us, register today! 
For more information contact either Lori Shogren, NAF Community Program and Services Director, at lori@ataxia.org or Brigid Brennan, FARA Director of Advocacy at brigid.brennan@curefa.org.